Breastfeeding

Dealing with difficult times

Many of the women we spoke to breastfed without any difficulty at all but some did have problems and they usually sought help from a breastfeeding counsellor or a health professional. Once they had overcome the problem, most women went on to breastfeed happily. They said that breastfeeding was one of the most rewarding experiences of their life and they were extremely glad that they had persevered through the difficult times. Some women, however, were unable to solve their problem and reluctantly gave up breastfeeding, sometimes resulting in later regret, but felt that they'd done the best they could under the circumstances at the time.

Breastfeeding has been a fantastic experience for her and she has an incredible feeling of satisfaction and achievement for having kept going through the difficult times.

Breastfeeding has been a fantastic experience for her and she has an incredible feeling of satisfaction and achievement for having kept going through the difficult times.

Age at interview: 28
Sex: Female
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I think it's, I think of having it now four months down the line, I think it's been a fantastic experience, I've not enjoyed every minute of it but on the whole it's been incredibly positive and I've enjoyed it overall. There are really, it's hard to start and there are times when it seems very hard to keep going and all I would say would be to get help and to keep going because at the end of the day you just feel this incredible feeling of satisfaction and achievement at having done it. I think it's important to not feel like a failure when it is going wrong and, because, every woman's different and every baby's different and, and some people will just find it harder than others, and I think it's also important to, to not listen to some of the kind of, you know, sort of expectations that you get from, from other health professionals. I found, you know, for example, my health visitors were very unhelpful, they kept saying, 'Oh well you must breastfeed, of course you must breastfeed' and, and not actually helping me learn to breastfeed but just making me feel that I ought to be doing it. And at the times when I was feeling it, when I was finding it quite hard to breastfeed and, and my baby wasn't putting on weight, and I was looking for alternatives or just other ways in which I could supplement my breastfeeding I found them very unhelpful and you know they would say, 'Oh you mustn't ever give the baby formula that's just entirely the wrong thing to do' and I think in retrospect when I did top her up with formula, you know, it was exactly the right thing to do because I had to top her up so that she'd continue to gain weight until I could get my breastfeeding back on track. So yeah be strong and don't let yourself be cowed by people telling you that there is only breastfeeding and that's the only way to do it 'cause there are other ways to help breastfeeding, I think you know such as expressing milk or giving a bit of formula occasionally, and there's nothing wrong with that, you just have to find out what works for you and then stick with it, and forget about what everybody else says really.
 

A doctor at her place of work noticed Jessy’s hands and asked her about breastfeeding. It was the first time Jessy heard about Raynaud’s phenomenon of the nipple.

A doctor at her place of work noticed Jessy’s hands and asked her about breastfeeding. It was the first time Jessy heard about Raynaud’s phenomenon of the nipple.

Age at interview: 39
Sex: Female
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I was in this place and he comes along and he said, “Hi, how are you?” And I said, “Oh, yeah, look, I have my baby”. And he say, “Oh very good”. And then he looks at my hands and then he said, “Did you, were you able to breastfeed?” Like that. And I said, “Hm, hm, no, not really, I had problems, it was really painful”. He say, “Hmm, so during the winter your hands get really cold and painful?” And I said, “Yeah, yeah, my fingers, I can’t move them and they get really purple”. He was like, “Hmm. That’s called Raynaud’s”. And I say, “OK”. And yeah, it’s a circulatory problem - and it affects the tissue. And what happens is the blocked vessels don’t get enough blood and that causes pain. And that also happens, may happens, may be the reason why your breastfeeding was so painful to you. And it’s actually, he, the, it’s very, very painful. And I said, and he said, “Unfortunately, it’s, it’s something that’s not been researched enough and not many people know and it would be wonderful if GPs knew more about it because there is some medicine that they can prescribe that you can, you can take while you’re breastfeeding that will help your circulatory issues and then it will make the experience more - less painful or bearable”. Because my, and I could see the benefits completely because as much as there is people out there that choose not to breastfeed - my choice was to breastfeed but I was physically unable to do it. 
 
And then I think it will be really, really helpful if future generations or, or the next generations of mums that go, who are suffering from the same as I do, can benefit from these information, or if the GPs know more about it. And then when a woman goes to see them they can say what it is, or if the midwives, the midwife are aware of these and they can help the mum if the choice, if the mum chooses to breastfeed.  

Difficult birth
Many women said that their birth experience was difficult or traumatic, sometimes resulting in an emergency caesarean section, and that it affected their later breastfeeding experience (see 'Sore nipples'). Some found that they were tired or medicated or too ill after the birth and unable to concentrate on breastfeeding in the beginning (see 'The first breastfeed' and 'When extra care is needed for mother and/or baby'). Some said that their baby was sleepy or uncomfortable after a difficult birth and not interested in feeding for several days. One baby took several weeks to learn to breastfeed (see 'Support from hospital staff'). Some were separated from their baby at birth and this caused them a great deal of anxiety, especially when they had expected to have skin-to-skin contact with their baby and breastfeed within the first hour.

She had two very different experiences of breastfeeding after a caesarean section. Positioning for feeding was important and lying down was the easiest.

She had two very different experiences of breastfeeding after a caesarean section. Positioning for feeding was important and lying down was the easiest.

