Cohort Studies

Gill

I think I’d say, “Go for it.” I mean it’s, it’s a, it’s not a difficult thing to do. It takes about, I suppose, half an hour or a bit longer to fill out the questionnaire and you just send it back. I mean, you know, it’s not hugely onerous from the point of view of time or effort, so I’d say go for it.

Even though they might not get any positive benefits that they can see?

Yes, yes well, it’s a philanthropic thing, isn’t it?

Ian

And every time they asked a question, they always made it quite clear that if it was something I was uncomfortable with, if I said, “No” it was never going to be a problem. And likewise, if I went ahead with anything and I wanted to stop it, it would never be a problem. It would never do any harm to my situation, and they would fully understand.

Eisha

Yeah, they talked about how do you, they talked about healthy eating, so there was a lot of questions regarding, ‘What do you eat?’ ‘How many meals?’ ‘How many fruit intake is in your diet?’ and then there were question regarding, ‘How do you feel?’ ‘How your moods?’ ‘Are you teary? Are you happy? So vaguely, I don’t remember clearly but I think those were the questions, yeah.

Anne

What’s been good is, recently, instead of a Christmas card that they sent us, they’ve actually sent out a sort of a newsletter which has had more information on it, so it’s making you feel more up to date. It’s also got a local Facebook page that I signed up to as well. There’s not many posts on it but, you know, people have been putting up photographs and things like that, yeah.

John

Well, if I can provide a data point in their research fantastic, just to be a data point is, is hopefully of use to them because the more people that they assess, the, the more understanding will emerge from that and the team is quite often in the broadsheet press, as it were, about recommendations and research findings. ‘Oh, that’s interesting. They’re still extremely active and our understanding of stroke/TIAs/the whole, you know, working of the brain is moving forward rapidly only because of research. So, if, if I’m a data point in that research that’s good news rather than my own experience being completely of no use to anybody, much better.