Gout
Decisions and feelings about gout treatments
There are two types of treatments for gout – treatments for the symptoms of attacks, and treatments that prevent attacks and reduce uric acid levels to prevent long-term problems.
Ivor was relieved to find out that gout could be managed. He was pleased he could continue playing football and squash.
Ivor was relieved to find out that gout could be managed. He was pleased he could continue playing football and squash.
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Many people had no problems with the medication they took to treat attacks. Some wanted to try different medication because they had heard good reports from others with gout. Michael asked his doctor to prescribe naproxen and co-codamol after reading about them on an internet forum. Arthur found that the tablets he was taking made him feel sick and very tired. He asked his GP if he could try another type of medication that his friend with gout had been prescribed. He has no problems with the new medication.
Some people thought that they could manage their gout by just treating individual attacks. A few felt that it was ‘not worth’ taking long-term medication because they were not having attacks very often. Some GPs shared these views. Many people were unaware that they could get permanent joint damage if they did not take preventative treatment to reduce their uric acid levels.
Naresh felt that he had no choice about taking preventative medication because his doctor told him about the risks of long-term problems if he did not.
Naresh felt that he had no choice about taking preventative medication because his doctor told him about the risks of long-term problems if he did not.
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He said if you don’t take much care it can affect your kidney also. And cause kidney stone and things like that. So it scared me at the time, because it can damage your kidney.
Ongoing preventative treatments
Some people spent several years treating individual attacks as and when they occurred before they started taking daily medication to prevent attacks and long-term joint damage. For some, this was because their GP did not suggest taking preventative medication until that point. Others had discussed preventative medication with their GP before, but had chosen not to take it when it was first discussed. Some people did not go back to see their doctor when they were having repeated attacks so it was a while before preventative medication was discussed.
Ian did not tell his first GP about all the attacks he was getting. He now wonders if he should have asked his GP for more information about treatments.
Ian did not tell his first GP about all the attacks he was getting. He now wonders if he should have asked his GP for more information about treatments.
Sex: Male
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Dealing with attacks felt like a ‘firefighting exercise’ for 38 years until Harry saw a specialist. He now takes febuxostat and no longer has attacks.
Dealing with attacks felt like a ‘firefighting exercise’ for 38 years until Harry saw a specialist. He now takes febuxostat and no longer has attacks.
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Sue started taking allopurinol when her attacks became more frequent. She had no problems with the medication and no longer has attacks.
Sue started taking allopurinol when her attacks became more frequent. She had no problems with the medication and no longer has attacks.
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Peter was prescribed allopurinol straight away by his GP. At first he did not realise that he needed to take it every day for the rest of his life.
Peter was prescribed allopurinol straight away by his GP. At first he did not realise that he needed to take it every day for the rest of his life.
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A consultant rheumatologist explains why starting allopurinol can trigger attacks and why it can take up to two years for attacks to stop.
A consultant rheumatologist explains why starting allopurinol can trigger attacks and why it can take up to two years for attacks to stop.
Sex: Male
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Jeff V found it frustrating that his attacks did not stop when he started taking allopurinol. He did not understand why this was happening.
Jeff V found it frustrating that his attacks did not stop when he started taking allopurinol. He did not understand why this was happening.
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So you started taking that, the long-term one while you were having an attack of …?
Gout.
Yeah. And did your doctor say anything about why it might still be getting worse?
Not really, no. No. I went down there with being really frustrated, you know, “I'm taking these tablets and it's getting worse”, as it did.
Arthur stopped taking allopurinol because he was expecting it to stop his attacks quickly. He recently found out that it can take some time before attacks stop.
Arthur stopped taking allopurinol because he was expecting it to stop his attacks quickly. He recently found out that it can take some time before attacks stop.