Age at interview: 35
Sex: Female
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They were both breastfed, yes, from the word go, although with my first child the experience was totally different than with my second child. The reason being my first child was delivered by c-section and he was in special care for ten days, and I did not have access to him for about three days so I was separated from him and therefore the breastfeeding experience was very different. I felt very distressed to be separated from him and I got very anxious about not bonding with him straightaway and therefore I was really, really eager to, you know, cuddle him and breastfeed him, and therefore I was advised to go and express very regularly as soon as I delivered and I did that, and in fact my breastmilk came very fast, it came in four days, which is excellent for after a c-section I'm told. And [son], my first child, was too tired, too sleepy to breastfeed so I was expressing and I was actually giving him my breastmilk through a tube to his stomach, so that was quite emotionally that was very difficult but after five days he had his first breastfeed and it was I think lasted about forty minutes and he knew exactly what to do and from then on it was not an easy ride but it was a wonderful experience [laughs]. So that's, that's, my first experience of breastfeeding. Second time I also had an emergency c-section but my child was delivered to me, to my chest, and breastfed right away I think about thirty-five minutes after delivery and he was with me all the time so that was very, very different. And also, I mean, it always amazes me how they know what to do, they know where it is and they just latch on and, they know [laughs], that's quite awesome and, and amazing. So second time was very different.

I think after the c-sections I had the positioning for feeding was important, 'cause physically I was quite weak, I think, first time probably more both physically and emotionally and the feeding lying down was so much easier, because I could rest and I didn't have to physically hold the baby which was really demanding on my body. I think breastfeeding is a very physical thing to do, not be, not only because you're producing milk but physically holding the baby who was getting heavier and heavier, there is quite a big physical element to it and with a c-section, you have to wait a little bit longer before you can be more active.
 

Breast Pain
One of the most common difficulties that the women faced was breast pain caused by blocked ducts or infections such as mastitis, thrush (see 'Sore nipples') or, in one case, a superficial bacterial infection. They said that a blocked duct came on gradually, was mildly painful and localised. They said that the pain of mastitis came on quickly and was accompanied by heat, redness and swelling in their breast and sometimes they felt 'flu-like. They thought that the causes included poor attachment, engorgement, stress and tiredness, missed feeds, dropped feeds during hasty weaning, too much milk, and clothing or straps restricting the breast. A few women said that they thought expressing breastmilk had increased their supply and possibly caused their problems. To treat the problem, most went to bed with their baby and continued to breastfeed from the affected breast. One woman, who was tandem feeding, asked her older baby to feed from that breast to clear the blockage. Some used massage, expression, cabbage leaves* (Footnote 1), heat (compresses or a warm bath), painkillers, homeopathic remedies or antibiotics* (Footnote 2).

She had an abundant milk supply, frequent bouts of mastitis and occasional blocked ducts. She discusses the symptoms, solutions and causes.

She had an abundant milk supply, frequent bouts of mastitis and occasional blocked ducts. She discusses the symptoms, solutions and causes.

Age at interview: 31
Sex: Female
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What didn't go smoothly was that I did get mastitis six or seven times.

So can you describe mastitis for me?

It usually started with a little red patch on my breast that would be kind of hot and, and a bit painful to the touch and then quite quickly I would develop a sort of flu like feeling, a fever and shivery and really feeling quite ghastly actually. And it would usually be when I was very tired, run down, it would, always seem to happen on a Friday evening or so when I'd had the week with the baby on my own and [partner] had been at work and also it was, I suppose related to the breast not draining very well sometimes, I seemed to have a lot of milk and the baby wasn't very efficient at, at suckling even though we'd sort of managed to get by. 

So what did you do when you noticed these symptoms?

I went to bed really, I felt so horrible that's all I could do and I think I took, ibuprofen or paracetamol or something to try and bring the fever thing down, and then just trying to get the baby to feed as much as possible off the breast which had the mastitis. And then when she wouldn't I would express or if, or if she'd already fed and was full I would express, I had a little hand pump and I remember sitting in the bath 'cause hot water was really helpful and putting a, a kind of hot flannel and, and it would sometimes come out that way, and sometimes I would see [pause] one of the things I found helpful was to sit in the bath and, and put a hot flannel on top of the breast and, and often just the warmth of the water would make the milk start to flow, and I remember kind of seeing it kind of swirling around in the water and knowing that it was coming out. And so, and oh, and sometimes I think I had a hot water bottle wrapped up in a cloth or something and put that on, and I did notice sometimes that I had like a little white blob on the nipple, which reading up about it seemed to be that that was sort of dried up milk that was blocking one of the, the holes, and sometimes if I could get that to kind of go then that would, that would relieve the blockage and then.

How did you get that to go?

Once, I'm sure this is probably not very good I popped it with a sterile needle that I'd burnt in a, in a flame, and then whoosh all this milk came out and it, and it went down. And I just think just a lot of expressing sometimes kind of helped them to, to pop as well. And I did also have antibiotics on occasions as well because sometimes it just wasn't going with the kind of measures I was using at home.

So you didn't always use the antibiotics?

The first, no I didn't, I sometimes did and I sometimes didn't.

How long did you leave it before you decided you needed antibiotics?

I usually left it about twenty-four hours or so I'd say.

So if you had no improvement within twenty-four hours'

Yeah.

'you knew you needed antibiotics?

I think that's what I was tending to do yeah. I mean I've actually had it with each baby in fact, all three of them, and for instance with the most recent baby I've had it three times in, about the space of, five or six weeks. And the first time I got through it with no antibiotics, the second time I did take the, some antibiotics because of, it wasn't going after twenty-four hours, and then I was still on the course of antibiotics when I got it the following weekend, in a different

She made sure that she fed her baby with his chin towards the area of the blocked duct in her breast.

