Pete - Interview 05
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Pete grew up in Sheffield in what he describes as a very loving family. When he was about seven years old when he started hearing voices. He never told anybody about the voices because he was frightened. From the age of 5 to about the age of 13 Pete was abused by a child-minder but he was too scared to disclose this to anybody. At the age of 11, he says that the voices started to change and ‘the abuse got more severe’. Then the voices increased in number and ‘one became ten, ten became twenty’ telling him to harm himself and harm others. Even after a ‘suicide attempt’, he still never told anyone about the voices or the abuse. Pete describes how he came to a turning point when he told his parents ‘I can look after myself, I don’t want this woman to come around’ and the voices and the abuse went away.
Pete felt that he never fitted in, in school and quite often the voices ‘might pop back, but they were never too destructive’. He fell ‘madly in love’ and got married, but when his first son was born the ‘sense of responsibility overwhelmed [him]’ and it brought back the ‘emotions and feelings’ of abuse, and yet he still never told anybody. Pete lost his job in the recession, and was ‘under a lot of financial pressure’. He then found himself involved with organised crime and worried about ‘going to prison and losing his family’. Through the stress and the pressure the voices came back, and he heard a ‘loud shouting voice’ telling him he was Mickey McAvoy and that he had lots of money, so he went into a pub to buy everyone a drink. Pete talks about how he later went into business with a friend, and in the first year he turned over a million pounds. However, the pressure of working long hours was becoming too much. He became very worried that something might happen to his children when he wasn’t there. Pete became paranoid and thought that people were following him in his van; sometimes he ‘turned the van across the road’ and shouted at people to ask why they were following him. After a stressful period at work, he ‘didn’t wash, didn’t eat and didn’t shave’ and was ‘locked in a world of voices, paranoia and depression’. He talks about how he was eventually admitted to mental health services via his GP. Pete describes himself as having been ignorant of mental health care, and was shocked to see ‘people laid on the corridors’ and ‘double mattresses on single beds’ in the ward. He tried to run out of the hospital after a female nurse went to give him a rectal examination, and describes how he was told ‘you can leave but if you leave we’ll section you’. Pete eventually got out of the psychiatric ward by ‘lying’ and saying that he couldn’t hear voices. However when he was at home he experienced a ‘night terror’ and he describes how when his wife went to comfort him he ‘started to strangle her’ and she had to lock herself in a room downstairs.
Pete recalls the time he was eventually given a diagnosis by a consultant who said ‘Peter Bullimore, you are a chronic schizophrenic, you will never ever work again, go away and enjoy your life’. He was put on very high levels of anti-psychotics and experienced severe and debilitating side effects. He describes never being asked about the abuse or why he came to services. He eventually found an occupational therapist (OT) whom he describes as the ‘catalyst’ for his recovery. After his Mum died, he describes himself as ‘institutionalised’ in hospital and he remembers how his voices blamed him for her death. Eventually Pete’s OT encouraged him to start a Hearing Voices network, and now Pete chairs the group with 85 members. Pete describes how he felt that the only way to deal with the voices was to deal with the abuse, and eventually felt relieved of the guilt after deciding he ‘had no choice’ as he was a child. Pete talks about listening to his voices and finding a ‘dominant voice’ which he calls his ‘abuser’ and has learnt to no longer fear this voice. He describes his journey to recovery as ‘long and hazardous’.
Pete now works with the NHS, as an advocate and a campaigner. He has also been involved with the magazine ‘Asylum’ using his business experience. Pete describes himself as a ‘voice hearer’ and still struggles with side effects which he believes are caused by long-term neuroleptic drug use.
Pete found that he was locked in a world of voices, paranoia and depression. He had an out of body experience and found his behaviour became very erratic and sometimes violent.
Pete found that he was locked in a world of voices, paranoia and depression. He had an out of body experience and found his behaviour became very erratic and sometimes violent.
Pete was told by a consultant that he was a 'chronic schizophrenic' and that he would never work again.
Pete was told by a consultant that he was a 'chronic schizophrenic' and that he would never work again.
I was embarrassed to say I heard voices, the most problematic was the amount the drugs they gave me because when I eventually did get a diagnosis, the Consultant who gave me the diagnosis he, I can remember his words as clear as anything, he said, “Mister Bullimore you are a chronic Schizophrenic, you will never ever work again, go away and enjoy your life.”And I remember thinking ‘well how does that work?’, and he says, “Take these drugs and they will cure you.” Which is a complete lie because it never cured anybody in a hundred years but, but not knowing that I complied and I was very compliant to the point where I was taking twenty-five anti-psychotics a day. And I couldn’t walk me arms were rigid in front of me, I was a shuffle feet, I wouldn’t dare try and shave because I would have cut me head off with [laughs] with the razor. But that’s what people thought Schizophrenia was I personally don’t believe in Schizophrenia now but, that Pete’s a Schizophrenic, that’s how they look but it wasn’t it was the drugs.