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I’ve since found out that in actual fact some doctors said when you take the allopurinol it will bring on an attack of gout. Okay, the advice I then had was conflicting because some doctors then said, “Right, when you have an attack of gout, stop taking the allopurinol, take the anti-inflammatory, get it back under control, go back onto the allopurinol”. Now other doctors have said, “No, keep taking the allopurinol, take the anti-inflammatory and keep going” so there was a conflict. So you think to yourself, what do I do? What do I do? So I made the decision that I’d stop taking the allopurinol and, as I say, I did some research just before I contacted you, and I read that the allopurinol or the drug, whatever allopurinol is, actually takes about 12 months to build up and be effective, so you’ve got something like a 12 month running period before it will actually show any results. Now nobody has ever said that to me, no doctor, nobody said, “Look, this is a long term solution, you got to stick with it”. So of course through lack of advice, I’m trying to sort of do, not do my own medication but sort it out myself.
Runibunar was reassured by his rheumatologist that the treatments he was taking were safe. He also has regular checks to monitor his kidney function.
Runibunar was reassured by his rheumatologist that the treatments he was taking were safe. He also has regular checks to monitor his kidney function.
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Jonathan did not like the idea of taking medication for the rest of his life but is now used to it. He worried about having a reaction to the medication but had no problems.
Jonathan did not like the idea of taking medication for the rest of his life but is now used to it. He worried about having a reaction to the medication but had no problems.
Sex: Male
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So, I can remember we, we actually, I was away with my partner at Christmas. We went to stay in a B&B in the Lakes, and I was going to start allopurinol. So I had my 50-milligram tab, and it was probably quite, quite a big thing [Laughter]. So this is the first time you’re going to take something that you’re probably going to take for the rest of your life. So, I had that, nothing happened, and then over the next few – so I went up to 100 milligrams, and I think it was that for a couple of weeks, and then 200 milligrams, then 300 milligrams.
Jean takes several tablets a day for other conditions. She has wondered about stopping allopurinol because it would mean taking fewer tablets.
Jean takes several tablets a day for other conditions. She has wondered about stopping allopurinol because it would mean taking fewer tablets.
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And why would you be thinking of stopping taking them?
Well, because I have so many other tablets to take, you know. I take, one, three, six, eight, eight a day, plus however many painkillers I have to take. So, and two wouldn’t make an awful lot of difference, but it would be two less.
Even if people believe that changing their diet has stopped attacks, uric acid levels can still be high enough to put them at risk of long-term joint damage. Most people need to take daily medication to reduce and maintain their uric acid at a low enough level to prevent attacks and long-term problems. It is not usually possible for people to reduce uric acid enough by diet alone, although many people wanted to try this to avoid medication (for more see ‘Long-term treatment to lower uric acid and prevent gout attacks and long-term problems’).
Carole’s attacks were becoming more frequent. She started on a low dose of allopurinol and now takes 300mg daily. Her uric acid levels are well within the normal range now.
Carole’s attacks were becoming more frequent. She started on a low dose of allopurinol and now takes 300mg daily. Her uric acid levels are well within the normal range now.
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And have you done anything about that yet, then?
Yeah. Went to see my doctor probably this sort of time last year. I can't quite be certain. Probably March, April time. And I agreed to go on to allopurinol gout medication, although we didn't go for the maximum dose to start with - started on a low dose.
I was still getting attacks. I went for a six-monthly review with my GP. It’ll be seven weeks ago now. And I was chatting to him, telling him how I'd been, and I said to him, "I am still getting gout." And I think I'd said to you I'd had probably three or four attacks from somewhere like last autumn through to when I went to see the doctor. Well, my understanding was that the idea of going on the allopurinol is not to have any attacks. So what he did - I was on 200 milligrams - so he upped the dose to 300mg but asked, as I say, for a blood test in six weeks to see what had happened. And I had that test last week and was told that the uric acid levels were now within a normal range, which I don't think they've ever - well, they haven't been for as long as I can remember. However I did have an attack again after I'd seen my GP seven weeks ago, but I was - or I did take anti-inflammatories as well, because I thought, "Well, we've upped the dose by 30, 33%. I suppose there's a chance it might kick off and make things worse." And I had a mild attack. I knew I'd got gout, but it didn't actually stop me doing anything except make it a bit painful to get my shoe on and bend - because it was in the little - the base - the joints in my little toes in - on one foot. And, as I say, I knew I'd got it, but it didn't actually stop me walking or doing anything. It was just a little bit painful; nothing like it might have been without medication or without the anti-inflammatories. And, touch wood, I haven't had it since.
Last reviewed December 2016
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