She made sure that she fed her baby with his chin towards the area of the blocked duct in her breast.

Age at interview: 34
Sex: Female
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It was, it seemed quite obvious to me I had a lump in my breast visibly you could see it was a funny shape and there were little lumps under the surface, just like little peas, and then.

All in a row, or?

I can't remember I think there were just odd ones here and there, I don't really remember, and it just made sense to me that this was swollen up because there was a blockage so I did the thing where you, I ended up in this ridiculous position because the baby's chin has to point to where the, the blockage is, and I ended up, he was lying flat on the bed and I had to go on all fours over him [laughs]. And I knew that I had got him in the right place because he fussed, and fussed, and fussed, he was obviously getting nothing out, but he kept at it and then he unblocked it and that night I took him and we co-slept, and I did feed him off both sides but I put him more on the side that had been blocked and it was fixed by the morning.

Did you know, was it sort of like an instant thing, ah that's been relieved or was it just because he'd fed so much you think that must have done it?

By the morning I knew that my breast was back to normal but there wasn't a moment where I went, 'Oh right that's it' I'm very lucky I can actually sleep when he's feeding, and once he got passed a certain age he was able to just pop on and off, on and off himself, so quite often I don't really have any idea how long he was feeding for or what he was doing [laughs] or anything so it helps me catch up on my sleep.

Okay, did you do anything else for that blocked duct like massage or heat compresses or feeding in the bath or anything like that?

No I didn't, I tried the chin positioning thing first and, I didn't notice the blockage until bedtime and then I thought, 'Well, you know, if this feeding all night doesn't help then I can move on and try some other things'.

Footnote' Changing the relationship of the baby to his mother's body will improve mastitis if it improves attachment and therefore milk removal.
 

Zainab’s nipple cracked badly but she continued breastfeeding from her less affected breast and expressed the milk from the other. She used cabbage leaves to help with the pain.

Zainab’s nipple cracked badly but she continued breastfeeding from her less affected breast and expressed the milk from the other. She used cabbage leaves to help with the pain.

Age at interview: 33
Sex: Female
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So when I had her, when I had my first son I had really bad cracked nipples, I was all sore, luckily enough my mum came to stay with me but she couldn’t do anything because it was, it’s the first time she’s seen something like that in my situation. I could remember there was a day I was breastfeeding my baby and I end up seeing blood come out of his mouth so I had to stop that one. I was so determined to give him breastmilk I didn’t want formula so I end up pumping one breast and leaving the other one untouched.
 
To rest?
 
To rest yes and I, because of the breastfeeding classes that I went, it was quite helpful so I remember she said if you have cracked or sore nipples you can put cabbage which I did.
 
The cabbage leaves?
 
Yes the cabbage leaves and even my mum was like really cabbage, I said yes she, I was told it gives you a bit of relief and it doesn't dry up the, the nipples. I used the nipple cream but it was all in vain there was nothing, it wasn’t helping. I went to the GP they said because I’m breastfeeding they cannot give me any antibiotics I can only go on paracetamol that’s it. So I was pumping one breast and leaving the other one to rest which I could even say up to now it has an impact because one breast I have more milk than the other one because I think it’s psychology with the brain isn’t it that one needs it so let me give this one. Even now I can tell one has high milk and the other one has very little amount.
 
So I call the breastfeeding help group and they came, she tried helping me quite well, they were quite good but there was nothing she could do the nipple was so cracked it even like the nipple like split almost into two you could see the, it’s a horrendous experience I can’t even like. I was all in pain for two and a half months, I was in pain but I was so determined I wanted to carry on. My first child I gave him all through I didn’t even give no water until he was six months and then I put water and formula.

Jaundice
It is fairly common for babies to develop jaundice* (see Footnote 3) a few days after birth as excess bilirubin accumulates in their blood and makes them appear yellow. Of the few women whose baby did develop jaundice, some said that all they had to do was to be sure to wake their sleepy baby and breastfeed him/her frequently until the jaundice passed. Feeding near a window so that the sunlight could get onto the baby's skin was said to be helpful. One woman spoke about taking her sleepy baby to the hospital for daily blood tests. Eventually, the baby was covered with bruises at which point she decided to spend the whole night waking and feeding her baby to get breastmilk into her. Other women had babies under UV lights in the hospital and removed them from their crib for feeding, not always with the approval of medical staff. One woman said that her baby was:

 “Stripped so she was totally naked, she was just lying there with little goggles and a little yellow body in the incubator with the lights on”.

Hospital staff tried to persuade her to give her jaundiced baby a bottle feed but she persisted with frequent breastfeeding.

Hospital staff tried to persuade her to give her jaundiced baby a bottle feed but she persisted with frequent breastfeeding.

Age at interview: 25
Sex: Female
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His Dad came and everyone, everyone came to say hello and everything, and it was really nice and I, it's like I was breastfeeding and the midwife came, midwife came over and got really. And, yeah and then I was breastfeeding him and some of the midwives were saying, 'Oh you should be bottle feeding' and, you know, all this and 'cause we've got some, some of those midwives are not that supportive I have to admit. But and I didn't wanted to hear it, I didn't care, I just breastfed him continuously and afterwards they, the doctor said that he had a bit of jaundice, so we was in the incubator, he was in the incubator for a good six days and, also the doctor even told me not to breastfeed, the doctor told me to bottle feed otherwise the jaundice is going to take time for it to go. But I didn't listen to them I didn't care whenever he wanted a milk I just got him out, breastfed him and put him back, I got told off a few times mind you, I got told off, they told me I shouldn't be doing that 'cause the more you take the baby out, the baby gets less what you call it?

