Organ donation
Overview
In this section, you can find out about experiences of organ donation and transplant from people sharing their personal stories.
Researchers travelled all around the UK and interviewed people, including donor families, living donors, and recipients. Find out what people thought about organ donantion and issues such as saying goodbye, donating a kidney, and contact between donor families and transplant recipients.
Organ Donation - Preview
Organ Donation - Preview
Linda: I've had an open donation card. The thing that I didn't know was whether or not John would agree with organ donation. So my message, my biggest message would be for people to, to talk about organ donation, to talk about their wishes, and of course their wishes might be that they would not wish to be an organ donor. Which is fine, it's a free country, we're entitled to our opinions.
Lesley: But on the final letter from the co-ordinator, she enclosed another letter from one of the recipients. A gentleman called [name] who had received Christian's lungs. And that letter was just absolutely wonderful.
Paul: It was meeting somebody who explained that, you know, getting a kidney had been like winning the lottery from his point of view. It was somebody who had been on dialysis for a number of years.
So was this a patient?
It was a patient yes. It was somebody I, I saw in the course of work. In fact he said it was better than winning the lottery because he said it was, you know, even winning the lottery wouldn't have changed his life as much as that.
Cheryl: It wasn't a nice time for me because I'm very independent. And it was one of them times where sometimes I wished, you know, I just wished the call would come that I would actually have the transplant because I wanted to get back to normal, what you call normal. But, you know, I also knew, like I said, they were waiting for the right ones.
Deepak: After my transplant. It was quite remarkable, actually. I still believe it was a miracle transplant for all kinds of reasons. And, you know, the doctor said my goodness, you've kicked back, you know, almost from day one after the ten days when it didn't kick in. And I felt my energy levels peaked even more than before my illness. And so I was quite hyperactive almost, wanting to do this…, maybe trying to make up for lost time in a way.
Di: This whole experience, even with its hiccups and personal stresses, which is just me being impatient really, has been a wonderful experience. One that I would gladly do again and again and again and again even with all the hiccups because the reward at the end, not only for the recipient but for me, has been something that's going to stay with me forever. And it's, you know what greater gift can you give anybody than give them their life back or give them back to their family? There isn't yet it’s so easy to do.
Families and potential organ donors also share their perspectives on organ donation, including:
- People who want to donate their organs when they die and how they made their decisions
- Experiences from families who have been involved in conversations about organ donation after their relative died
- Experiences of organ donation from people of ethnic minority and faith backgrounds.
Healthcare professionals also share their perspectives.
The purpose is to help you feel more informed and reassured about organ donation and explain the law on organ donation and how this relates to you.
A legislator introduce the section explaining how the law is designed to help.
Baroness Finlay of Llandaff, a legislator, explains how the system works.
Baroness Finlay of Llandaff, a legislator, explains how the system works.
I am Baroness Finlay of Llandaff.
I’m a doctor and I’m also in the House of Lords, and I was involved in supporting Welsh government taking through their soft opt-out system.
And I’ve been involved in supporting the legislation as it’s gone through at Westminster for England.
So now we have a soft opt-out system where it’s presumed that people are happy to donate their organs after their death unless they’ve indicated otherwise or registered their decision for opt out.
The principle behind this is simple decisions about organ donation rest with individuals to make during their lifetime, and families can feel reassured that they’re supporting what their relative had wanted when their relative dies if they’re possibly an organ donor.
If you live in the uk, you can be expected to make your decision about organ donation while you are alive, and you can do this in many ways, which are run through now.
You can register your decision on the organ donation register, and there’s a link to it on this site.
You can discuss your decision about organ donation with your family and friends so they know what you want or you can do nothing and be happy that you are presumed to be an organ donor.
Now, if you are worried that your family or another person wouldn’t support your decision or you are unsure or you’d like further information, you can opt to appoint or nominate someone to be your representative.
Most people find the easiest way to ensure their decisions will be respected and upheld is to register on the organ donor register and discuss their decision with their families.
There are resources to help you discuss your views and decisions with your family, and they’re available on the website.
The steps are simple.
Get the facts, talk about it, relax, speak from your heart, talk about your beliefs, and don’t delay.
Talk about organ donation today. Don’t put it off.
It’s simple. Thank you.
Some interviews in this section were collected before the ‘opt out’ or deemed consent system of organ donation was in place. The site was updated in 2026 with research findings and interviews collected after the 'opt out' system.
We hope you find the information available here helpful and reassuring.
The original research
The University of Oxford conducted the original research for this site and includes research findings from 39 interviews. These interviews were conducted before the 'opt out' system.

Supported by:
ICNARC - Intensive Care National Audit & Research Centre
2026 update - New research findings
In 2026 this section of our website was updated with research and interviews conducted after the 'opt out' system'. The content provided after the 'opt out' system is based on research findings by the London School of Hygiene and Tropical Medicine and Bangor University for the project 'Evaluation of the Organ Donation (Deemed Consent) Act, 2019'.

The research was commissioned by The Department for Health England and funded by the National Institute for Health and Care Research. Their research involved interviews with over 100 families from across England and Wales. You can find links to their wider research in our credits section.

The material on this site is supported by research carried out by the NIHR Policy Research Unit in Policy Innovation and Evaluation.

This is a summary of independent research funded by the National Institute for Health and Care Research (NIHR) (Policy Innovation and Evaluation Research Unit). The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care.
Original publication date: October 2011.
Last updated: January 2026.
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