Pete found he was surprised when he went to a 'Hearing Voices Network' workshop as people weren't scruffy.
Pete found he was surprised when he went to a 'Hearing Voices Network' workshop as people weren't scruffy.
Right I first attended a group , at Sheffield Mind years, years before and it was a Social Worker that kept, it were, it were, in fact me wife got a Social Worker I didn’t but he made contact with me and told me about this group and, I said I wasn’t going to go, but he kept encouraging me, now I’d become the archetypical Schizophrenic, I didn’t wash, I didn’t shave, I was really scruffy and I, I made me way to this group one day and there was ten other people there, and what really struck me was they were all smart and presentable, and I remember thinking ‘well how can they be Schizos if they’re not scruffy like me?’. And they started to talk about their experiences and it was amazing, I actually thought ‘I can take this mask off’ ‘I don’t have to pretend anymore’ and it was, it was like a liberating feeling and, and I felt welcome and I listened to what they’d, happened in their lay lives and moved forward, and then they invited me to a Workshop at St. Matthews Church Hall, and I didn’t know what a Workshop was. I got there and I were thinking ‘well where’s the benches? What are we going to make?’ and in walked three people from the Hearing Voices Network and [sighs] just one guy with him he was a, he was a psychologist called Terry McLaughlin, and he’d started the network in this country. And, and I listened to all these people talk, people talking about trauma in their life and linking to voices and I suddenly thought ‘perhaps there’s another explanation from what I’ve been told’. But I was still on really heavy drugs so, you know, I couldn’t act on it but a, the seed had been sown about this, in this organisation, and I remember approaching Terry at the end, I didn’t know him from Adam, and I says to him, “Hi I’m Peter Bullimore and I’m a schizophrenic so I must be mad, can you tell me when.” [Clears throat] sorry. “I’ll be classed as insane?” And I was, and I’ve, I’ve got to Terry really well over the years and he just looked at me and he says, “Peter.” He says, “Why do you say you’re mad? And why do you use the word schizophrenia?” I says, “Because that’s what I’ve been told.” He says, “Hearing voices has nothing to do with schizophrenia.” He says, “You’re not mad, it’s society that doesn’t understand.” And his words were so profound, and they’ve always lived with me for years those words and it was kind of a big turning point meeting again others and looking at these different explanations but I tried to speed up the process I thought ‘I can do this on me own’, you know the no man’s an island and I thought I was that island you know? And I stopped going to the group, I didn’t realise how much support I was losing.
Pete started to hear voices at the time he was sexually abused by a child minder, but he was afraid to talk to anyone about this.
Pete started to hear voices at the time he was sexually abused by a child minder, but he was afraid to talk to anyone about this.
Oh initially as a child life was quite difficult, [tuts] I had very, very loving parents but we used to have a childminder that would come round on a Friday evening and look after us, and after a period of time I started to experience sick sexual and physical abuse off this woman from the age of five up to about the age of thirteen. I would say about, when I was about seven year old that’s when I first started to hear voices. But the voices were quiet reassuring and, comforting at that time. I never told anybody because there was a, there was a big fear about abuse, I was very, very frightened to mention to anyone.
And when I got to about eleven I think it was, the abuse and the voices changed, the abuse got more severe , it got more disgusting, but the problem was in it, in some ways me body responded which said I was enjoying it and it really, really confused me, how could I be enjoying something that I actually hated? And from that point the voices took a sinister turn, one became ten, ten became twenty, and they told me to harm meself and harm other people, and I would do, I would be out assaulting people and nobody could understand me behaviour, even to the point where I tried throwing meself down the stairs, and like a suicide attempt, I just really started to lose control but still never disclosed to anyone.
I think the lowest point was probably when I was about thirteen year old but it proved to be a massive turning point as well. This woman had come round mid, mid-week while I was doing me homework and said to me parents, “I’ll go and give him hand to do his homework.” And she had full sex with me, upstairs. And I had this big fear, ‘what if she’s pregnant? I’ll get blamed for this’ and everything else, and obviously it turned out she wasn’t pregnant, but it gave me the courage to say to me parents, “I can look after meself, I don’t want this” “woman to come round.” And they agreed, and the interesting thing was once the abuse stopped the voices went away. But it laid repressed and buried, I never told them the bit about the voices or the abuse.
Pete describes his long journey trying to make sense out of his confusing experiences.
Pete describes his long journey trying to make sense out of his confusing experiences.
Pete was helped by an occupational therapist to build on a 'turning point' in his life, and together they started a Hearing Voices group.
Pete was helped by an occupational therapist to build on a 'turning point' in his life, and together they started a Hearing Voices group.
