Psychosis
Onset of mental distress
People talked about the start of their mental health problems. Some first noticed problems as teenagers - though a few said they were children at the time - others first had problems much later in life, in their 30s and 40s. Before people experienced psychosis many had had a period when they felt anxious or depressed. Some people could remember a particular moment when they started hearing voices or odd things happened (e.g. seeing skulls in walls), whilst others thought that everybody heard voices and only noticed them more when they were loud or distressing. When people looked back on their lives, they could identify experiences that they didn’t think were important at the time (e.g. such as being a ‘loner’ or always feeling ‘different’). People also had views about what caused their mental health problems; these ideas are covered in ‘Views about causes and triggers for mental health problems’.
First Signs
Before experiencing any ‘psychosis’ (e.g. feeling they were being taken over by demons, being told by a voice to cut off their cat’s tail), many people started to feel slightly paranoid or felt that their behaviour had gone ‘out of control’. Others couldn’t explain strange things that were happening to them, or felt physically very unwell.
Kirsty worked in a music store, but wasn't confident in her social life. She went to her GP with...
Kirsty worked in a music store, but wasn't confident in her social life. She went to her GP with...
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Started working in a music store. And within a couple of years, I’d worked my way up to manager. And I was actually thriving under pressure there for a while.
But my social life and my life outside of work was, you know, it wasn’t the norm, as it were. I wasn’t, I presume that I was quite popular at work, but I wasn’t really outgoing or extrovert, or any way confident and that in my social life.
Jenni felt as though she had been ‘hit on the head’, whereas Janey felt that at the time when she was enjoying herself at university she also felt she was ‘losing control’. Some people seemed to hear voices apparently for no reason, whereas others related their experiences clearly to traumatic childhood events such as sexual abuse or bullying (see ‘Childhood and life before diagnosis’).
Stuart talks about going on an anti-communist march in Russia, receiving a threatening phone call...
Stuart talks about going on an anti-communist march in Russia, receiving a threatening phone call...
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Many people heard and saw hallucinations only as adults; but a couple of people described these beginning when they were younger.
Dolly was terrified when first hearing voices while listening to a tape player. Within a week she...
Dolly was terrified when first hearing voices while listening to a tape player. Within a week she...
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Basically I was recording some music off the, off the off the radio, and suddenly I started to hear a kind another voice, apart from the person speaking on the radio and it was quite deep and it was quite gravely and it, it was, kind of, almost sounded a bit demonic. And I th…First of all, it just, it started just for you know, a couple of seconds, then it went, and I thought may be there was a bit of, kind of interference on the radio. But then it was kind of, directed at me, it was going, “Dolly, I can see you. I’m watching you.” And I got so scared. And I unplugged the radio. But I could still hear, this, this voice. And it, it just... to me, I mean now, I know, it was the beginning of my psychosis, but I actually thought, there was, you know, there was a devil in the room with me. And it was speaking to me.
And about fifteen minutes, this was about, it happened for about fifteen minutes, and then it kind of faded away. And... well, for the rest of the day, I had nothing. And I thought I didn’t know what it was. I was really upset by it, but I just thought, I thought it had gone. But like the next day it came back.
And this time it was like a constant kind of being talked at. You know, like hours and hours, and not only that my thinking started to get strange. I thought people, like on TV were directing kind of, or kind of trying to control my thinking. It was very, in a short period if time, I would say about a week, I went from just having nothing to be kind of totally psychotic, and in fact because I thought I was basically.
First episode of ‘psychosis’
Most people we spoke to could describe a time in their life in which one or more of the following happened to them' seeing, hearing, feeling or seeing things that weren’t there (e.g. Freddy Krueger sitting in the back of their van); feeling extremely paranoid; having bizarre or implausible ideas not shared by others around them (such as that ‘the day of judgment’ was imminent), or feeling as if they were ‘out of their body’ (for more on these kinds of experiences, see ‘Hearing voices, seeing things and unusual beliefs’). When these things happened for the first time, nearly everyone reacted by feeling terrified, as people didn’t know what was happening to them. Others just felt puzzled and confused.
Rachel thought something was going drastically wrong, thought the world was going to end, and saw...
Rachel thought something was going drastically wrong, thought the world was going to end, and saw...
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Pete found that he was locked in a world of voices, paranoia and depression. He had an out of...
Pete found that he was locked in a world of voices, paranoia and depression. He had an out of...
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And I think when me wife started to really realise was she wanted to foster a child because our children were at school full time and we’d got plenty of money and a big house and she wanted to, something to do, you know, she arranged for a Social Worker to come and visit us and, this journey home to visit this Social Worker should have took me thirty minutes but it took me three hours because if I saw someone I thought I knew I would drive in a different direction, I couldn’t get home because I thought I knew people and they were all out to harm me. And eventually I did get home and this Social Worker amazingly was still there and she was an elderly lady about five foot tall and I’ll never forget her, she had a red coat on and a black beret, and she was in the front room and, and as I walked into the front room I was bombarded with more voices than I’ve ever heard, it was a real crescendo, and he kept screaming, “That’s a man dressed up and a French spy, you should get him out of here.” So [laughs] I turned and walked out and me wife said, “What’s wrong?.” And I said, “That’s a man, it’s a French spy you must get them out of here.” So she asked this lady to leave and, as she was leaving this lady said, “Well why do you want me to leave you’ve invited me here?”. And me wife said, “Well [laughs] me husband thinks you’re a man and a French spy.” So she [laughs] then she, “You’re not going to lost, let us foster kids [laughs] after things like that you know.” And she told me to go to the GP and, I did and I explained what was happening and he just said, “You’re stressed, take these Beta Blockers you’ll be fine.”
