Life-changing injuries

I suppose we’re fortunate that the trauma centres were set up, not long before Daniel had his accident. He had, he actually had the accident in [place] in [place], which is a good like, 30 minutes away from here; we’re in [place]. And then he was taken straight to hospital, which is in London. If the trauma centres were not in place we have been told that had Daniel been taken to a local hospital from [place] and then transferred to a specialist unit dealing with neurological issues, vital time would have been wasted and he probably wouldn’t be here now. By sending him straight to the trauma centre where they had neurosurgeons on site straight away, he got immediate care straight away in the, I think it’s like the ‘golden hour’ they call it. He had medication straight up. So that made a huge difference.

 

So I feel by living in London. Having those, accessibility to those services definitely made a big huge difference. You know, without HEMS coming out to him, getting his airways clear and getting oxygen straight to him. He was worked upon the whole way in the ambulance up to hospital. And then having the trauma centre on site, neurosurgeons on hand, operating, you know, within a few hours of, you know, after the accident, definitely no time was wasted. And, you know, looking back I think that’s what I see is why his recovery was so, you know, was so good. Because everything was just there 

Now I was, when I joined Headway in ’04, I was going to and from [local tube station] and getting the train and bus and paying the travel card. No one said to me I was eligible for a Freedom Pass. My accountant hadn’t told me. No one in rehab had told me. Even Headway didn’t mention it to me. I reclaimed my… I was reclaiming on my expenses, so it was actually costing them to go to and from. Now, I was about a year or so into working at Headway, someone said to me, remember this was two or three years later in Headway, “Have you got a freedom pass?” I said to that volunteer, “Hold on, how come you’ve got a Freedom Pass.” “Oh it’s eligible. I’m eligible for one. Haven’t you got one?” “No. No one said to me.” “Oh yeah, you are”. So I applied and got one. So in a way I wasn’t aware that you were eligible for one, but you are, and it’s handy because that’s a free bus pass UK wide. Ok, trains I only use in London and if I’m going to, [place] for example, to see my parents, my section from London, [place] to London would be free, a bit from London onwards to [place] will be paid for, but I have to pay for that myself. But that’s the benefit it’s nice to have, the Freedom pass, because its freedom, it gives you freedom. Yes.

 

I guess having the options, having the Freedom Pass there and having the ability to go and from by bus, tube, train is good. That’s, they’re all there. I can take any of those.

 

Also the resources around' libraries, getting online in the libraries if need be, having broadband, I’ve got broadband here, and just having the options there. If I want to get shopping oh it’s 10 at night, Tesco is open. So there’s things, there’s all options, you have more options here, maybe than elsewhere that I can do, things to buy, things to do, places to go. I’m not far from the M25, the A10s there... train station’s there. So I can get tubes over there. So if I want to get to and from places, I can drive. There are options; there are so many options that’s what’s nice about being I London. Also, because my long term memory is good, London’s what I know. I know London, so if you ask me how to get to Green Park I know its Victoria, its Piccadilly line. I know that, because I’ve done it time and time and time again. So I know London.

 

Oh that’s a nightmare. That is a nightmare.

 

 

There is no place to park. So every now and then I get a parking ticket. If I park, if you park within a little bit over the parking space, they can give you a parking ticket. Sometimes, I thought to myself, no, do I have to drive round and round and looking for a parking space to fit the whole car inside the parking space, I’ll just park here and get a ticket.

 

For all the years this has been going on I’ve thought to myself, try not to worry so much anymore. When I get a parking ticket I’ll try to appeal it, and if I can’t get it appealed. I pay half price first. And then my first letter to appeal it I need a reply with 24 hours because you have two weeks to pay half price. I put that down and make sure that if I’m not going to get my ticket rescinded, I have to pay the half price. You get used to it. And all these type of things need to go into your full comprehensive assessment of needs under your transport. Annually you budget for how much. You do 365 days a year, sixty-six days a year. You go how much ever days, are you budgeting for 100 parking tickets? I’m sure these types of things, the government would not like if disabled people start doing that. I’m not encouraging disabled people to park illegally. But in London there is no place to park. At the moment they still, sometimes they tow your car away. So you will have to, this is not good. This is very bad. In our report we need to provide for parking spaces, parking ticket, towing charges. If they tow your car it could hit you £300/400 or more, depends on the circumstances and who you have to help you, quite easily. And that is only one day.

