“She doesn’t seem to realise how much of a big effect she’s had on my life in a bad way… She didn’t even notice that I was depressed; I had to go to her and tell her that I was feeling bad. She didn’t even notice.”
One woman explained at length how mental health problems are “a taboo” in the South Asian community and how her parents couldn’t accept her depression or self-harm because in her culture “they don’t exist”. She found it difficult to find support and said she knew no one else in her community with a mental health problem.
Sara says she won't go to see a psychiatrist 'out of respect' for her parents. (Read by an actor).
Sara says she won't go to see a psychiatrist 'out of respect' for her parents. (Read by an actor).
Age at interview: 20
Sex: Female
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It’s quite, that kind of thing, they [South Asian culture] are quite close minded about it, they’re not, because they’re don’t believe it exists they’re not even open to the possibility that it might exist so it’s quite, yeah. I’m not sure but you know from my parents reactions if for example someone found out I was going to see psychiatrist, they’d, I know it probably would spread like wildfire amongst our local community that you know, “Oh, so and so’s daughter’s going to see a psychiatrist with mental health problems,” so it’s kind of, it’s kind of out of respect for my parents that I’m not doing it. So, just to save the hassle really. ‘Cos to me it’s just hassle.
Some parents had been “upset” or “angry” when they found out that their children were self-harming. Many had found out unexpectedly and unintentionally which had added to their shock. Young people felt that “shouting” and “getting angry” only added to an already difficult situation. Some said this had led to their parents “checking up” on them which in turn had broken the trust on both sides. One woman said it was difficult that her dad couldn’t understand self-harm at all and thought it was “pathetic and selfish”.
Sara explains how her whole family found out she was self-harming. (Read by an actor).
Sara explains how her whole family found out she was self-harming. (Read by an actor).
Age at interview: 20
Sex: Female
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Finding about the self harming’s quite, it was quite scary ‘cos I was quite young and was kind of, I was still at that age where I really want, did not want to get in trouble. And it was just it was , I think it was because, when she found out about it I said I’d stop because she got upset, I said I’d stop. But then because I never actually stopped she found out about it again, she didn’t like it, and then when I had I think my first, well one of the anxiety attacks that I had, ‘cos I passed out, and it wasn’t that I wasn’t conscious, I was conscious but I couldn’t, I was actually just blacked out. There is a medical term for it, I don’t know what it’s called, but it’s when you kind of, your mind switches off completely but you can still hear things. You can’t physically move, but you can still hear things. And it’s, and I remember that they went to check my blood pressure and like my Dad was, and there was quite a few family members in the room and they saw my arm and it was just like, my Mum had thought I’d stopped but I hadn’t and then my Dad found then as well and a lot of family members found out, it was quite horrible when that happened. Because I could hear them and I couldn’t move, it was just, when I did come round I just hid my face, it was just horrible. Then because my Dad got much more involved as well like.
Many young people described feeling “guilty” about how their low mood or depression affected family dynamics. They felt that their sadness or negativity “rubbed off” on others or brought others down. One man said:
“I’m sure if that is a universal thing, not being able to really connect with parents really just for fear of letting them down or anything.”
One woman described feeling “selfish” by having mental health problems and another felt “sorry” for her family for putting up with her depression and OCD. Some said they didn’t always tell their parents how they were feeling or covered up any problems out of the fear of upsetting them more. A couple felt they couldn’t talk about their problems at home because their parents had “bigger problems” to deal with. They also worried about their parents seeing themselves as “bad parents” and didn’t want their parents to blame themselves.
Dan says his family has 'agonised' over him. He knows that if anything happened to him, it would devastate all the people who love him.
Dan says his family has 'agonised' over him. He knows that if anything happened to him, it would devastate all the people who love him.
Age at interview: 22
Sex: Male
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But, yeah like I know they, they’ve found it quite difficult too, and I know they put a lot of time and thought into it and agonised over it quite a lot. So I know it does affect them as well and I mean that’s that’s part of what sort of keeps me going I guess is knowing that if I ever completely and utterly went to pieces, it, it’s not just me who would be affected, it would be all the people that I love as well, and it’s, and that kind of that realisation whilst I’m still going, there are people who would be devastated if, I don’t know if I was to die, or if I was just to completely go to pieces or turn into a vegetable or something, and I kind of realised that that means they probably do love me and do want to spend time with me. So, that certainly, yeah, I mean I think it’s been hard on them, but having that sort of, they’ve helped a lot and as a result have been amazing, so.
Erika-Maye describes why she thinks 'it's horrible having depression in the family situation'.
Erika-Maye describes why she thinks 'it's horrible having depression in the family situation'.
