Clinical trials: Parents’ experiences

Catherine is married and mother of their first child Mikey. Until taking maternity leave Catherine worked full time as a Social Worker and describes herself as White British. Catherine was invited to enroll her son on two clinical trials.

Linda, aged 43, is White South African, works part-time as a Staff Nurse, is separated and mother of three children; all born in the UK; ages 7, 9 and 15 years. Linda's youngest child was diagnosed with a heart condition 12 hours after she was born.

Alison, aged 39 years is White British, works part time as a music teacher and lives with her husband and three children. Her son was diagnosed with Intrauterine Growth Restriction around 22 weeks. Alison gave birth to her son at 30 weeks; he weighed 2lbs.