And then I fell into a relationship with someone a lot younger than me and people said, “You shouldn’t go out with her she’s got a history for violence.” And but I’d been on me own for about God knows who many years so I thought ‘in for a penny in for a pound’ you know what it’s like at times, and at first everything was okay and then one Friday night she got extremely drunk and I realised that [laughs] it was the Friday again and for no reason she smashed a vase in me face and put fourteen stitches in me face and carved me body up like a draughts board, and that went to Crown Court, and [name] came with me, and we came out of court and she said to, “How are you?.” I said, “I’m glad it’s over [name].” She said, “I didn’t ask you that Pete, I said how are you?” I said, “I’m alright.” And she said, “How are your voices?” And I suddenly realised I hadn’t got any. She says, “You’ve just turned the corner of your life, everybody reaches a major turning point and this is it for you. Any other time this amount of stress would put you back in hospital.” She said, “You’ve got to build on it.” And I said, “Well I don’t know what to do.” And she said, “Well there’s a pub across road, we’re going to go in there and if we have to sit in there and get drunk we’re not leaving until you decide what you’re going to do.” So you can imagine I dragged that conversation out as long as I could. And eventually she encouraged me to start a Hearing Voices Group, I was reluctant at first, I’d been to one years before at Sheffield Mind and that had closed down and we started the group together and today we’ve now got eighty-five members and that was really the start of me turning point on recovery by getting more involved with services.
Pete describes going to his GP, after which his dad took him to hospital.
Pete describes going to his GP, after which his dad took him to hospital.
Pete tried to reduce his medication and found that walking with a neighbour was very helpful.
Pete tried to reduce his medication and found that walking with a neighbour was very helpful.
Pete was on very high doses of medication in hospital and experienced severe side effects.
Pete was on very high doses of medication in hospital and experienced severe side effects.
And I know you talked a little bit about it before but what’s been your personal experience of medication?
Very, very negative, it never ever took the voices away dictation now. I believe the stomach problems are linked to long term use of antipsychotics probably never, they’d never admit to that. but as I say I was naïve, when I went into the system I didn’t know anything about psychiatry or Mental Health, I saw the psychiatrist as being the expert, “Take these they will cure you.”
They didn’t. “You just need to take a bit more and they will cure you.” And it went on and on and on to the point I was on, as far as I can remember at times two thousand four hundred milligrams of Sulpiride forty-five milligrams of Stelazine, I was on Fluoxetine, Mesoridazine, Lofepramine, Chlorpromazine all at the same time to the point I just, been I actually, to the one point I actually got weekend leave from the hospital and I managed to walk to the bus stop and I sat there for three hours, I just couldn’t get off the wall until, a nurse going off shift said to me, “Why are you sat here?.” I said, “I just can’t get off the bus.” And I had to be taken back to the ward because I didn’t get a, I wasn’t given anything, muscle relaxants or anything it was absolutely horrendous but the voices I thought were getting worse.
Pete doesn't like models of how people should recover.
Pete doesn't like models of how people should recover.
When Pete had acute appendicitis and was admitted to hospital, his partner had to persuade the consultant that he was telling the truth about stomach pains.
When Pete had acute appendicitis and was admitted to hospital, his partner had to persuade the consultant that he was telling the truth about stomach pains.
Eventually me appendix burst and I was rushed to hospital in the early hours of the morning and I was in A&E in the waiting room and it was seven o’clock before I got seen, and fortunately me partner had come with me and they said to me, you know, “What’s been happening?.” And they did a blood test, apparently with your appendix your white blood count’s supposed to drop but mine didn’t, and they said, “Have you took any drugs?” Well I reeled off all these anti-psychotics [laughs] I think he knew it might be relevant, and he said, this is gospel truth, and this nurse came back and said , “Are you going to tell us the truth what you’re doing here? Don’t waste our time.” And me partner was really kicking up a fuss and eventually this surgeon come and he did a rebound test, and it nearly put me through the roof and he says, “This guy’s got appendicitis.” I, it was ten o’clock in the morning I’d been there since three in the morning when I got admitted to the ward, I was placed on morphine, ten o’clock at night the same surgeon come back and said , “And we’re really busy in theatre we’ll probably just drain your stomach and send you home.” Then me partner said, “You can’t you’re going to kill him.” And I was sent for an ultrasound then and me appendix had burst and there was an abscess on it. But it was three o’clock in the morning before they actually operated, so I’d been there twenty-four hours, and as luck would have it I knew one of the theatre technicians, and he came to see me partner afterwards and he says, “He was an hour from death.” He says, he, he said, “It had all gone to peritonitis through his body.” He says, “We opened up his stomach and we had to leave it for ten minutes because of the smell of the poison.” And he says, “We washed his stomach out three times before we actually started work on it.” And I’d been out of hospital a week and the peritonitis came back, I got straight back in, and it’s just been an accumulation of event, it’s, it’s never been right from that point.