Breast Cancer in men
Tamoxifen and other hormonal treatments for breast cancer in men
After an initial bit of queasiness, Bob had no side effects from tamoxifen. His wife helped him to remember to take his tables every day.
After an initial bit of queasiness, Bob had no side effects from tamoxifen. His wife helped him to remember to take his tables every day.
How did you find the tamoxifen?
Derek had taken tamoxifen for five years and had no side effects. then took another drug for a while.
Derek had taken tamoxifen for five years and had no side effects. then took another drug for a while.
Steve had quite dramatic hot flushes when he first started taking tamoxifen but these quickly got much better.
Steve had quite dramatic hot flushes when he first started taking tamoxifen but these quickly got much better.
I started on tamoxifen more or less as soon as I got home from surgery, and I was told to expect hot flushes, but, and then when I had them, I had them! (laugh) But I’m used to it now, I, well, to be quite honest with you, if I get one a week, now, and this is six months after surgery, they’ve had no, I’ve got no obvious side effects with tamoxifen.
So you didn’t have to take a spare set of clothes with you to work and...
No, it was okay. But I thought, if this continues into work, that would have been a problem, but it wasn’t.
People would have thought you were trying to show off an extensive wardrobe!
Yeah, yeah exactly yeah, yeah, take three changes of clothing in, yeah! But it wasn’t to be, so...
And have you been, were you affected by those at night, or was it mainly during the day?
It was at any time. There was no rhyme or reason, you know, I thought that maybe you saw a pattern, like circadian pattern, but it, there, there wasn’t.
But otherwise you’ve been, you’ve had no side effects from the tamoxifen at all?
No side effects at all. I tend not to read up on side effects for tablets, otherwise you sort of think, you know, you invent side effects, I think. It’s probably best just to take it as it happens, and if it happens, it happens.
John described his hot flushes and night sweats as a 'pain in the bum' but said they were not a major problem for him. He also wondered if tamoxifen had made him gain weight.
John described his hot flushes and night sweats as a 'pain in the bum' but said they were not a major problem for him. He also wondered if tamoxifen had made him gain weight.
I’m on tamoxifen.
Derek wished that he had been warned that he might put weight on whilst taking tamoxifen so that he could have tried to 'combat' it from the start.
Derek wished that he had been warned that he might put weight on whilst taking tamoxifen so that he could have tried to 'combat' it from the start.
I started the tamoxifen even before I had the radio [therapy], virtually I think, I think it was almost you know, as soon, soon after I came out of hospital and that really. ‘Cos I said to him recently when I, I saw him, what did I see him? ...about a couple of months ago, and I did say to him, I said about putting on the weight and that, so he said, “Oh well” he said “it is fault, or it’s a side track of tamoxifen that you put on weight”. So I said, “Well how long am I going to have to take this?” So he said, “Well, I think it will be five years”. So I said, “Well I hope I don’t go carrying on putting on weight at the same pace (laugh)…, ‘cos otherwise” I said, “I’ll be as big as a house”. But you know, I think it’s just a question of now being sensible and realising what’s happening and sort of trying to combat it with the diet side of it.
David S put on weight whilst taking Tamoxifen, and thought he had maybe been more forgetful.
David S put on weight whilst taking Tamoxifen, and thought he had maybe been more forgetful.
BT felt that the only side effect that he had from tamoxifen was tiredness. He now takes it at night so he can sleep through the effects.
BT felt that the only side effect that he had from tamoxifen was tiredness. He now takes it at night so he can sleep through the effects.
The only thing it’s doing with me, it’s made me tired. That’s the only downside. Apart from that, I haven’t noticed anything different. As I say, I do know that a lot of people have a lot of problems with tamoxifen. And some, there’s a lot of women, they can’t take it or the side effects are horrendous. Now whether, you know obviously the side effects that the ladies get is totally different from what we would get anyway.
Roy felt more emotional when he was first taking Tamoxifen, which he made a joke of in the end. He also suffered from itchiness but the Tamoxifen helped him to sleep.
Roy felt more emotional when he was first taking Tamoxifen, which he made a joke of in the end. He also suffered from itchiness but the Tamoxifen helped him to sleep.
I’m on tamoxifen, twenty milligrams, take one of them. They’ve had some weird effects on me.
And are they recommending that you stay on the tamoxifen?
I’ve gotta stay on it for five years.
Five years, so you’ve got about another three and a half to go?
Yeah.
Yeah.
Yeah, about three and a half years to go on it. But they’re not a problem – actually, they’re a good sleeping pill, actually.
Are they?
Yeah, they make you sleep, yeah. See, what I do, I used to take them in the morning, and I would be quite sleepy all day – so I stopped taking them in the morning and started taking them at night, and I take it, within sort of half an hour, I’m (snoring noise), I’m gone, you know? So I use them as a sleeping pill, really. It’s quite useful, you know?
Robert found it difficult to know whether the tiredness he was feeling was due to the chemotherapy, tamoxifen or Herceptin. He had changed drugs and rarely feels tired now.
Robert found it difficult to know whether the tiredness he was feeling was due to the chemotherapy, tamoxifen or Herceptin. He had changed drugs and rarely feels tired now.
Yeah, well probably looking back I’d started on tamoxifen tablets in the December of 2006 or – or maybe the January I can’t remember, and I was thinking the tiredness was probably associated with that, but it could have been equally the Herceptin that was causing it, to feel tired as well. And so once that stopped, yes, you still… tiredness was a problem with the, problem with the tamoxifen maybe it was just getting over the operations maybe it was the chemotherapy, I don’t know – but, in that initial year or so, you could get very tired in an afternoon and people, other people, women I’d talk to that’d had breast cancer they would say the same, they would get tired. They changed my drug of tamoxifen onto the new type of drug, in 2008, August 2008 and that’s been, that’s been I’m more or less back to normal in terms of how I feel on a day to day basis, I’m not saying I don’t get the odd day when I feel tired, but it’s pretty rare occurrences is that now.
Robert found it difficult to know whether the tiredness he was feeling was due to the chemotherapy, tamoxifen or Herceptin. He had changed drugs and rarely feels tired now.
Robert found it difficult to know whether the tiredness he was feeling was due to the chemotherapy, tamoxifen or Herceptin. He had changed drugs and rarely feels tired now.
How do you find the tamoxifen?
Dan can 'live with' the side effects of tamoxifen to get the benefit.
Dan can 'live with' the side effects of tamoxifen to get the benefit.
And how do you find the tamoxifen?
Tim had been taking tamoxifen for about seven years when he developed a thrombosis in his leg after a hip operation.
Tim had been taking tamoxifen for about seven years when he developed a thrombosis in his leg after a hip operation.
And what was your experience of taking tamoxifen?
John was given Arimidex rather than tamoxifen after it was discovered that he had had a heart attack.
John was given Arimidex rather than tamoxifen after it was discovered that he had had a heart attack.
When did they put you on the tamoxifen?
More information on hormone treatments is available from Breast Cancer Care, and women who have had tamoxifen and other hormonal treatments (Arimidex, Zoladex, Femeraetc ) describe their experiences on our ‘Breast Cancer in Women’ website section. Experiences as a man in different breast cancer treatment settings describes the disbelieving reactions that a few men experienced when they went to the chemist to pick up their tamoxifen prescription.
Last reviewed June 2017.
Last updated June 2017.
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