Many people learnt how to recognise an attack starting before it was at its worst. They described the first signs as ‘twinges’, ‘tweaks’ or ‘tingles’, a distinctive ‘feeling’ or ‘sensation’, ‘stiffening’ in the joint, or a ‘dull feeling’. Most found that their medication was most effective if they took it as soon as they noticed these signs. They also often started to drink more water. Ian discovered that moving round during an attack helped him to recover more quickly.
Ian learnt to recognise the first signs of an attack. He used ice to cool his joint and found that moving around was helpful.
Ian learnt to recognise the first signs of an attack. He used ice to cool his joint and found that moving around was helpful.
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I think you soon get to realise after your first couple of attacks, you know exactly when you get - start getting the dull feeling, you know you're going to get an attack, well I can only speak from my experience, but yes, you know that, you start getting a dullness and a lack of mobility around a particular joint, and then the dullness starts and then it gets more acute, so you definitely start to recognise that, you know about it. I was never recommended to put ice around it but that’s what I did myself because it felt quite hot and whatever and quite red so I'm a great believer in putting ice on many an injury, so I tried it on gout and it - it did make a - make an impact on it, it did reduce down the - the pain and it made - gave me greater mobility quicker, so I would recommend people trying that as well, so that's what I did learn through experience. They were the two things really I did - probably the third thing was you know you'd rest and put your leg up, particularly if it was obviously in your foot and things like that, but I - as you get used to getting the attacks you just sort of get on and get up with it, you don’t stay at home feeling sorry for yourself, you get on, carry on with your normal day, because I think it does wear off. If you stay immobile and - and just - with your foot in the air or whatever, or lying on the settee - I think you'll have it for longer than if you get up and move around.
When Hazel notices that an attack is starting, she prepares by making sure she has food and water within easy reach.
When Hazel notices that an attack is starting, she prepares by making sure she has food and water within easy reach.
Age at interview: 32
Sex: Female
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So what happens is, when I have an attack, so it doesn't really - okay, most of the time it doesn't really get really, really bad immediately. It's within a few hours. So when I know it's there, the mini gout is there, I start going - and I start migrating to the sofa where I can work and then beside me I have the pitcher of water, I have my, my bread, my food, whatever. It's all there beside me. So I have my mini station already for when it gets bad and I cannot move around. Then it's just beside me.
People often found it useful to keep a supply of medication at home so that they could take it as soon as they noticed the signs of an attack starting. Others carried medication with them at all times or when they went on holiday. Paula asked her doctor to prescribe some colchicine for her to take away on holiday in case she had an attack. Val found it inconvenient having to go back every month for more allopurinol tablets. She asked her GP to prescribe her enough for two months at a time so she did not have to go back so often (for more see ‘
Treating the pain and inflammation of gout attacks’ and ‘
Long-term treatment to lower uric acid and prevent gout attacks and long-term problems’).
Cooling the affected joint with ice was helpful for many people during attacks. Joe’s wife used to get him a large bowl of ice for him to put his foot in. Ben used a bag of frozen peas.
Shirley found that ice helped with the pain. Walking also relieved it for a while.
Shirley found that ice helped with the pain. Walking also relieved it for a while.
Age at interview: 78
Sex: Female
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Oh when it’s reached a peak it’s awful. Very, very painful. I’ve put ice cubes on it and my daughter bought me a little sort of sock thing that you keep in the freezer and stick it on the end of your foot. That was very good. Ice was the best.
One thing I did find, if you, if you could carry on walking it did tend to disperse it slightly. The more you used your foot it sort of spread it. And then of course you always had to go back into bed with the duvet and that hurt.
Some people found that resting worked best for them. They would take their medication and then wait until the pain went. A few found it helpful to keep the affected joint raised. John had a knee brace made of thick material and this helped to keep his knee still and reduce the pain. People who found it difficult sleeping or getting comfortable in bed often chose to sit on a chair or sofa instead. They often watched television to distract or occupy themselves.
Vic found it easier to use his good foot to push up on when he had to go upstairs. Alan found that riding a bicycle was easier than trying to walk. This was useful when he needed to get to see his doctor. Many people we spoke to found it helpful to use a walking stick or crutches if they had attacks in their toes, feet, ankles or knees. Eddie keeps his walking stick next to his bed in case he gets an attack (for more see ‘
Gout: mobility and footwear’).
Simon found crutches helpful for walking because they took the weight off his toes.
Simon found crutches helpful for walking because they took the weight off his toes.
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Well, I think one of the best things I do, at one time I put myself on crutches and I found that helped me because it took the weight off my toes, because every time you walk you put your body weight through your toes. So I actually found that trying to reduce the amount of weight through it was great because with me, going through both big toes, it was just excruciating every time I took a step. So any way you can find that you can, you can, not walk as much but still keep mobile. So I think really that would be a thing – it seems extreme sometimes to say I used a pair of crutches, but I found it very useful, not a negative thing but a positive thing.
Alan and Sue found walking painful. Alan finds the easiest way to get around during attacks is to ride his bicycle.
Alan and Sue found walking painful. Alan finds the easiest way to get around during attacks is to ride his bicycle.
