Organ donation
Recovery at home and follow up after living donor kidney transplantation
Patients who have had surgery to donate a kidney are given painkillers immediately after the operation and when they are discharged from hospital, to use during their recovery period. Some people may also be prescribed antibiotics for a short period if they need them. However, living donors do not need any long-term medication as a result of kidney donation.
At first, Wallee had very little appetite and slight discomfort around the wound. He spent five...
At first, Wallee had very little appetite and slight discomfort around the wound. He spent five...
I was in a certain amount of shock and things that were slightly uncomfortable was that I found it difficult to eat, because obviously everything had happened in the tummy region. So my digestion wasn’t, you know, I wasn’t really having much of an appetite. And there was a certain amount of coming to terms with what had happened. I just remember having, sorry it’s hard to explain, an almost kind of a deep experience about the whole thing, just something deep because I agreed to do something, and I trusted in something, so something else took place, which has remained with me ever since actually.
I was ready to go home. I was ready to rest and have food at my own time, not when the food came around in the hospital. And I had better food actually in hospital, that’s the reality. I could say, “Well I feel like a little bit of fish or something, potatoes.” I could actually say that because there is a menu in hospital but, you know, they’re cooking on such a big level.
I spent five weeks, something I’m going to have. I think it might be slightly wrong, something like five weeks in my friend’s house. Then I went to Denmark for a week. So somehow about two months, you’re still recovering for a few months after that. But two months, allow time. But it’s not like, it’s a case of really being ready, you’re up walking in a couple of weeks, shuffling around.
Paul had some pain at first and felt a bit constipated. He recovered quite quickly. He went into...
Paul had some pain at first and felt a bit constipated. He recovered quite quickly. He went into...
I came home by train, train and car from the station and then I was at home, pottering around. I spent a fair amount of time lying down or in bed. Obviously it was a bit sore at times and I needed some reasonable strength painkillers, but it wasn’t a big deal.
I got a bit constipated, which I think is always, and I know from what people tell me, that’s always something that is a bit of a nuisance and always gets people down a bit. And it was just quite interesting to have the experience myself. So I look on it as a kind of learning experience and it didn’t last that long. But, for a few days, I think it was probably the symptom in a way that troubled me most. Even more than the pain.
But I actually got better quite rapidly. I went out to lunch, a half hour’s drive away, the next weekend on the Saturday. I can remember I didn’t have much appetite still at that stage, but I was fit enough to travel. And in fact, though I probably shouldn’t have done, I actually went and did a clinical session about a week later, after the operation. And I think, probably in retrospect, I wasn’t entirely well. I don’t think I did anything dangerous. I’m sure I was fine. But anyway, so shortly after that I started driving again. So I was driving within a fortnight and I have no doubt that I was quite safe to do so. It was quite comfortable.
Wallee felt a bit isolated at first, though the environment was perfect for recovery. He could...
Wallee felt a bit isolated at first, though the environment was perfect for recovery. He could...
I went through a period of, it was kind of isolation because, even when I came back to this house, his friends were actually abroad on holidays. So we were in the house alone with somebody caring for us.
And so it was just a totally new experience. The neighbourhood we lived in was very quiet, perfect. Beautiful, comfortable, low house with a big garden. So it was easy to sleep and relax and rest.
Then the people whose house we were in returned from their holidays. And I got on with them very, very well, and I just continued to make progress, you know walking the dog, just going for walks and eating, sleeping, resting.
And eventually the doctor gave me permission to travel. And I flew to Copenhagen for a week and then I went to Greece for two weeks. And I stayed in my friend’s house because he was still recovering. So I actually stayed in his house in Greece, on this Greek island, and we spoke on the phone. So it was an unusual circumstance, but it was so, still if I think about it, it was so powerful.
Annabel had a small hernia since the surgery, but it never became a problem. She ignores it now....
Annabel had a small hernia since the surgery, but it never became a problem. She ignores it now....
There was one thing, I think I’ve got a very slight tiny little hernia. I’ve got a little lump underneath one of my tiny little scars. And I’ve had it felt by both my husband and a couple of doctors who’ve said, “Well, it does seem as if it might be a hernia. We could do something about it if it develops, if it becomes a problem.” But it never has become a problem, and I just ignore it now. I’ve had no other side effects at all. And I’ve been fit and well. I’ve had my creatinine levels checked and they’re fine. So I can’t think of any downside to it.
Donating a kidney does not mean that the donor’s health might not be affected in some way in the future. It is always possible that something unexpected could happen to the remaining kidney. As the health of all donors is thoroughly assessed before donating, the chances of this are very small, especially if the donor has a generally healthy lifestyle after donation. In the unlikely event that a problem occurs with the remaining kidney, dialysis treatment may be needed earlier than if the person had both kidneys.
“The overall risk of developing ESRD (End Stage Renal Disease) after kidney donation remains very low, occurring in less than one in 200 (0.5%) donors, and it remains much less than that of the general (unscreened) population.” (Addendum to the UK Guidelines for Living Donor Kidney Transplantation -November 2015*)
Paul expected to recover well and he did. At follow up, the doctor confirmed that his blood...
Paul expected to recover well and he did. At follow up, the doctor confirmed that his blood...
I was well aware that there was, quite a lot of research had been done on the outcome for people who had donated kidneys. And that the outlook was very good, that there was some evidence that they actually lived longer and were healthier than the average population. And I know people say, “Well if you’ve only got one [kidney], and what happens if you get a problem with that one,” but the chances of that happening are very remote.
So I had every expectation that, once I’d got over the surgery, that there weren’t going to be any more problems. And indeed my expectation has been fulfilled. I went back and had the surgeon look at me and prod my tummy. And discourage me from doing too much too soon. But it all went very, very straightforwardly after the first, you know, as I say the first couple of weeks of discomfort or so. And I really haven’t had any problems whatsoever. Again, you know, perhaps I’ve been more fortunate than some.
But I do partly think that if you’ve gone into something confident, if you’ve gone into something expecting it all to go smoothly, then that does help for you to recover. If you go in very apprehensive and uncertain, and you go in with a very anxious frame of mind, then I suspect your chances of having problems are probably greater. And I’m sure that’s the case.
So I went in confident, and my confidence has been vindicated. Again I mean clearly there will be a small proportion of people who don’t have such good experiences and one has to take that into account when going ahead in the first place.
I’ve not needed any follow up to speak of at all. I mean I get a request from the hospital once a year to have my blood pressure checked and my kidney function checked. And I get that organised, very straightforward. My blood pressure remains exemplary. My kidney function is completely normal. My single remaining kidney, as far as I’m aware, and everything leads me to believe it’s functioning, it’s taken over. It swells a little bit to do a bigger job as it were, and that’s given me absolutely no problems at all. So I have no, apart from the physical scar, which isn’t even very obvious now, I don’t think there is anything to show for it at all.
Last reviewed May 2016.
Last updated May 2016.
*References
- Muzaale AD, Massie A, Wang M-C, et al. Risk of end-stage renal disease following live kidney donation. JAMA 2014; 311: 579-86.
- Mjøen G, Hallan S, Hartmann A, et al. Long-term risks for kidney donors. Kidney Int 2014; 86: 162-7.
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