Light.

Less light and the jaundice take time, I said, 'It doesn't I, I believe the more you breastfeed, breastfeed, the better he will get the quicker' and I ignored them, I honestly ignored them as I was doing what I had to do and after a few four days, four, five days we were out the hospital. And he was absolutely fine and he's a healthy wonderful baby boy running around now [laughs], and I love him to bits.

So that period in the hospital, you were taking him out of the incubator?

Oh yeah.

How often?

Whenever he wanted it to be honest because he was only a few, two or three days old he was on demand feeding and whenever he wanted the milk I took him out, breastfed him, and when I knew he was satisfied after half an hour or so I put him back in again, so it'd probably be half an hour, I tried to give him a good half an hour to forty five minutes on both sides, then I at least I know for an hour he'd be okay, then I'd take him out again same thing.

Did you sit there with him'

Oh yeah.

'all day?

Yeah, yeah I was there basically they kept me in too, so I my bed was then his incubator was just next to me, he didn't go to Special Care or anything, he was just next to me, yeah.

And he had colostrum?

Oh yes definitely.

You didn't withhold breastfeeding'

No.

'at any stage?

No, no, no, no straightaway he got all the colostrum then the milk came in, then the hind milk and everything he got everything from day one, yeah which I felt I had to do, it was my, I felt it was my responsibility to, as a mother, to give what he, it's for him 'cause in our religion it says it's a God-given thing otherwise we wouldn't be producing milk that's why it's important for the baby to have that.
 

Relactation
A few women found that, for a variety of reasons, their breastmilk supply had dwindled and that they had to relactate (bring up their milk supply again), usually by frequent feeding and expressing using a breast pump.

Her milk supply went down because her baby with a cleft palate was unable to feed properly. It took a long time and a lot of effort to bring her milk back.

Her milk supply went down because her baby with a cleft palate was unable to feed properly. It took a long time and a lot of effort to bring her milk back.

Age at interview: 36
Sex: Female
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Okay. When my baby was recovering from the meningitis I was putting him to the breast, it was all I ever wanted to do was be a breastfed Mum, but I was also expressing, but I felt he wasn't able to empty my breasts and I felt that he could only take from them when they, when they were full and I felt he would fall off, I was actually sort of having to hold him, onto the breast and I was kind of limited on my use of the pump, they were kind of rationing me, I felt a bit like a naughty schoolchild every time I asked to use the pump, and I'd very proudly come back and say, 'I've only expressed for three minutes' and then I'd come back with like a hundred and eighty ml's. So I had a really good supply going, finally when we were discharged I was told, 'Just go home, be one-on-one with your baby, loads of skin-to-skin, feed on demand'. And by that point I so wanted to believe them that I, that I kind of fell into the, into the fantasy, I went home and for five days I fed my baby day and night, he was on the breast for more than one in every two hours, and I didn't mind anything in terms of sleep because I was breastfeeding and I was doing the right thing by him and I, I know with a normal healthy baby if they're breastfeeding well it will sort itself out. On the Monday I went to [children's hospital] where the surgeon looked in his mouth and realised that he had a sub-mucus cleft, the first thing I did when I went home was express and I found that I had no milk. My milk had gone. Basically my breasts had shut down because for the previous five days he was feeding but he wasn't feeding, he wasn't draining the breasts, and at, there in the hospital they were worried that I didn't have belief in my breasts, because the truth is that if the baby's normal and healthy then there will always be enough milk because it's this natural bio-feedback loop, 'The baby takes the mother makes', but he wasn't taking and so I wasn't making and I'd stopped making and all that expressing I'd done before when I was being proud and not expressing for too long, I'd actually just been taking off the foremilk, leaving my breasts basically full or engorged enough to send the signals that there is no baby feeding from my breast, so my milk had gone. Now this is like the queen of expressing, had no milk and to [sighs], to be in the situation of, I mean it was utterly devastating, I was so angry, I was so, angry at them, but I was more angry at myself for believing them, because I would have expressed, the only reason I stopped expressing was they thought I was hung up on expressing and they thought there was no reason why I couldn't be breastfeeding. I should have stuck to my guns and listened to my instincts more.

What did you do with that anger?

Channelled it into expressing [laughs]. It was a really, really hard time, there was a whole lot of milk that I had made at the hospital that was on it's way to the milk bank, we're talking litres, I had to haul it back here to the freezer and my job was to get my milk supply up again before that supply ran down. Now if I hadn't done what I'd already done for my first son, there's no way I would have known that you can exclusively express long time, long term. Fine one thing, but you can relactate, but by this time I'd already done a fair amount of reading, I'd set up Express Yourself Bras, I understood a fair amount about expressing and I was in touch with this fantastic breast, breastfeeding or infant feeding advisor and researcher up in the north of England, [name], who'd done all the research over the benefit of double pumping. She was like my saviour [laughs] because she was on the end of the 'phone to me, I knew in theory relactation was possible but I needed her help when milk didn't flow. I mean I was talking, oh ten days earlier I'd been making a hundred and eighty ml's in three minutes, I came

Postnatal Depression
A few women talked about a period of real depression (not just the third or fourth day post-birth 'baby blues') sometime after the birth of their baby* (see Footnote 4). At their lowest point, they felt that they had no love for their baby. They connected their depression to unrealised expectations, disappointment, frustration that things were not going according to plan and adjustment to motherhood. One woman was prescribed antidepressants but felt that they didn't work because the root cause of the problem had not been addressed (see 'Emotional and psychological aspects of breastfeeding').