Age at interview: 73
Sex: Male
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Sue: The most difficult thing I found was actually walking, because you couldn’t put, can’t put any pressure on your toes or on the big toe, which was where it was mainly, so even just walking around indoors, let alone trying to walk to the end of the road, it was absolute agony, and even with a walking stick, because you just couldn’t put any pressure, and again at night, because you couldn’t have the bedclothes on you because the pressure of bedclothes was absolute agony, and it is the pain. I think a lot of people don’t realise just how painful gout is, it’s absolutely horrendous.
Alan: Because I think I would say, mobility, the easiest way I found, and still do find if it’s there is to ride a bike. You’re not putting the same amount of pressure on it, because you can use the other foot to sort of get it going round so it’s - because that’s, I mean - about a fortnight ago it came on and I went up, had to go to the Doctor and I just jumped on my bike and rode up there which was a lot easier than having to sort of hobble round to the bus stop, get the bus, hobble to the bus there, so a recommendation for other gout users if it’s there, ride a bike [laughs]
When people had attacks that affected their feet, they were often unable to wear their normal shoes. Several found it useful to buy a bigger pair of shoes, flip flops or slippers that could be worn during attacks. Others found it too painful to wear a sock or anything else on their foot. Gerald had special shoes made at the hospital. People often found it too uncomfortable to have bed sheets touching their joint. They tried putting things like pillows either side of the affected joint so they could keep the duvet away from it.
Arthur found big or open toe footwear best during an attack. He also used a walking stick.
Arthur found big or open toe footwear best during an attack. He also used a walking stick.
Age at interview: 63
Sex: Male
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I’m wearing these ones [Laughter] because they’re soft but it’s cold but yeah, things like a big pair of slippers. I know it might sound silly, but when you’ve got it in your feet you don’t want leather that’s constricting on the joints and whatnot, you want something that’s supple and that you can wear more comfortably. Crocks are a good example, they’re a good thing too, open shoes, flip flops are good things so that’s the sort of thing that you need to look at just so you’ve got something on your feet so you can get about. And also a walking stick, I know that sounds stupid and of course you tend to think about old people with walking sticks and whatnot but certainly my walking stick has been a life saver for me when I’ve had it, and particularly when I get it in the knees.
Jeff could not bear to have anything on his foot. He used a box to prevent the duvet from touching his foot.
Jeff could not bear to have anything on his foot. He used a box to prevent the duvet from touching his foot.
Age at interview: 74
Sex: Male
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You can't put a pair of socks on. You can't have a sheet on your foot and that type of stuff. When we had it initially, I used to go to bed with a box and I'd put my foot in the box and then cover it. I just could not bear anything on my foot. And that would last four or five days and then it would just disappear due to the anti-inflammatories. But the pain and the, the discomfort, trying to put a pair of socks on or even a pair of slippers like I'm wearing now, just, just cannot do it. You just walk round barefooted, you know. So that was the biggest problem I had, was trying to explain to people what the pain is like. And they tend to make fun of it, as I say, going back to the old-fashioned guy in a wheel- or the bath chair in those days, with a great big bandage on his foot. Believe me, you couldn't put the bandage on your foot when you get a good dose of the gout.
Gerald and Hazel both have attacks regularly. They had chosen to move to accommodation that was all on one level to make things easier. Gerald (with help from Social Services) had arranged for his chairs to be raised to help him sit down more easily. He had also got a walk-in shower and wet room. Sam’s employers provided her with a new desk chair and other equipment to make her more comfortable at work. Jill’s gout affects her hands. She tried gadgets from the hospital to help her open bottles and jars but they did not help. She puts anything that needs opening on her front windowsill so that her neighbour can see and come round and help.
Eric has made adaptations to his house because of other health problems, but they are also useful when he has an attack of gout.
Eric has made adaptations to his house because of other health problems, but they are also useful when he has an attack of gout.
Age at interview: 87
Sex: Male
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Because of other ailments they’ve fitted the house out, with this chair, I press a button and it stands me up, we’ve got a chair lift that takes us upstairs, we had, I had a shower downstairs, so that my wife can bathe upstairs and I shower downstairs, we’ve had handles fitted to all the doors so that I can use my arms instead of having to use the foot especially when I’ve got gout, so there’s - we pretty well helped ourselves as much as we possibly can. I’m a bit of a forward thinker you know, forward planner and I’ve always recognised that as I get older I’m going to need more help, so I’ve put these things in place.
And do you find that they - I know you said you’ve done some of them because of other sort of issues you’ve got - but do you find that they do help with gout when you’ve got gout as well?
Yes they do, oh yes. Even sort of going to the loo and things like that, we have arms in the loo compartment. Well pretty well all the aids - oh I’ve got a - in the bed, in hospital you have these, what do they call them, sort of, to stop you falling out of bed you know, you have these things - well in my bed, there are two small ones that fits under the bed and then it comes up so when I want to get out of bed, if the gout’s particularly bad or the other problem’s bad, I can put one hand on each and pull myself out of bed, so we’ve fitted the house out really.
Jill often found that her balance was affected. She used to bump into things when she moved round her house. Ben was also aware of bumping his foot. He found it useful to clear away anything that might get in the way, and to turn the lights on at night if he was getting up to go to the toilet or to get a drink. Other people were cautious about friends or relatives getting too close to them because they were afraid that they might accidentally knock their joint. (For more see ‘
Messages for other people with gout’).
Last reviewed December 2016
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