Recurrent Vulvovaginal Thrush

Emotional impacts

Recurrent thrush could impact people’s moods, mental health, and emotional wellbeing. The ways people felt about having recurrent thrush could change over time. This section covers

  • Sadness, frustration, and feeling overwhelmed
  • Worries and unpredictability
  • Sense of self and identity
  • Understanding and support from others about the emotional impacts

Sadness, frustration, and feeling overwhelmed

Not everyone we talked to felt there was an emotional or mental health impact of thrush for them. Imani, Chloe and Julia said that, on the whole, recurrent thrush hadn’t really affected them in this way. For Chloe, it was only when she wanted to go out on a date and was having a flare-up that she felt frustrated.

For other people we talked to, like Imogen, the emotional toll of recurrent thrush could be the worst part. Leah’s moods “go up and down and you just get fed up with getting it all the time”. Anna recalled times when she would cry a lot because of recurrent thrush.

Jody said recurrent thrush was “constantly on her mind” (read by an actor).

Jody said recurrent thrush was “constantly on her mind” (read by an actor).

SHOW TEXT VERSION
PRINT TRANSCRIPT

It... and I think it definitely affected like my mental health because I was just getting really down about it, obviously when it starts to spread into other areas of your life, like intimacy and... don't know, just your general like level of happiness, when it’s constantly something that’s on your mind, you're just like you get so fed up with it that it then... yeah, it does affect your mental health and it can be quite challenging because there’s... there’s not always a quick fix, sort of thing, especially when like the treatments aren't working as they're meant to for you, or you know you've just got over one flare-up and now you're having another one, and you're like, ‘just give me a break,’ sort of thing, it’s just... yeah, it’s quite... I don't know, even I'd go as far as saying a bit soul-destroying at times. I don't think unless you go through it, you can really realise how much it can just disrupt your life and make it so hard.

So yeah, I'm in a... a greater position now because it was... yeah, it was destroying my life if I'm honest, it was... it was really hard and I just was kind of like, ‘is this my life now, is this what it’s going to be like?’ and it was, yeah, sort of affecting all sorts of different areas, like obviously my relationship and just my day-to-day happiness of just constantly being like uncomfortable, it was just... it was like hell really. But yeah, that’s it in a nutshell really.

 

When it seemed that thrush kept coming back or would not go away, it could become all-consuming for many of the people we spoke to. Elliott said recurrent thrush felt “relentless”.

Imani said that discomfort from recurrent thrush “affects your mind”(read by an actor)

Imani said that discomfort from recurrent thrush “affects your mind”(read by an actor)

SHOW TEXT VERSION
PRINT TRANSCRIPT

“I think it... it’s something which can affect you emotionally in a way that when you don’t feel... when you feel that it’s... you have a discomfort, it’s something which you... in your mind, and you end up thinking... visiting a GPs. It’s much easier because I feel like if something is not right on my body, I’m someone who really recognise a difference, so yeah, it will be always in your mind thinking, ‘what is this?’ You know? I might be different from other but when I’m... I don’t have that outcome or ability in me, something is itching or something is... is just a discomfort, yeah, I felt like it affects your mind, something like that.”

 

There could be a big emotional toll of thrush, especially when it was hard to think about anything else. Some, like Teddy, Joy and Sai, felt this led them to be more irritable and short-tempered.

Zoya found herself feeling less patient and more flustered because of thrush.

Zoya found herself feeling less patient and more flustered because of thrush.