 

 

Traffic. Getting from A to B.

 

 

Sometimes it takes longer to cross London than it would take to come here in Oxford. I know sometimes in London you can go, a five minute journey will take you an hour. And if there’s more hold up or diverse in the traffic it can take you two hours to move from five or ten minutes journey. At times, maybe in the countryside is better.

There are various organisations out there in London that are fighting to make transport more accessible. I don’t know how far they’ve got with that. I mean there’s no current timeline to make the whole tube network accessible. I think they just recently scaled back on making more tubes accessible. I think they’ve actually scaled that back by 30 or 40% on you know, previous plans to make certain tube stations accessible. You know, you have to understand that it’s an old network, so it’s not very easy to make tubes accessible, but it’s all about motivation and money and making these things happen. And they basically are getting a big stick to hit people with to make it more accessible. 

 

People wonder why people don’t leave their houses that are chair users. 

 

They don’t leave their houses sometimes because it’s bloody hard to do so. So, the more easy you make it, and the more you make people part of society, and out there working, travelling, and spending money, and going to pubs, and just being a person that’s, who is trying to engage with everybody else. So you know, it is a problem. You know, on trains, why are trains three foot above the platform, therefore, you need a ramp? Why aren’t they lower to the platform and you don’t need a ramp? You know, I hate trains. I’m like a piece of luggage when I’m loaded onto a train. You know, why aren’t they just low? Or why aren’t the platforms higher? Or why is there not a button on the side of a train that the ramp comes out on its own? Why do you have to wait for some bloke to turn up with a ramp, who often doesn’t turn up? As I’ve found to my costs. I know other people swear by trains and say they’re fantastic and use them every day to go to work. I have had the worst experiences. You know, so that inconsistency doesn’t exactly instil confidence. You know, if one person finds them fine, they probably use them all the time and have no problem, but for me, you know, I’ve had, you know, stuck on trains going down the line, where I’m not meant to be and then trying to get back down the line. It’s just horror stories. 

 

And so no, it’s not brilliant, tube stations, you know, Jubilee line’s not bad in London, but it’s still a problem if the tube’s packed. If the tube is jammed how do you get onto it and nobody will make room? They won’t make room for an able-bodied person, they won’t make room for me, so…. And then there’s a six inch gap that you have to leap over. Even if it’s flat so…. There’s now some websites that actually show you how accessible the tube stations are with video footage and so on, so you can use those to kind of plan your journey. But, it’s another thing you have to do. An able-bodied person doesn’t have to plan their journey to work, so why should I? Why should it be made so hard for me to plan my journey to work? And I’m quite a resourceful resilient person. There are others out that that are far less resourceful, resilient. They must really struggle. So yeah. Universal access in my life time would be a nice, would be a nice thought.

And one of the things [the neuropsychiatrist] said to me, well when I last spoke to him personally, I just said, you know, “The eyesight thing is the real thing that pisses me off.” And you know, it’s because people don’t know, so they bang into when you’re in the tube, or you’re going up the escalator or something.” And he said, “Well Bridget, just get yourself a little white stick, a collapsible stick which you old in your hand and you can lengthen it or shorten it with the flip of your and just have it there.” But I know I went away and I thought, well he really doesn’t know me at all does he? There’s no way that I’m ever going to have a little white stick in my left hand. Because however bad it is, it’s not that bad that I’m going to do that.

 

 

Because I don’t want it to be obvious. I mean that’s what I like about it, that it’s, it’s not obvious and people don’t know. Yes, it pisses me off when people bang me on the shoulder and occasionally I do say, “Can’t see out my left eye.” But generally, I can cope with that. 

