Cohort Studies
Credits
Dr Abi McNiven
Dr Abi McNiven is a qualitative researcher in the Medical Sociology and Health Experiences Research Group, Nuffield Department of Primary Care Health Sciences, at the University of Oxford. She is a human geographer by background and obtained her PhD from Durham University in 2014. For the project on experiences of participating in cohort studies, she was the main researcher from October 2019 until completion, carried out four interviews, co-analysed the data, wrote six of the topic summaries, and was analysis checker and research supervisor for Dr Carol Dumelow.
Dr Carol Dumelow
Dr Carol Dumelow is a freelance qualitative researcher. She has conducted health-related research studies since 2001. She has a PhD in Sociology from the University of Surrey. For the project on experiences of participating in cohort studies, she co-analysed the data, wrote six of the topic summaries, and was analysis checker for Dr Abi McNiven.
Dr Maria Salinas
Dr Maria Salinas is a Medical Sociology and Health Experiences Research Group researcher, social anthropologist and psychologist. She has worked in health research, refugee studies and gender relations in the academic and voluntary sectors for over 25 years. She obtained her DPhil from the University of Oxford in 2000. For the project on experiences of participating in cohort studies, Maria was the main researcher until October 2019 and carried out 16 interviews.
Dr Fauzia Knight
Dr Fauzia Knight is an international qualitative researcher and author with an interest in self-care in health outcomes and agency in social change. For the project on experiences of participating in cohort studies, she carried out eight interviews.
Dr Magdalena Mikulak
Dr Magdalena Mikulak is a qualitative postdoctoral researcher in the Medical Sociology and Health Experiences Research Group at the Nuffield Department of Primary Care Health Sciences, University of Oxford. She is a gender studies scholar and completed her PhD in the Department of Gender Studies at the London School of Economics and Political Science. For the project on experiences of participating in cohort studies, she carried out five interviews.
Dr Lisa Hinton
Dr Lisa Hinton was Director for Applied Research at the Medical Sociology and Health Experiences Research Group until December 2019. She is now a senior associate at THIS (The Healthcare Improvement Studies Institute) at the University of Cambridge. For the project on experiences of participating in cohort studies, she and Professor Louise Locock conceived and initiated the project, and conducted one interview.
Professor Louise Locock
In 2011, Professor Louise Locock and Dr Anne-Marie Boylan conducted a HEXI - Health Experience Insights study on biobanking. Louise Locock is a qualitative researcher and professor in health services research at the University of Aberdeen. Before joining the University of Aberdeen in 2017, she was Director of Applied Research at the Health Experiences Research Group, University of Oxford, and has led numerous studies disseminated on this site.
Dr Anne-Marie Boylan
Dr Anne-Marie Boylan is now a Departmental Lecturer and Senior Research Fellow at the Nuffield Department of Primary Care Health Sciences, University of Oxford. For the project on experiences of participating in cohort studies, five of their biobanking interviews were analysed and included in the sample.
Professor Louise Locock – Professor of Health Service Research, Health Service Research Unit, University of Aberdeen
Aamnah Rahman - Research Fellow, Born in Bradford, Bradford Institute for Health Research
Dr Jennifer Hirst – Senior Researcher at the Nuffield Department of Primary Care Health Sciences, University of Oxford
Professor Rafael Perera – Director of Medical Statistics, Nuffield Department of Primary Care Health Sciences, University of Oxford
Shahid Islam - Research Fellow, University of Bradford and Born in Bradford
Professor Diana Kuh - Emeritus Professor of Life Course Epidemiology, University College London
Sally Bridges - Programme Manager, Born in Bradford, Bradford Institute for Health Research
Professor Tim Key – Deputy Director of the Cancer Epidemiology Unit, Nuffield Department of Population Health, University of Oxford
Dr Sharon Dixon – GP and researcher in the Nuffield Department of Primary Care Health Sciences, University of Oxford
Anne Marquiss – PPI representative, jeweller and art & design tutor
Malcolm Farley – PPI representative
Dianna Melrose – PPI representative and Save the Children UK trustee
Acknowledgements
We are very grateful for all the help and support we have received in producing this module. Thanks to: all those who were interviewed; the researchers, consultants, nurses, GPs and support organisations who helped us recruit participants, and provided us with expert feedback and advice during the project; Ruth Sanders (project delivery manager); Amelia Talbot (research assistant); Kristy Ravenhall (administration assistant); Vanessa Eade (research operations assistant); and the transcribers (Carol Dumelow, Tina Coletta).
Grant holders
Professor Trish Greenhalgh
Supported by
The research was funded by the National Institute for Health and Care Research (NIHR) Oxford Biomedical Research Centre (BRC). The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health.