SHOW TEXT VERSION
PRINT TRANSCRIPT

It’s almost like I have to live with it now, and I don't know, I can't remember a time where I've not had it, and I'm... some months I'm really OK with it, other times I'm getting quite hot and flustered inside because it... there’s something going on down there, and I've got the little ones and I know when I'm... it... sometimes I'm a bit short with them and I'm... you know that isn’t my parenting style and I'm like, ‘oh my gosh, I need this to go,’ because my patience is really low because I know there’s something going on, and you know like if you've got anything that’s going wrong with it, you know and for me anyway I get really hot and flustered, and also because I'm obviously due on my period and it’s all sort of at the same time, it’s a lot all in one go and then trying to do everything, you know I've got a family nearly all the time and I want to make sure my water’s in the fridge, anything to try and cool me down and distract me a little bit because it is taking the toll of my life, and generally I'm a really up but... like upbeat person, I've got kids and I try and be the best I can for them and then sometimes I have this and it’s like [sighs] I don’t have the patience for this today because there’s... there’s a lot going on down there, and then obviously like I said it always... it’s around my period, so that’s... I think my period symptoms are a little bit worse than what... what I can remember anyway, I feel really... again the soreness and all the rest of it’s there but I also feel quite hot and flustered, which I never used to have before.

 

Teddy thought the emotional impact of thrush led them to have a shorter fuse.

Teddy thought the emotional impact of thrush led them to have a shorter fuse.

SHOW TEXT VERSION
PRINT TRANSCRIPT

I think it’s... it made me a lot more irritable, but it makes me a lot more irritable when I'm having symptoms of that because I'm just like I'm so... discomfort, I'm just... I’m like quietly angry at my own body, so it’s easy if... I've got a much shorter fuse than I do, otherwise which is normally not too bad because I'm quite... I'm a relatively calm person I like the think, but if something else annoys me, and I'm also having thrush symptoms, then I'm going to be a lot snappier about it because I'm just like at the end of my tether a little bit with my own body at that point, so I do think it makes me a little bit stroppier than I normally would be.

 

Having recurrent thrush could bring up tough emotions, including anger, frustration and low self-worth. Hannah described the range of feelings and thoughts it raised for her: “I just felt frustrated, cross, angry, teary, it was all on and off, worn down, beaten by it, not sexy, you know, it makes you feel dirty, unhygienic, or gross, or undesirable, you know, unhappy, worn out, these kind of feelings”.

The emotional impact of recurrent thrush could also add to other mental health or neurodivergent conditions, including for people who also had depression or anxiety. Nancy found that having autism made her more sensitive to discomfort, so the recurrent thrush symptoms made her feel overwhelmed quicker.

Nysha said recurrent thrush was a “never-ending cycle of woe”, which added to her anxiety and depression.

Nysha said recurrent thrush was a “never-ending cycle of woe”, which added to her anxiety and depression.

SHOW TEXT VERSION
PRINT TRANSCRIPT

It also brought up my depression; I felt so low. I also... I'm not an optimist and I'm not a pessimist, I'm a realist, and I was... and that thinking of that I have of like, ‘OK, in a couple of weeks I'm going to be fine, I'm going to be over this part and I'm going to look back and reflect on it, learn from it, but move forward,’ it just felt like I was in a never-ending cycle of woe. Like I said to you, I stopped dating, I didn't want to be around or have any sort of... and sort of sexual contact with... with guys or anything, I... so I just literally shutdown and stopped going out as well because I was so uncomfortable at times, and trying to explain to people that... at the time it was just... I didn't want to go into why I was feeling so uncomfortable.

Worries and unpredictability

Having thrush was a “constant” on the minds of many, including Lydia, Ella, and Kayla. This could mean that thinking and worrying about thrush took up a lot of mental space during and between episodes. Emily said that “it’s just frustrating really because I can't turn an off button for it”.

The unpredictability about when flare-ups would occur or symptoms might worsen could make it hard to plan ahead, affecting everyday activities as well as special occasions.

For Sasha, there could be lots of worries running through her head which made it difficult to concentrate or enjoy anything else.

For Sasha, there could be lots of worries running through her head which made it difficult to concentrate or enjoy anything else.

