Intensive care: Experiences of family & friends
Overview
In this section you can find out about the experience of having a close friend or relative in intensive care by seeing and hearing people share their personal stories on film. Researchers travelled all around the UK to talk to 38 people in their own homes. Find out what people said about issues such as visiting, keeping a diary, receiving information from doctors, recovery and adjusting to a changed life. We hope you find the information helpful and reassuring.
You may also be interested in our section on Intensive care: Patients experiences.
Jonathan Miller introduces Intensive Care website
Jonathan Miller introduces Intensive Care website
Hello, I'm Jonathan Miller. When I first started as a medical student in the 1950s, there was no such thing as intensive care. There were no mechanical devices. There were none of the pieces of subtle sensitive apparatus for detecting the state of the heart, the state of the lungs, and controlling the lives of patients who were incapable of looking after themselves for the simple reason that they were unconscious.
Nowadays we have the most sophisticated apparatus for standing in for the defective parts of the body. And I personally experienced this some years ago when my sister, who was seriously and indeed fatally injured in a car accident, spent at least, well, perhaps two and a half weeks in hospital being cared for intensively. It was a disconcerting but remarkable experience to see what efficiency had developed in the subsequent 40 or 50 years from when I started in medicine.
If you, as a friend or as a relative above all, are going through experiences like this, I think you will find the website enormously helpful.
Interview 03: We then just literally drove, not knowing at all what was going to be at the other end. And I know all the time all I kept thinking was just be alive. If you're alive when I get there, it's going to be okay. And it sort of just kept me going and it's-, you're all in a real numb state. I mean, we all remember the journey very very clearly. I mean, how my husband drove, I don't know, but you, you're just completely all in your own thoughts. We couldn't comfort the children. We didn't know what we were going to find. Interview 01: Well I think probably, inevitably, relationships with the family have been strengthened. Interview 07, Father: The outcome of this was that, in fact, we were, although the visiting hours for the ward were quite limited. And in the afternoon we actually had permission to go in at any time to feed him. And to help in his care. Mother: At that point he was still quite agitated. He couldn't vocalize except to growl or roar. So when they tried to, do something with the catheter, he would scream the house down. He wouldn't allow them to feed him. So they said, would I go in and do lunch as well as dinner? Which, of course I would. Interview 14: And he said, 'Oh I can't do this, and I can't do that' and I said, 'No, but you are alive,' I said, 'What you have got to remember is that you nearly died, but you didn't, you are here, so you have got to say to yourself now every day is a bonus.' So we live life to the full. Interview 36: As worrying as it is and as, as scared as you are about what the outcome may be and you fear to ask the question because you may not like the answer, or the answer may frighten you. Ask away, ask away because you, you learn so much from that and, and those in intensive care, and I've no reason to believe any different are the same as it was that that was my dad, they’ll answer any question you've got, they’ll even come forward with information for you. I think it's important to ask. Intensive care family and friends experiences - site preview
Intensive care family and friends experiences - site preview
This section is from research by the University of Oxford.

Supported by:
ICNARC-Intensive Care National Audit & Research Centre
Publication date: June 2006
Last updated: August 2018.
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