Infertility
Messages to others having infertility issues
- Infertility and treatment can be much harder than anticipated.
Martha had no idea what treatment entailed before she started.
Martha had no idea what treatment entailed before she started.
But I realised as I sort of went into it. I had no idea what it entailed at all. And I think, I think it is this thing that is kind of thrown around and people always just assume that there is an option and first of all they assume without any real understanding of how often it doesn’t work, you know for one thing and just the physical and emotional toll it takes on you. You can’t, well I mean I can describe it to you a bit, but I don’t think anybody has, you know, I think generally the way it is portrayed, you know, the way that people sort of view it, nobody has any clue what it is actually like, you know, what it does to you to go through it. I actually think it is quite dangerous. I think it is a dangerous assumption that we all have about it. And again I am not sure that that applies to me specifically because first of all, I never thought I would be going through it, and by the time I was going through it, it was because there wasn’t really much choice. Well there was a choice but there wasn’t a lot of choice if we wanted to do what we wanted to do. But I think ] I there is a danger of it becoming a kind of part of people’s life plan, you know, if I wait to have kids oh and it doesn’t work, oh just have IVF. And it is like, it is not like that, and it isn’t easy and it doesn’t necessarily work and you don’t have any idea what it is going to do to you, you know, or anything. So yes, and I think, not that it would, like I say, it wouldn’t have changed what I did but it also might have been nice to have a bit of an idea of how horrible it could be before I actually went into it, instead of suddenly being in the middle of it, realising how horrible it was.
Karen said it was important to keep asking questions, as you would with any other form of...
Karen said it was important to keep asking questions, as you would with any other form of...
Sally said it was important to try and remember that there is a life out there. It will be...
Sally said it was important to try and remember that there is a life out there. It will be...
Naomi said that perhaps friends and family need to realise that they can't win. But to try and...
Naomi said that perhaps friends and family need to realise that they can't win. But to try and...
- “Don’t tell everyone to adopt”
- “Everybody has the miracle fertility story that they want to tell you…. they’re not of any comfort to people who haven’t actually got to the end of their fertility journey at all”
- “Be prepared to listen, but don’t just say to people oh I am sure everything will be all right, because that is a meaningless thing to say because how on earth do you know?”
- “Don’t tell the couple to relax and it will happen”
- “If a couple has been married or together for five years, don’t ask if they’re planning to have kids, because if they are you’ll soon hear it.”
To try and give your friends the space they need and the support they need was the best you could...
To try and give your friends the space they need and the support they need was the best you could...
Be tolerant and you can’t fix it with all the will in the world, and don’t tell the couple to relax it will happen. Because in most cases it doesn’t. Be tolerant and understanding of perhaps where they are at, give them the space they need, but the support they need. Don’t be afraid to talk about it, or bring it up as a subject. It’s a bit like a bereavement sometimes, people don’t know what to say and therefore avoid it. It is not a taboo subject but a little bit of tact. Don’t talk about the friend down the road whose just had three children. You know, they won’t want to know about that. Just be sensitive to what they’re going through and be there to support them as much as you can.
The people we spoke to had several clear messages to health professionals:
- Prepare patients for the tough journey ahead: “If they could prepare patients, and just say, ‘…possibly you’re in for a hard time.’…I think it would be helpful if people perhaps knew.”
- Treat patients as individuals and not a number.
Everyone prefers to be treated as an individual rather than as a number, this can seem particularly important in fertility treatment “because there are an awful lot of emotions that go with infertility”.
Karen felt it was very important for health professionals to realise what you're going through as...
Karen felt it was very important for health professionals to realise what you're going through as...
The first place I think, you know, my advice to them would be, you know, think that you are dealing with people and you’re dealing with something very precious in someone’s life, you know, and in one way you’re playing God with their future. And I think realising the implications of it, and the importance of it, and realise really what they’re going through as a person, rather than just the treatment. There’s a person with all sorts going on inside them there and you know, I didn’t feel like that was recognised. You know, you’re sat in a waiting room looking at all these people and thinking you just want to talk to them and you can’t. You just feel very silent and sit there, but I think, you know, I think having, they’re your link. I mean I felt that, especially going through it, they’re the people you’ve got to rely on, the medics are there, you’ve got to rely on them and if you don’t have that support from them, you know, even if it’s just that friendly smile, and how are you today? Or did you have a really nice weekend? Would just, even if it’s not about the IVF, just to have that rapport with someone and talk to somebody as a human being instead of just saying, “Right come in, let’s take your blood. See you later.” I think you need, I think they need to realise that they’re very very important and that the person, there is a person there, solely relying on them for that support and help. Because I don’t think they realise how important it is.
Women and men liked clinicians to demonstrate that they had some empathy and understanding of what a deep and emotional issue infertility was for their patients. “To try and understand the devastating implications of what you are telling people”.
While it is not an illness it is a, “Profound life changing thing… being able to reproduce and have a family is something that most people take for granted. …you are very very emotionally fragile when you are going through the whole thing.”
Liz called for health professionals to realise that while some won't want to be nurtured and...
Liz called for health professionals to realise that while some won't want to be nurtured and...
Advice to professionals? Without invading somebody’s space make sure that you understand that it isn’t just a physical process. That it really, really is emotional process. And some people won’t want to be nurtured, looking after, treated as the patient and all their emotional needs catered for, but many people do. So it is trying to get a balance of not invading the privacy, but also of making sure that they do feel looked after at a really, really difficult time. Particularly when things fails and give them time to come back to you, however many times they need to. To talk it through. And it is not just offering a counsellor I am saying, it might just be that, it might be they want to sort of talk to the people that have been dealing with them at the time. So it might be the nurses or the doctors, who can say to them, I can give you an hour of my time. And that might be valuable even then talking generally to a counsellor. Often it is specifics alongside the emotions that they want to talk about.
Last reviewed July 2017.
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