She did not have the birth that she had planned and found breastfeeding difficult. She thinks that these things may have led to feeling depressed and overwhelmed.

She did not have the birth that she had planned and found breastfeeding difficult. She thinks that these things may have led to feeling depressed and overwhelmed.

Age at interview: 38
Sex: Female
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But the disappointment was huge and I think the disappointment, I can feel myself getting emotional about it now, but I think that obviously compounded a lot of the breastfeeding problems I had afterwards because I was probably slightly depressed, and although I didn't want to acknowledge it, I think that's probably a, another problem, not just with the breastfeeding problems it was addressing the whole fact that I didn't have the delivery that I wanted, and also trying to be big and brave about it and saying, 'Look he's here, he's healthy, for goodness sake that's all that matters at the end of the day' and then actually thinking, 'Gosh I do feel slightly robbed that I didn't have that experience' and I, straightaway made the decision that I would want another child because not just because of wanting to expand our family but also that whole experience I had, I hadn't had. So you do feel slightly guilty because you feel selfish about it, because here he is, he's healthy, he's happy, he's arrived safely, we should thank god for that, but, also thinking but it's not how I wanted it to be, or it should be.

Do you want to explore that idea of depression a little bit more at this stage?

Yeah, I didn't, I've only ever suffered once from depression and that was after my father died, with bereavement, but I think I didn't acknowledge that I was, I'd, I wouldn't say it was post natal depression as in the puerperal psychosis type thing, it wasn't, it was just down, feeling down, feeling overwhelmed and I also think that perhaps with it being your first child slightly later in life, you know, you're very in control of your career and suddenly life isn't in control anymore, you don't know what it's going to be like, nobody can tell you what it's going to be like to have a baby, suddenly you come home with this newborn, little thing, that just completely needs you and you sit there and you think, 'Well what am I going to do next? What do you do next?' so the overall, overwhelming feeling of responsibility and then coupled with the fact that the breastfeeding was just declining and it looked like, 'Oh my goodness don't say that (a) I haven't been able to have a normal delivery and now (b) I'm going to end up having to put him on the bottle', it just made me feel so low.

What about fatigue did that add to that as well?

I was tired a lot, and I think I remember being in the kitchen one night and I just said to my husband, 'Do you know I don't know if I love him' and that was the most dark I suppose it got, but I think I, my husband helped me realise, 'Look you're tired, you're, you know, you need to sit down, have something to eat, you know' and I was expressing at the time as well and that was the other problem that, you know, my nipples were so sore and they were cracked, they were bleeding, I was double expressing, I didn't seem to be able to get much off, so the worry of constantly thinking, 'He's hungry all the time I'm not getting enough off', it was just, you know, it was draining, draining, and when you're tired you can't think straight so, you know, it's a hard cycle to get out of really, you know, something has to change, for in order for you to get some rest, to be able to reassess the situation and continue.

You're looking back at it now; at the time did you think to yourself I might be depressed?

No not really I think I probably put it more down to being overwhelmed with having a newborn at home and the fact that things weren't going well with the breastfeeding, and I knew that I was going to be, while, whilst these problems were happening to me, I knew that I was the type of character that gets very, very disappointed if things don't go righ

Tongue Tie
Tongue tie is the term used to describe the condition where the frenulum - the ligament that joins the baby's tongue to the floor of the mouth - is short and tight. It may affect breastfeeding. Research has shown that most babies with tongue tie have their problems resolved by clipping of the frenulum, but it is controversial. 

Her baby's tongue tie was cut at two days old but he still had problems attaching to the breast.

Her baby's tongue tie was cut at two days old but he still had problems attaching to the breast.

Age at interview: 22
Sex: Female
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Can you tell me what you mean by tongue tied?

Tongue tie's where they have an extra the flap of skin goes to the end of the tongue preventing them to be able to suckle properly also in later life that can cause a lisp, and for him not to be able to lick, so he couldn't poke his tongue out, like that it was held back.

How long did it take you to pick that up?

I didn't, they picked that up in the hospital 'cause, the second, he was two days old, no he was, he was just over a day old and I was trying, having problems getting him latched on and the care assistant actually picked up that that was what was happening why I couldn't get him latched on, and then the next day they came and they cut that in the hospital.

So could you see that his, he couldn't poke his tongue out?

Once they'd pointed it out yes, his tongue rather than being pointed looked like a heart shape that was drawn in at the middle, so once they pointed it out it was quite obvious and he had quite a bad tongue tie as well, so yeah they cut that at two days old. 

Can you explain what that meant?

They basically, they pulled his tongue and then there's this skin underneath, they snipped it, and the procedure took seconds, he cried but he was fine, I sort of held him and he was fine, he forgot about it after a minute if we'd not had it done so young as they get older it's more of a complicated procedure and I believe that if you wait until after they're six months they have to have general anaesthetic and all sorts so we felt it was better to have it done.

So no anaesthetic?

No anaesthetic they just snipped it.

Any bleeding?

It bled, I mean a miniscule amount, the doctor she held some padding to it, to the area and there was a little blood on it when she pulled it away, and then she gave it, him to me and I put him to my breast and he was fine and that was that. And then it looked like he just had a little ulcer there afterwards and it healed fine, so, you know [laughs].

So you put him to your breast?

Yeah.

And?