Age at interview: 17
Sex: Female
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I think its horrible having depression and being in a family situation because some of the time I wanna just be by myself. Because either I can feel I’m in a bad mood but I need to cheer myself up, or I can feel I’m in a bad mood I know I’m gonna get easily annoyed by people, or I feel like I’m in a bad mood, everyone else is in a good mood, I don’t want to rub it off on other people. But if you spend a lot of time by yourself you isolate yourself, whether it’s intentionally or unintentionally. And that automatically creates friction within a family environment.
I didn’t realise up till recently how much it’s affecting my brother, and I feel very guilty, because it was, Mum told me the other day that he’d said a couple of weeks ago he was worried about coming home and just me being there, ‘cos he was worried that I was gonna hurt myself and he wouldn’t know what to do. That was unbelievably painful to hear. ‘Cos I love my brother. Drives me absolutely bonkers, but he’s my little brother.
Emotional and practical support
For many young people, their family and especially parents had been the biggest source of support in going through depression. Parents were often the first ones young people had talked to about depression. In some cases it was the parents who had noticed their changing mood and had brought it up themselves.
Beth felt really lucky her whole family supported her in their different ways.
Beth felt really lucky her whole family supported her in their different ways.
Age at interview: 21
Sex: Female
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And I think that’s when I really understood what families are for and how lucky I am to have a family like that. Because I know a lot of people wouldn’t necessarily, but you don’t need a family, I didn’t need three people to do that.
If I only had my Mum, and that’d been it, for her to turn around and give me that support, that would have been enough. But I was so lucky that I had everyone else to do it. My Dad was great because he knew about it, so he knew not to say like the wrong things, but then he never mentioned it, which is the best thing with my Dad ‘cos sometimes you just want someone like that. And then my Mum was the one that was always making sure as well I was okay and my brother and sisters just want to know that I was okay now. And then they’d that whole great family thing, where you just start arguing about something, and you feel so normal, you know, no walking on eggshells, it was it was good.
Craig's worked hard to "patch things up" with his parents and they can speak openly now.
Craig's worked hard to "patch things up" with his parents and they can speak openly now.
Age at interview: 20
Sex: Male
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With Mum she’s kind of, she’s always, doesn’t matter how old I, how old I’ll be, I’ll always be a mummy’s boy. I know that sounds stupid, it sounds childish but, I mean well I’ll always look after my Mum ‘cos she’s looked after me.
You know, she’s my Mum, you only get one. Do you know what I mean? And I’ve worked really, really, really hard to patch things up over the past couple of years, and especially with my Dad going away for work, I’ve done you know, you know, I’ve had to kind of, “Oh do you need anything from shopping?” You know, yeah instead of going out and doing a weekly shop, a monthly shop with Dad in the car, there’s me going to Tesco’s doing a weekly shop and bringing about eight bags back on the bus, ‘cos I can’t drive because of the diabetes at the moment so, you know I’ve always tried to do, tried to be okay with them for that.
I mean it does affect a lot relationships at home. Because the pressure and the feeling in your head affects your mood and it affects your body and it wears off on others. So they know something's wrong, or because you’re not willing to talk about it, they’re not willing to talk about it, and it just gets worse so that happens, just work through it and openly speak.
Emotionally, young people found it most important to know that their parents were “always there for me”, being patient and supportive. Being available to talk things through was important too. Some preferred to talk to one of the parents only or a grandparent, for example. One woman said talking to her mum can sometimes be more helpful than to a therapist:
“When we talk I think even better than any, any therapist could, she really understands me because we get each other on the same wave length. Sometimes it feels like a waste of breath talking because she knows what I’m feeling and I know what she’s feeling, you know we’re so similar.”
A couple of people said how they felt their family supported them whichever route they wanted to take in life because:
“Yeah as they say, at the end of the day they just want me to be happy.”
Some young people pointed out that they appreciated the support from their parents, even though they weren’t always able to accept it at that time. They sometimes just preferred to be “given space” to think things through.
Tasha says her family is very supportive of her but she's not always able to receive their help.
Tasha says her family is very supportive of her but she's not always able to receive their help.
Age at interview: 18
Sex: Female
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I sort of feel guilty because she [mother], she doesn’t need the stress of me. And what I did was a bit selfish and put a lot of worry on everyone. And it’s I think we’ve become closer because we’ve started to communicate more and they’re really good, they look after me.
And are you happy with that, are you kind of welcoming if they do look after you?
Not all the time [laugh]. I know they’re there for me, which is good but some, I can feel myself snapping when I just. It’s really horrible ‘cos I don’t want to be alone but I push people away and you feel terrible. And people try and make you feel better ‘cos they know you’re not happy, but anything they say you, you sort of, you’re a bit like, “that’s not true,” well “you, you won’t feel like this forever.” And at the time you’re like, “Things are never gonna get better.” You don’t want to listen to what they have to say, even though they’re just trying their best so. I’m not always the easiest to live with.
