Gout
Sources of support for gout
Support from family and friends
Many people we spoke to welcomed and appreciated help and support they got from family and friends. This included practical help with things like walking, driving or getting to the toilet, as well as being understanding and sympathetic. Hazel feels that a person living with someone who has gout can understand it better than other people because they have seen for themselves the effects it has.
Jill has very supportive friends and neighbours who help with everyday tasks.
Jill has very supportive friends and neighbours who help with everyday tasks.
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Jean says it makes a difference knowing that she has family living with her who can help if needed.
Jean says it makes a difference knowing that she has family living with her who can help if needed.
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So that was the...?
It does make a difference having people in the house, yes.
Did it affect your mood and how you were feeling at the time, when you were in pain?
I suppose I got fed up. I, sort of, thought, “Well, it’s something else that I’ve got to put with,” you know, but you get over it.
When you were feeling fed up and you were in pain, do you think it made a difference to your relationships with other people, so maybe other family members or...?
Not really, no. It wasn’t their fault, you know, they did all they could to help me, so...I was probably a bit more ratty, I don’t know. They wouldn’t tell me if I was [Laughter], but I was quite possibly a bit more ratty, I suppose [laughter].
Harry says it is important for families to be tolerant if people are behaving differently during an attack.
Harry says it is important for families to be tolerant if people are behaving differently during an attack.
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Living arrangements
While some people who lived with others felt that their gout impacted on these people and their relationships with them, they usually appreciated the support that they could provide.
People who lived alone felt that they were particularly affected by gout. For Eddie, going out and meeting friends was important because he lived alone. Attacks of gout had a big impact on his social life and the amount of company he had because he could not get out and about. People talked about the importance of having someone around to help out in little ways, like making a cup of tea.
Carole appreciated a friend bringing her dinner round because it was hard for her to cook a meal when she had attacks in her feet or ankles.
Carole appreciated a friend bringing her dinner round because it was hard for her to cook a meal when she had attacks in her feet or ankles.
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Support from other people with gout
Harry found it useful to swap stories with other people who had gout. He felt that they were more likely to be genuinely interested in talking about it than people who had not had it. Like others, Harry found it useful being able to compare his symptoms with other people and to know that he was not alone. He felt lucky that his gout was not as severe as some people he came across.
Paula found it reassuring to know that her symptoms and the intense pain were typical of an attack.
Paula found it reassuring to know that her symptoms and the intense pain were typical of an attack.
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What did you find particularly useful about that?
The fact that it was all ages, you know, it wasn’t like I thought - just old men that get gout. People talking about their diets that they’d had to change, you know, what they’d done. And also, talking about the pain, because I did think that perhaps I was just a wus that it hurt so much, but from what I read of other people’s experiences – they all said that thing about just a sheet on my foot being just agony. So I didn’t feel quite such a wus then [laughs].
So it was reassuring?
Yes, it was. To know that actually – within the boundaries it was actually normal - what I’d experienced.
Eddie joined an internet forum for people with gout. He finds it reassuring to chat with people who know what he is going through.
Eddie joined an internet forum for people with gout. He finds it reassuring to chat with people who know what he is going through.
Sex: Male
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Once she was diagnosed, Jacqui discovered she knew other people who had gout.
Once she was diagnosed, Jacqui discovered she knew other people who had gout.
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I'm not sure whether I was aware of anyone - I might have just heard it in passing, but it was only once I was diagnosed that I then discovered other people who had been diagnosed and then people really, you know, when they discover, "Oh, you're a fellow gout sufferer. It’s sort of like ‘join the club and let's share stories’." A bit like war wounds, I guess, I don't know. Yeah [laughs].
Is that because you were mentioning you had gout and then it came out in conversation? Or do you think you were just sort of more alert to the possibility of, you know, hearing other people mentioning it?
I think a combination of the two. I think that because I had heightened awareness one then sort of pricks up one's ears and, and sort of takes - or asks questions that you wouldn't otherwise ask. But I think also that having struggled - I must have almost struggled for a month before it was diagnosed and I guess for some people that's probably a very short time. I think it's quite likely that some people might struggle a whole lot longer before it being diagnosed. But because of the struggle and the pain and here I was, a physically active person now limping, unable to wear closed shoes, you know, then probably people also noticed and asked questions. So I think it was a combination of both heightened awareness but also the experience, and then other people empathising and then one makes the connections, as it were.
Several people felt that their religious and/or spiritual beliefs had helped them to cope with the pain of gout. A few found praying helpful if they were feeling ‘low’ or in pain. Jill believes in energy therapies including reiki – a spiritual practice based around the idea of universal life energy. Other people had religious or spiritual beliefs but had not thought about them in relation to gout.
Eddie prays about his gout. He also appreciates the support from his church community.
Eddie prays about his gout. He also appreciates the support from his church community.
Sex: Male
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Last reviewed December 2016
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