And they didn’t really help and again I still had this big fear of disclosure what had really happened, and I hadn’t slept for days and, a real bad period of insomnia and it was in the early hours of Sunday morning, I had an out of body experience, I was out of me body, I couldn’t get back in, at that point I actually thought I had died, I really, really thought that I’m going to die at this point. I eventually did get back in bed, kind of back into me body and I went to bed but I was crying uncontrollably which is something I learnt as a child you don’t do because it’s a sign of weakness. And me wife asked me what was wrong but all I could say to her was, “Why’ve you let me die on me own after all I’ve done for you?”. And she couldn’t understand what I was saying, and I got up the next day, and I had this obsession with lights, I had to put a fridge door on so there’s a light in there, me wife was begging me not to go to work but I did and, been a problem on a job and this guy was shouting down the phone so, I’d tell him to F off and put the phone down, and me business partner said, “Pete you can’t speak to people like that in business.” And that’s, that was all he said and I hit him over the head with the telephone and I drove home and I curled up in this chair in the front room and e[h], and that basically was, was the beginning of the end really, I didn’t wash, I didn’t eat, I didn’t shave, I was locked in a world of voices, paranoia and depression, and eventually I was admitted to services and sectioned under the Mental Health Act which carried on for a period of about ten years.
Some people felt as if they disappeared into a dark world (e.g. with evil all around) - with one person describing this as like being sucked into a vortex; others kept trying to make sense of strange things that were happening to them such as television presenters talking to them, voices coming from phones or electronic devices. At the same time many people stopped caring for themselves properly, didn’t wash or brush their teeth, and couldn’t work.
Jenni found that she could smell things strongly, and thought that television programmes were...
Jenni found that she could smell things strongly, and thought that television programmes were...
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Like the strangest things kept happening. It’s like, you know, like you get twilight hour, you know that, like in a movie where it goes twilight hour, and it’s all oh nah nah nah nah. And it’s a bit like that. Like honestly, the strangest things kept happening. Like….
What sort of stuff was going on?
Like once I went to visit my friends and when I got home, all I could smell of was cats litter. And like it stank. And I was like how the hell has this happened, I didn’t even go near their cat litter. And I was like, oh my God, they’ve cursed me. Do you know what I mean. Just imagine, imagine that in your reality. Like, it’s like, what on earth? But that was like it was liked they cursed me when I went to visit them. They must be witches and stuff like that. It was really bizarre. Yes. Really interesting. I don’t know what that was about or, yes, but I know now looking back, like my experiences, my subconscious was like coming into the front of my brain. So like, weird thoughts that I had, like I think I built up a weird perception of myself, and a weird perception of the world, and then it all exploded, because it got too much. Do you know what I mean?
Yes.
People described the onset of an episode of psychosis as having ‘racing thoughts’, feeling ‘elevated’ or just ‘skew-whiff’. Many people remembered that an episode of psychosis followed not being able to sleep, whilst other people felt that it was the voices and racing thoughts that prevented sleep.
When Graham first went into psychosis he thought about self-harm and went into some woods with...
When Graham first went into psychosis he thought about self-harm and went into some woods with...
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And this was when I first went in psychosis. Basically I began to stop sleeping. And accompanying that I couldn’t stop thinking and for the first time in years the thought of self-harm became really prominent in my mind again. And I told my wife that that was what I was thinking. And we went to see a GP who made an emergency referral to a psychologist who was going to see me quite quickly to see if we could do something about it.
And then it’s really hard to describe what happens. I wasn’t, I was just thinking, and thinking, and thinking, and not relaxing and then everything inverted. And half formed thoughts became very real.
I began to think that... my blood had been poisoned by evil spirits and that I was evil, and that there were spirits around me, warping my thoughts and changing my thoughts, and that was very frightening and I didn’t know what to do with it.
And I think the worst thing I’ve ever done was one night when our son was in bed, and we were sitting down having a drink, I told my wife, that I had to go to the woods to get rid of the evil in my blood by cutting my wrists. And you know, it’s, it’s something that people don’t know how to respond to. So she just had to watch me walk out the door with razor blades.
And... I went to the woods and again I’m so glad I’m such a coward, because I didn’t do much. But what my wife must have gone through knowing that I could die and not knowing why I was doing it. It must have been terrible.
For most people the first experience of psychosis was the most frightening. Some were so unwell during the onset of psychosis that they were taken to see a doctor, and even kept in hospital involuntarily (i.e. ‘sectioned’ – held under a section of the Mental Health Act. See ‘Hospital treatment and compulsory care’). Many felt that if they experienced psychosis again, they had developed better strategies to cope or at least understood a little more what was happening. Many people say they now concentrate on things which help them stay well; for more on this see the ‘Strategies for everyday coping’and ‘Recovery’ topics.
Last reviewed July 2017.
Last reviewed July 2017.
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