It didn't, it still didn't come naturally even though he'd had his cut, his tongue tie cut very young it's, can still cause massive problems for babies breastfeeding and I assume maybe bottle fed babies but, so he, he never suckled right, he didn't latch on fully as well, there was always a gap, there was no proper seal made, if you know what I mean, around the, the nipple.

 (Footnote' see Topic Summary 7' sore nipples).

Footnote' Minor brief pain at the beginning of a breastfeed in the first few days is fairly common. However, constant, long-lasting pain of the burning or itching kind or pain after or between breastfeeds is not normal and requires attention.

Biting
In the normal course of breastfeeding, teething is not a problem or a cause for weaning as the baby's teeth are covered by his/her tongue and not involved in sucking. If a baby is biting he/she is not actively breastfeeding. The women who spoke about biting said that it didn't usually last long. Several said that it was important not to jump, shout or otherwise react so that their baby did not get the idea that it was a game. One woman kept carefully and calmly taking her baby off the breast when she bit until she learned not to do it.

Dairy intolerance
Dairy products, such as cow's milk and cheese, are common causes of allergies and, when included in a mother's diet, may pass to her breastfed baby and cause fussiness and colicky symptoms. A few women talked about their baby being dairy intolerant. After these women went on a diet free from all dairy products, their baby became more settled* (see Footnote 5). One woman spoke of her baby being extremely constipated with painful bowel movements (see 'When mother and/or baby need extra care') while another said that her baby screamed every night and had loose infrequent stools. Diagnosis was always difficult and took a long time.

She had great difficulty in getting a diagnosis of dairy intolerance but noticed a dramatic difference in her baby when she cut all dairy products from her own diet.

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She had great difficulty in getting a diagnosis of dairy intolerance but noticed a dramatic difference in her baby when she cut all dairy products from her own diet.

Age at interview: 26
Sex: Female
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Breastfeeding's been really, really hard work actually there's been real times that I'd thought that I'd give up for definite.

Why was that?

Screaming, pure screaming, he just would not stop crying it was horrendous and horrendous to watch, he would scream for three hours at night, which is fine if you've got, if you're on your own and you've not got any other family then that's fine, but being that I've got two other little ones, you just can't physically give all your time to one person and that's what we were doing, and giving all our time to one little boy, person at night he was going to be up for two or three hours it was like taking the night shift so one of us would be up one night, the other one would be up the other night. It was just getting to the point where none of us were getting any sleep, we were just walking round, tired all the time. and I basically kept on going back to my doctor's saying, 'This isn't right, this isn't a normal child, there's something got to be wrong here', I took him to numerous places, homeopathy, cranial, all the places that you get told to take them and no one could say whether or not what was wrong with him, they just kept saying, 'Go back to your doctor's, go back to the consultant's'. We went to see a consultant in [hospital], and they said that there was nothing wrong with him because he was gaining weight, and I was neurotic being that I've had two children I was still neurotic and I should maybe, you know, look into other things that could be wrong with him, if I was that tired to put him on formula by this point I wasn't happy with what she said.

No.

In fact I shut her off halfway through because I just couldn't be doing with what she was saying, but it just seemed every doctor we came to see it was either put him onto solids or give him formula, you know, and that's not something I want to do, you're meant to be given support, I wasn't given any.

How old was he at this stage?

He was four months.

Right.

Four months old. and I think it got to about, when he was about five months old and I got to the point where we just couldn't cope any more, the crying was just absolutely awful, and we kept taking him to all these different people and they weren't, none of them were helping, and I basically said to my husband, 'You've got to, we've got to do something' so I phoned the practice manager of our doctors surgery and we said that we've got a screaming child, no one can tell us what's wrong with him we need diagnosis, you know, we've been told to go on all these crash diets, I don't want to go and put myself onto a diet until I know what's wrong with him. I was given, he looked through my notes and there were the tests that had been done by the hospital, but it came back clear.

A test for what?

Didn’t tell me, they wouldn’t tell me what sort of test it was, I kept getting told from about five or six different people that it was, a test for this, a test for that, a test for this, and no one would give me any clear answers to what the test was, even the person when we rang up and asked didn’t say what the test was, it was just, it didn’t show nothing, and would just leave it as that. So there was no clear answers, so we had the practice manager ring us up and he said that there was obviously something wrong, and he would get someone to call us over it. In the meantime we got a letter from [hospital] saying that they had done a test on baby, but the test, they couldn’t test it properly because there wasn’t enough of it, and.

So what were they testing do you know?

For, basically they were, they were planning to test the dairy.

Was it a stool sample they were testing?

Yes a stool.

There wasn’t enough of the stool sample to test the dairy we’d been told, we’d, we hadn’t been told prior to this that there wasn’t, we were always told that the results were negative, there was nothing wrong, but no this doctor, and the consultant that we actually saw at the hospital actually diagnosed [2nd son] as having chronic diarrhoea and we hadn’t been told that he had chronic diarrhoea, so she had diagnosed him with something completely different. So my husband then rung her boss and basically turned round and said “You’re completely wrong, you’ve got it completely wrong we would never, ever said that the little boy had chronic diarrhoea, we think he’s got an allergy to something”. The doctor then rung us back and she said “Yeah I think you’re right it could be a dietary thing” then she got on to my health visitor, my health visitor came out, said that she wasn’t sure that it would be dietary related she gave me a booklet which basically shows you what you can eat in a dairy free diet, and I ate, basically I stuck to it for two weeks, the health visitor came back out after two weeks and she said “How’ve you been?” “Gone” I said “It’s like a different baby”, and they said “Oh” and I said “Well this should’ve been picked up on right back when he was first born” and they said “Well these things are very, very hard and you can slip through the net” and I said “Well not really, it should’ve been picked up, you know, that poor little boy has been screaming for a whole six months of his little life now and it’s awful when this could’ve been picked up”.