SHOW TEXT VERSION
PRINT TRANSCRIPT

It’s like you’re seated amongst a group of people and you’re talking to them and everyone thinks... you know, and everyone is happy, at the back of your mind you’re thinking, ‘OK, maybe there’s something wrong with me, am I smelling, am I not smelling, is it going, is it going to progress?’ It’s... it’s... it adds another fear. Because when you... the more you’re upset about it and now you’re thinking, ‘maybe I’ve got cervical cancer?’ So it’s like at any given moment you are thinking about something, and because now there is not really... or maybe because I’ve not really got the medical help that I need to deal with the situation, so it seems like it’s... like now it’s recurring more often and it’s making me even more worried as to what is really wrong with me, if it’s on a physical level with some, this really affects my mental health as well because instead of thinking about other things, or enjoying myself, I’m finding myself constantly thinking, ‘why is this happening?’.

Whether thrush would be an ongoing problem in the future was worrying too. Hannah felt there was “no end in sight”. Teddy found themselves in denial for a while thinking “I don't want acknowledge what the long-term consequences could be”.

Sense of self and identity

Recurrent thrush could impact people’s sense of self. Some people felt they were no longer the person they used to be or who they wanted to be. For Ayesha, there is a clear version of herself before and after her health issues. Marie said, “this is not me, I'm a happy person, I've got a great life; it’s very depressing”.

For some people we talked to, it could also affect how they saw themselves in relation to other people or how they thought other people saw them. Anna felt like “the anomaly in my circle of friends, so I did feel like there was something wrong with me… or like my body was wrong”. She said thrush also impacted on her sense of “sexual worth”. Julia wondered, “why does this happen to me all the time?”.

Rowan felt she had lost control over her body.

Rowan felt she had lost control over her body.

SHOW TEXT VERSION
PRINT TRANSCRIPT

And I guess it is just one way in which like if something’s going on with your body, and something that’s quite noticeable like on a day-to-day basis, like if you’re dealing with symptoms of thrush, like you know about it, and if it keeps coming back, then you know about it, like it’s not nice to feel like you’re out of control with your... like you don’t have a sense of control over your body.

Some people felt disconnected from their bodies, and Rowan said “it’s not nice to feel like you don’t have a sense of control over your body”. Teddy and Anna spoke of feeling at times like that their vaginas were “out to get them” or “at war” with them.  Anna and Sasha recalled having felt “defective” or “less of a woman”.

Anna reflected on how her thinking about her body and identity in relation to thrush has changed over time (read by an actor)

Anna reflected on how her thinking about her body and identity in relation to thrush has changed over time (read by an actor)

SHOW TEXT VERSION
PRINT TRANSCRIPT

I think it probably impacted... I mean this is mental health, I think it probably impacted my sense of self in terms of just feeling defective as a woman, and... and I... I also find it really... I find it really interesting, my relationship with being a woman has changed, and I imagine it will continue to change... but when I think about that period of time, I really think that I was like at war with my vagina, and I just wanted to have a different one; whereas I think now, when I get thrush, antibiotics are a separate event, but like if I get thrush naturally, I normally go, ‘oh hang on, let me just figure out what’s going on: am I stressed? Am I eating properly? Am I tired? Have I been drinking too much?’ And like I view it more as like... I mean it’s very uncomfortable, but it... it’s far rarer now, but if I get it now, I think my experience of my body is quite different and so I view it more as my vagina talking to me; whereas I used to view it as my vagina trying to ruin my life.

Some non-binary and trans people faced additional challenges managing recurrent thrush and their identities. The impact of recurrent thrush on clothing choice was especially felt by Ella who is non-binary and found wearing dresses or skirts helped with thrush symptoms: “I do get cheesed off with all of that, the fact that I can't wear the clothes that I want to wear and express my identity in that way, it’s a big deal”.

Understanding and support from others about the emotional impacts

There were worries about other people not understanding, dismissing or underestimating the emotional impacts of thrush, including by friends, families and healthcare professionals.

Ella found it could be difficult to be honest with others about the emotional impact of thrush.

Ella found it could be difficult to be honest with others about the emotional impact of thrush.

