Gout

Living with gout and other conditions

Some people we spoke to had other health conditions as well as gout. While most found that gout did not cause any more problems for their existing conditions, several felt that having gout as well made everyday life harder. Joe had COPD (chronic obstructive pulmonary disease) and sometimes found it harder to breathe when he was walking upstairs. He felt that an attack of gout in his foot on top of that would be difficult. John ended up in hospital when he had a bad attack just three days after a stroke. The gout symptoms and effects of the stroke made walking and everyday tasks, like eating, very difficult.

Eric has made adaptations to his house because of other health problems, but they are also useful when he has an attack of gout.

Eric has made adaptations to his house because of other health problems, but they are also useful when he has an attack of gout.

Age at interview: 87
Sex: Male
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Because of other ailments they’ve fitted the house out, with this chair, I press a button and it stands me up, we’ve got a chair lift that takes us upstairs, we had, I had a shower downstairs, so that my wife can bathe upstairs and I shower downstairs, we’ve had handles fitted to all the doors so that I can use my arms instead of having to use the foot especially when I’ve got gout, so there’s - we pretty well helped ourselves as much as we possibly can. I’m a bit of a forward thinker you know, forward planner and I’ve always recognised that as I get older I’m going to need more help, so I’ve put these things in place.

And do you find that they - I know you said you’ve done some of them because of other sort of issues you’ve got - but do you find that they do help with gout when you’ve got gout as well?

Yes they do, oh yes. Even sort of going to the loo and things like that, we have arms in the loo compartment. Well pretty well all the aids - oh I’ve got a - in the bed, in hospital you have these, what do they call them, sort of, to stop you falling out of bed you know, you have these things - well in my bed, there are two small ones that fits under the bed and then it comes up so when I want to get out of bed, if the gout’s particularly bad or the other problem’s bad, I can put one hand on each and pull myself out of bed, so we’ve fitted the house out really.
A few people felt that gout was the last thing they needed on top of their other health problems. Shirley Y sometimes found it hard to tell the difference between gout pain and pain from her other arthritis. Pat felt that she had a ‘double whammy’ of pain in her feet from gout as well as Morton’s neuroma (a condition that causes pain at the base of the toes). Val already had mobility issues because of back problems. Paula’s diagnosis came around the time she also found out about kidney problems. Some people saw gout as just another condition to deal with along with the others they had. 

Val felt fed up about getting gout on top of her other conditions, all in the same month that she injured her neck.

Val felt fed up about getting gout on top of her other conditions, all in the same month that she injured her neck.

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At the same time, the very same month it started, I actually sustained a neck injury with… called wry neck and so I felt I’ve got this bit and I was actually in a collar. I’ve got this bit and I thought, “It’s just not fair”, you know, as well as everything else in between that’s gone wrong like my spine and hips and I thought, “Oh it’s not fair”. You know, and it did seem a pretty grim time of my life actually. I was in a lot of pain from my neck.
Gout treatment and other conditions    

People’s other health problems sometimes affected the decisions they or their doctors made about gout treatment. 

Alan believed that his GP might be worried about him taking ongoing preventative treatment for gout because he takes a number of different medications for his heart condition. A few people had checked with their GP or specialist that their gout medication was compatible with the medications they were taking for other conditions. Jill’s allopurinol dose has also been agreed between her renal consultant and her rheumatologist to make sure that it is suitable for her heart and kidney problems.

Jill feels that there is good communication between specialists about her different health problems, including gout.

Jill feels that there is good communication between specialists about her different health problems, including gout.

Age at interview: 53
Sex: Female
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I have a renal doctor, I have a gout doctor, I have a heart doctor, they all three speak to each other, and I'm in the middle of them all, and it's just - it's like always fine tuning of a car, tweaking this, tweaking that, to keep things running. 

So you feel that the communication between the different experts is quite…?

Definitely, yeah, because you - whichever doctor I see I always have a letter back, and you can see that they're clearly talking to whoever about me.
People with gout are at increased risk of heart problems such as heart attacks and angina. Jeff Z had to stop taking diclofenac after his heart attack because it is not recommended for people with heart problems. Alan was given conflicting information about whether he could take the tablets for his high cholesterol (statins) while he was taking colchicine. A few people were told that the diuretics (water tablets) they were taking might be causing their gout attacks. 

John believed that there was some confusion about his symptoms and treatment when he went into hospital with severe pain from a gout attack, because he had also just had a stroke. Jean has two artificial big toe joints which caused confusion initially about whether it was possible for her to have gout. 

It is thought that operations can sometimes trigger attacks of gout and a few people had attacks when they were in hospital for other conditions. Other people had operations and did not get attacks. A few people had conditions or treatments that made it more likely for them to get gout, such as kidney transplants. Some noticed that they were more likely to get attacks if they had a cold. (For more see ‘Causes of gout’).

Shirley X had a gout attack when in hospital with a lung problem. She linked this to not being given her allopurinol tablets.

Shirley X had a gout attack when in hospital with a lung problem. She linked this to not being given her allopurinol tablets.

Age at interview: 77
Sex: Female
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And so on any of those occasions when you were in hospital for various different things, did you ever – sometimes people find that their gout reoccurs when they’re in hospital?

I think it did, certainly on the last occasion, because I was in hospital for a long time. And, although I took my prescription thing in with me, so they knew what drugs I was on, I’ve a feeling they didn’t always give me the allopurinol for some reason best known to themselves. And I think it did recur slightly at that point, but once I came home and got back into my regime I was okay.
Some people were worried about gout medication causing problems with other conditions, like irritable bowel syndrome. Paula could not take anti-inflammatories because of her kidney problems, so she was prescribed steroids instead. John’s priority was relieving the pain of gout, but his doctors were also concerned about his diabetes and sugar levels. Hazel’s decisions about treatment were partly influenced by the fact that she wants to start a family, and knows that many gout medications are unsuitable during pregnancy or when breastfeeding. Others had been given conflicting advice about diet for their different conditions. (For more see ‘Diet and self-management for gout’).


Last reviewed December 2016

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