So what differences did you notice how could you be so sure?

The signs he’d had since he was born was horrendous nappies, really nasty I mean you see I, I’ve had a breastfed baby, but real, real bad nappies all down his socks and legs, all up his back, everywhere and I didn’t think that was right, he’d be, he wouldn’t be going he’d leave it like four days and then he’d go and then he’d leave it four days and he’d go, he didn’t have a regular pattern of going if you get me, his bowel wouldn’t open.

Which I thought was quite weird. He had a constant cold, always snuffly, chest was always rattley, but I was told that baby can be a happy wheezer, and a happy co, you know, have a happy cold. he had very dry skin, he would cry at my breast, he wouldn’t take a full feed without arching his back and crying, he’d come away from the breast and cry, so it was, it was lots of little things that I just thought ‘This isn’t right’ and then when he used to scream at night it’s, he used to arch his back and do this, which again you don’t see a baby do unless they’re in real pain. So yeah it was little things like that and I’d read on websites that a lot of the symptoms that he had were like a dairy, a dairy allergy so.

So you cut out dairy products from your diet. What did that mean? What did you have to do?

Basically I had to cut out milk obviously [laughs], but the, it’s really amazing, actually what is a milk, because he’s got cow’s milk intolerance you have to give up cow’s milk, I mean you’d be amazed on nowadays what people put in, use cow’s milk for, even a simple thing like a can of soup, it has actually got cow’s milk in it so you can’t eat it, so you’ve really and literally got to go to the shop and list everything that you’re going to be eating over the next week because you’ve got to look at everything and you’d be shocked on what has got cow’s milk in it so, you know, like I say, a tin of soup, a tin of, I don’t know, pasta sauce, that’s even got cow’s milk in it so you’ve really got to sit there so, I was given a leaflet by the NHS for people with dairy allergies and saying that they, what I had to cut out and the little things that they suggest, that you can have, I mean even simple things like bread, you can’t have bread, I mean that’s like, it’s really silly but you’ve got to cut out all the stodge in your diet and because you’ve got to cut out your stodge when you’re breastfeeding you’re hungry ‘cause you need the stodge to fill you up, so I went through a real stage of being starving because I couldn’t eat stodge and it was just a nightmare, and my milk wasn’t producing as much as I had been so I was told by somebody to have to double feed to keep my supply up.

What do you mean by double feed?

Feed him on this boob and then feed him straight back on that boob and as long as he didn’t get horrendous green nappies I was told that that was absolutely fine but it just kept my milk supply going because I just felt, because I wasn’t eating enough, I was only eating like, I don’t know, veg and fruit and, you, a very small, limited because I couldn’t eat the dairy. Yeah my milk supply obviously went down because there wasn’t the stodge there to, for my, my body to burn up which the stodge unfortunately is better calorie than should we say fruit and veg.

How’s his weight gain been through all of this?

Absolutely fine, not, not a worry at all.

Good before you gave up dairy, good after you gave it up?

It started to tail off when he hit four, four and a half months he wasn’t putting on a lot at all and I said to the health visitor “He’s not putting on a lot of weight” and she said “That could be ‘cause he needs solids” and I said “No I don’t want to put solids in until he’s six months, until we found out exactly what’s wrong with him I’m not doing solids”. Yes so, you know, I’ve been quite steady with that and I said “Could this be finally that’s it’s now showing that this is what’s wrong with him the dairy is finally having an effect on his weight?” and she said “Yeah it could be”. So I mean I’m, I gave all the milk products up for two whole weeks and I noticed he was sleeping through, he wasn’t screaming at my breast any more, he wasn’t getting frustrated at my breast, he was actually having a full feed and relaxing afterwards as if he was full and not having horrendous stomach pains which was amazing. and it, each time I think, you know, each week, after that two weeks I completely gave up dairy, I said to my husband “I’m going to go down” I went down to [town] just by chance my friend bought me a hot chocolate and a cake, and I thought to myself ‘No I, I need to do this myself, I know that it’s going to hurt him but I need to know that it’s definitely the dairy’ so I sat and ate the hot chocolate and the cream cake which I, very nice, by God did he scream, for the next two nights it was horrendous, and I thought to myself ‘I will never going to do that to him again never’.

Because it was the proof you needed?

It was the proof I needed, a hundred percent that it was the dairy that does it to him, so yeah.

What about your own weight?

To be perfectly honest I’ve not seen, I’ve lost weight but I wouldn’t say I’ve not, I haven’t lost huge amounts of weight which is good, I’ve been told by my doctors that I’ve got to keep my calcium, I’ll have to start taking calcium supplements because obviously I’m not eating dairy and that can have a bit of an impact on me so yeah I’ve got to keep a good eye on myself to make sure that I don’t have bad calcium deficiency.

So you obviously feel very relieved now that this has been diagnosed?

I’m feel, yeah I am a lot more, he’s a happier baby and it’s real relief, but I’m just really upset at the fact that we had to go to such lengths to get him diagnosed, and I just think that other people who, I mean I’ve had, I was lucky I had three children, to someone that’s never had a child before they’d accept the child as being that normal, screaming all the time, you know, and I, it absolutely, I mean, it pushed me to the outer edge each time, I mean it was horrendous having that screaming child and it really did push us to the absolute limit, you know, someone that’s on their own that’s got a child like this, you know, they may not cope as well as what we did, I just feel that it’s horrendous.