 

I suppose the fact that there are more people around and, therefore, there’s less, people are less ‘kind’, in inverted commas, whereas when you’re somewhere more rural people do let people on the bus before them and they will help you in the street if you need it, or things like that, whereas you don’t get that in London I don’t think, or very rarely. So I think, but I was a very, I was very used to living in London, and, and, you know, I mean I lived in [place name] and so that, and you know, I don’t think that changed after the accident. I think I still liked being a Londoner and like, I like the anonymity and I suppose anonymity is good because I like it. But if I didn’t like it, then that might have been an issue.

 

Well I have to like psyche myself up because I can’t stand crowded places. And if I, and if I’m, like say like when I used to go up to the RNIB at King’s Cross I have to go at a time when there is less people on the trains or there is less people in King’s Cross and I have to think about it. I really have to psyche myself up and plan it, maybe Google maps and plan so I know basically where the lifts are, how you know, if it just has steps that day will be very difficult. But if I had planned yeah, I can get through it.

 

Yes. Because I mean, you know, when you play in a band you play to like 10-50,000 people. I mean they don’t all come in your dressing room, but you know at least a good ten or thirty people would come back in your dressing room after, after a gig. But as you are dealing with them out there and I’m here. But now after the accident I just know that I just can’t deal with crowd, I don’t know. I don’t know exactly why, but I just don’t like crowded areas.

 

Yes.

 

Well because I have problems like with my joints and, you know, stairs, I’m not really too good with stairs. So I have to really depend on the lifts. And if it’s a place like King’s Cross where I know that area and I know that area and I know that place, I know that I can deal with the steps. Yeah. Or Baker Street I can deal with the steps, but there are some other places it’s just a nightmare, you know.

 

Well there’s an awful lot going on. It’s frenetic. Yeah, life is very, very busy in London. Everyone is rushing around. Everything is at a hundred miles an hour. Yeah, and people don’t have time for other people, and so you’ve pretty much got to be on your ball all the time.

 

 

Hm.

 

 

Not a great deal. I was aware of it. And the only reason London itself is uncaring, the people within it are fairly uncaring is, is because everything is done so quickly. Everyone is, everyone is moving at a hundred miles an hour. The situation just demands it, turns people into it, etc., etc. And there’s nothing you can particularly do about it. That’s just the way the world is, especially when you’re talking about in a really large metropolis. If you don’t like it ship out. But I like some aspects of it. I don’t like other aspects of it. I prefer to stay here. So we’ve just got to deal with it. And be aware of it.

But you know, I’m from London. I love London. It’s like, you know, there’s lot of stuff to do, you know, you’re not in the countryside like where pretty much everything you can do is some kind of physical activity. There’s lots of like cultural stuff you can do here, which is which is great. You know, we’re quite, it’s a world city, so there’s a standard that things need to be done to in terms of accessibility of new things. So that’s good. What else is good about London? And you know, it’s where I’m from. It’s where my friends are from. I wouldn’t be anywhere else. 

 

You know, you talk about when you’re in a panic station, when your injury first happens about moving somewhere else and you know, go somewhere where you can be relaxed. It’s just nonsense. You need to not separate yourself from the support that you have already in place. And so, you know, London, that’s what London was to me.

Because I mean people up in Blackpool, they great. I mean they actually look at you as a normal human being. They don’t sort of like, oh look at him, like you get down in London. People in London they’re too sort of like into themselves basically trying to sort of like survive and that. Whereas in Blackpool and places like that. Easy Street. I mean they get the same benefits that I get, and no... So they get the same money as well. And … their money seems to go a lot further up there than what it does down here.

 

Well it is yes, it’s becoming very expensive now. But I’ve said to my mum and dad is that I want to do – God forbid my mum and dad pass away, soon or whatever – but not so soon, but in years to come and that, then I’m going to leave London and move out of London, even down on the coast or I’m going to move up to Blackpool.

 

 

Because people up there are more friendly and that. They actually treat you as normal, as a human being, do you know what I mean? I mean it’s a rat run down here, isn’t it?

 

Oh bloody hell. It’s sort of like oh I’ve got to here, I’ve got to be there. I’ve got to get this, got to get that, got to do this, got to do that and, you know what I mean? And they’re stressing themselves out so much and, and they don’t, end up having a heart attack or premature death. Do you know what I mean? sad.