Alport Syndrome

Resources and Information

Alport UK
Alport UK is a patient-led organisation dedicated to empowering people living with Alport Syndrome to enjoy the best possible quality of life. They provide support and information for those with Alports. They also have a Facebook group called ‘Alport Warriors’

Kidney Research UK
Established in 1961, Kidney Research UK is the largest funder dedicated to research into the causes and prevention of kidney disease. Awareness raising as well as information and support. They also have an Action for Alports campaign.

Kidney Kids Scotland
Kidney Kids Scotland is a Charitable Trust founded in July 2000 to help children with renal illness and their families.