Researchers' experiences of patient & public involvement

Credits

Dr Louise Locock

Louise Locock is a qualitative researcher and professor in health services research at the University of Aberdeen. Before joining the University of Aberdeen in 2017, she was Director of Applied Research at the Health Experiences Research Group, University of Oxford, and has led numerous studies disseminated on this site. Her research interests include experiences of neurological conditions, medical research participation, patient and public involvement, and how patient experience can inform NHS service improvement.

Anne-Marie Boylan

Anne-Marie was a Qualitative Researcher in the Health Experiences Research Group, University of Oxford and is now a Senior Researcher in the NIHR Oxford CLAHRC (Collaboration for Leadership in Applied Health Research and Care). Her background is in psychology and she obtained her PhD from Queen’s University Belfast. Her research interests include patient and public involvement, experiences of acquired disability, brain injury and children’s research, and the use of patient experience data to improve services.

Susan Kirkpatrick

Susan Kirkpatrick joined the Health Experiences Research Group as a Senior Researcher in January 2010. She has a background in Sociology, and has worked for the past 12 years on family and health related research. Susan was the 'research buddy' and conducted peer review of the research findings for the project.

Acknowledgements
We would like to thank everyone who participated in this research for donating their time and experiences. We are grateful to everyone who supported this study, and all those who helped with recruitment.

The NIHR Biomedical Research Centre Oxford is a partnership between the University of Oxford and Oxford University Hospitals, funded by the National Institute for Health Research (NIHR).

Advisory panel

Patient and public members
Jennifer Bostock
Karan Harris
Michael Hocken
Kath Maguire
Fraser Old

Professional members
Sally Crowe, Crowe Associates, and James Lind Alliance
Simon Denegri, Chair, INVOLVE, and National Institute for Health Research (NIHR) National Director for Public Participation and Engagement in Research
Alison Ford, formerly Patient and public involvement manager, NETSCC (NIHR Evaluation, Trials and Coordinating Centre) – now Head of Engagement, NIHR Dissemination Centre
Christopher McKevitt, Reader in social sciences and health, King’s College London
Norma Morris, Research fellow, science and technology studies, University College London
Alison Monk, Communications and Public Involvement Officer, Thames Valley Diabetes Local Research Network
Richard Thomson , Dean of Patient and Public Engagement for the Faculty of Medical Sciences, Newcastle University
Sophie Staniszewska, Senior Research Fellow in Patient and Public Involvement and Patient Experiences, University of Warwick
Mark Taylor, Central Commissioning Facility, National Institute for Health Research/Oxford Biomedical Research Centre
Sophie Petit-Zeman, director of patient and public involvement, NIHR Oxford Biomedical Research Centre

Health Experiences Research Group members:
Chair: Louise Locock (Director of Applied Research) and Health Experiences Fellow, Oxford Biomedical Research Centre
Helen Salisbury (Medical Advisor)
Anne-Marie Boylan (Senior Qualitative Researcher)
Jo Crocker (NIHR Oxford BRC Research Fellow)
Vanessa Eade (Project Administrator)

Supported by:
The research was funded by the National Institute for Health Research (NIHR) Oxford Biomedical Research Centre based at Oxford University Hospitals NHS Trust and University of Oxford. The views expressed are those of the authors and not necessarily those of the NHS, the NIHR or the Department of Health.