Nursing strike
Nursing strike is the term used to describe times when a baby refuses to breastfeed for no 'apparent' reason. It is most unlikely that a baby under one year of age, who refuses to breastfeed, is weaning naturally. Some women talked about their babies going on a nursing strike, usually at holiday or Christmas time. The women were very worried and required counselling help to encourage their baby back to their breast. One woman received calming reassurance from a breastfeeding counsellor and lots of suggestions such as trying to latch her baby on while he was asleep, feeding him in the dark, using a dummy and then substituting it for the breast. One woman said that she was disappointed and frustrated when her babies refused the breast, one at four months and the other at ten months of age. She wondered what she had done wrong.

Her baby suddenly refused to breastfeed when they were on holiday. She received help from a breastfeeding clinic but was worried by the term breast rejection.

Her baby suddenly refused to breastfeed when they were on holiday. She received help from a breastfeeding clinic but was worried by the term breast rejection.

Age at interview: 35
Sex: Female
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I had a fantastic birth and in the delivery suite he just took to it and fed by himself and I didn't really think back in terms of my first child at all but for the first few months he seemed to be feeding well, he was gaining weight well, we didn't really have any particular problems until he was about three months old and then we hit quite a struggle point. I'd been on holiday in a hot country and I think I had an overflow of milk, and instead of feeding a lot which is what I expected him to do in a hot country he seemed to pull away and didn't want to feed very much, and that went on for a couple of weeks, and to the point where he was really struggling with me, and it was quite upsetting trying to feed him. And I went into the local breastfeeding clinic, there's a fantastic clinic in the local hospital, twice a week.

That was once you were home?

Once I was back home from holiday yeah. And I went in there, and the lady in there said, 'Oh he looks like he's close to breast rejection' and I was quite panicked.

How did that make you feel?

Yeah quite panicky, particularly because he was refusing a bottle as well, and I'd tried expressing milk and giving him in a bottle and he wouldn't take that at all by that age, he did early on, he took some expressed milk early on, but by that age he was rejecting everything. So I was very nervous that, you know, I was going to have a real problem with feeding him at all.

How old was he by then?

He was about twelve weeks, fourteen weeks old maybe when I went to the clinic. And they were fantastic with me they said that, you know, there was a problem with the way he'd been latching on and in fact until that point he'd been almost sucking up the nipple by himself without really actively latching onto the, to the breast and he didn't have the same control of the milk flow, and they said that they thought it was really that, that he wasn't able to slow the milk down enough, and he needed to use his chin a bit more when I was feeding him, and it took a good two or three weeks of hard work to, to get it right again but from then on he was fine.

What sort of things did you do to entice him back to the breast?

I guess if he was reluctant I didn't push it I began to recognise that there were times when he'd been feeding before when it was really for comfort not for hunger, and so I let those times pass and, and really just waited till he was hungry, and I was very careful about the way I positioned myself, I probably used more cushions at that stage, 'cause you get a bit lazy with using cushions with one child I think and I used to just feed him anywhere and everywhere on my lap and, support him with my arms and, and by that stage my arms were quite tired as well so, I used to then be very careful about how I sat and used good support from the cushions. And was very careful about how I positioned his head, but even if I didn't think I was really latching him well, at least his chin was always on the breast then and, and he was, seemed much happier with it, within a week or two weeks he was fine.

Did you try feeding him in his sleep or anything like that to get him to latch on?

Not really no, he, I mean we kept the feeding patterns the same really and then he just took to it again, I think the help I had from the Breastfeeding Clinic was fantastic and, and it's run by two very, very knowledgeable ladies here, and they really tell you exactly what you're meant to try and do even if it doesn't always work. I went back two or three times and, an

*Footnote 1: Cabbage leaves, kept cool and applied to the breast, are sometimes recommended as a home treatment for engorgement. Their effectiveness has not been scientifically proven.

*Footnote 2: Antibiotics may be needed to treat mastitis if the woman's temperature has not gone down after 24 hours of home treatments or if it increases suddenly. The antibiotics used must be compatible with breastfeeding as the mother should continue to breastfeed, especially from the affected breast. Information on medications and breastfeeding can be obtained from LactMed – an online Drugs and Lactation Database geared to health professionals and lactating mothers. A resource that is part of the US National Library of Medicine (See the Resources and information section).

*Footnote 3: Jaundice is the term used to describe the yellowish colour that some babies develop in the first week of life as bilirubin (the yellow pigment resulting from the breakdown of red blood cells) is deposited in their skin because their immature liver cannot yet deal with it. It is very common, is considered normal and resolves itself. Normal newborn jaundice in a breastfed baby is usually associated with inadequate feeding in the first few days and usually requires no treatment other than to sort out the breastfeeding problem. However, high or rapidly rising levels of bilirubin, especially in the first two days of life, may indicate an underlying disease or condition that needs investigating. High bilirubin levels may require treatment (UV light or blood transfusion) as they can cause brain damage.

*Footnote 4: It is important that postnatal depression is recognised and appropriately treated as it can affect the baby. Breastfeeding is not a physiological contributor to postnatal depression but a lactation consultant or breastfeeding counsellor may be able to help and will know when to refer to another specialist.

*Footnote 5: It is recommended that exclusion of a whole food group from your diet be done in consultation with a dietician.

Last reviewed November 2018.
Last updated September 2015

 

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