SHOW TEXT VERSION
PRINT TRANSCRIPT

So, I'm also interested in when you've got any kind of dis-ease within such an intimate part of your body, I'm also quite interesting in, ‘well, what’s the effect psychologically of that as well,’ because it’s not then something you can just openly talk to your friends about. You know and your friends say, ‘how are you?’ Like 90% of you might be fine, but you've got this 10% that’s burning, itching, making... you know it doesn't... it doesn't ever... you know you can't stop thinking about it, whatever, and I'm also interested in that whole kind of... the mental health side of it really because I think it’s... I think it... and I think it’s really tough to live with actually all of this.

I quite often think, ‘oh God, wouldn't a broken wrist be easier?’ you know on some level people would be like, ‘oh, that looks sore and how... and where did it happen?’ you know you have some kind of conversation, but there’s no acknowledgement of a burning sensation down there because you... unless you're with a close buddy, you're just not going to bring it up, so you're just standing there talking to somebody with this... all this pain going on, which... [laughs] you know and it’s like you... your dishonouring your experience you know most the... most of the day you're in the public domain, you're dishonouring your experience, and I think that has a really big effect on your psychology you know because you're not able to kind of own it, you know and just be... be like, yeah, it’s shit, but it’s OK, but I... you know but it’s... I'd rather tell people, but obviously you have to be very mindful of who you tell and when and all of that, you know.

Anxiety around accessing healthcare or the fear of being dismissed was also a concern for Billie and others. Nancy worried that one doctor she had seen didn’t “understood the effect it had on my life and how big a problem it was; I think they thought it was just a bit of an irritation”.

Billie said that difficulties around accessing healthcare and advocating for herself added to the mental health burden of recurrent thrush.

Billie said that difficulties around accessing healthcare and advocating for herself added to the mental health burden of recurrent thrush.

SHOW TEXT VERSION
PRINT TRANSCRIPT

I think my... my mental health around the whole thing is more the exhaustion I'm having to constantly fight for your health and advocate for your health, I would say that’s probably more the side of it. And having like the anxiety of having to ring the GP and try and get an appointment is something I've always experienced for a long time, it’s kind of sitting on hold for like 25 minutes and then they finally answer and it’s like, ‘ouu, ha...’ and I like lose my words, so that’s probably one of the only like mental side of things that it would affect me. But work: not... not necessarily. I guess the booking of hospital appoint... doctors’ appointments and things like that is where it kind of can sometimes infringe on the work I do, but I work in health care so they're all pretty comfortable and pretty open about the whole thing, so yeah, not... not so much on that side.

The people we spoke to had various coping strategies for the emotional and mental health impacts of recurrent thrush. Formal psychological support wasn’t always available or offered. Beth Sarah thought it was “quite surprising” that she had seen seven or eight doctors about recurrent thrush before but never been asked about her mental health. Emily wished she had seen a psychologist sooner to have the chance to make sense of and “rationalise” her experiences around thrush.

Having a supportive family was seen as key to helping manage the mental toll. Zoya said she has a support system of her mum, sister, and partner who helped her “offload” and “grieve”.

Others used coping strategies such as being kind to themselves and practicing acceptance. KJ said that recurrent thrush used to get her down mentally when she was younger but that she has since learned to “just sort of get on with your day”.

Ayesha tried acceptance meditations to cope with recurrent thrush.

Ayesha tried acceptance meditations to cope with recurrent thrush.

SHOW TEXT VERSION
PRINT TRANSCRIPT

But yeah, the anxiety around it, I just try and meditate and just... I do like [laughs] acceptance meditations to just try and like accept that this is reality rather than trying to find a solution, because I think I would have found a solution by now with how hard I've worked towards one, so I just try and accept that this is reality.

You can find out more here on people’s thoughts and experiences of coping with the impacts of recurrent thrush and the role of shame and stigma.

Copyright © 2024 University of Oxford. All rights reserved.