On a practical level, parents had helped them with transportation to clinics, attended their therapy sessions when appropriate or made appointments. Especially for those with social phobias, having help with public transport had been essential to get out and about.
Helena's mum and uncle have helped her with getting to her appointments and school when she didn't have the confidence to travel alone.
Helena's mum and uncle have helped her with getting to her appointments and school when she didn't have the confidence to travel alone.
Age at interview: 19
Sex: Female
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I’ve had loads of support from my mum, grandparents, and uncle. They’ve all been really patient with me, as I understand how difficult it must be trying to help someone who’s terrified of everything and scared to leave the house.
My uncle would drive me places, and to school, when I was scared to use public transport. My mum would be there to talk to about anything, and, when I did build up the confidence to use public transport she would travel with me, go with me places. She would even take days off work to help me get to my counselling sessions. When I was still at school my mum would ring the school and try and sort things out, get work sent home for me etc.
Some said that going through depression had pulled their family “closer” together. They said they had never before realised how important family was for them. Going through tough times reassured them that they could always rely on parents. Many also described how dealing with depression had made them communicate more openly as a family. Some people felt that especially because they had good and happy family lives, they found it hard to not have “a reason” or a cause for depression and felt that they should not struggle with depression.
Loz's experiences have brought the whole family closer and made him realise 'they've always been there for me'.
Loz's experiences have brought the whole family closer and made him realise 'they've always been there for me'.
Age at interview: 17
Sex: Male
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I think it’s brought us closer in a sense. I feel happy to talk to like Mum and Dad about most things, sometimes [sister’s name], [sister’s name] if they want, if there, if they’re even bothered. You now, I don’t mind, it’s as long as sort of like Mum and Dad are there for me, I’m happy for it so. Yeah I think we’re closer as a family unit. I mean it was sort of like really quite heated with the depression and self harming sort of thing, ‘cos Mum thought that I was drifting apart from everybody else, and I was sort of segregating myself off which it was what I was trying to do because I just didn’t want anyone to see me in that sort of state, I really didn’t, I just feel like I sort of hated everyone and everything and I didn’t wanna…
It sounds like you’re very close to your parents and you can talk, so they must be a big support through this?
I suppose they’ve always been there, but I only sort of recently really realised that they were, they actually were sort of there for me.
Some parents had also been helpful in finding out information about depression and sourcing out counselling options and other forms of help for young people.
A few parents had sought help for themselves. One woman described her family’s long battle to get support and therapy for the whole family, to be able to cope. They felt there were very few services available aimed at helping the whole family.
Gemma's mum found out a lot of information about depression and got regular support from a helpline for herself.
Gemma's mum found out a lot of information about depression and got regular support from a helpline for herself.
Age at interview: 19
Sex: Female
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My mum read a lot of books from the library on depression to try and get a better understanding of what I was going through, and even though there are so many causes and different types of depression, it did help. Not only was depression hard on me it was hard on my family and friends. My mum got in touch with a helpline and every 2 weeks they would ring her to see how she was coping and helped her and gave suggestions on what she could do for me, my mum found it probably the biggest help. Speaking to a professional once a fortnight, having someone to talk to gave her an outlet on how she was feeling.
Cat and her family want family support to cope with her parents suddenly becoming fulltime carers for her.
Cat and her family want family support to cope with her parents suddenly becoming fulltime carers for her.
Age at interview: 23
Sex: Female
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And we have been fighting for the last four years for my family to have family counselling, family support to help our family come to terms with having a disabled child in the family. Because all of a sudden we’ve gone from having, whatever you class as normal, I don’t know what other word you would call it, an abled, like abled person family, it’s turned up all our lives upside down. Because at the time I was working, I was at college, possibly heading into university, going you know, studying journalism, everything. And all of a sudden my parents now find them full time carers, my sister’s now a full time carer, so it’s like now what? What are we supposed to do?
Siblings and wider family
Siblings also played a big part in young people experience of living with depression. They commonly said that their brothers and sisters had a different way of dealing with depression than parents; a bit more distant, light hearted or “jokey”. One man described how the fact that his relationship with his brothers has stayed the same throughout had been a big help:
“Sometimes you need that, semblance of normalcy, and it’s having a normal conversation with someone that doesn’t involve the questions as to “How are you feeling now?”
Some said their siblings had been “too young” to process things. They had felt protective over younger siblings and didn’t tell them everything at the time. A couple of people’s siblings had developed mental health problems later on and they said they were then better able to understand and support them.
For some, relations with siblings had been more difficult. They felt their siblings “worried” for them or were “angry”, for example if they had taken an overdose. A couple of people felt their siblings had been unsupportive or didn’t understand depression. A few people felt left out in the family and that their siblings were always at the centre of attention, sometimes because of a chronic illness, disability, or for being the “clever one”. One woman said it was really tough feeling like she was “the only one in the family with all these problems” and another said she never felt her parents “appreciated” her in the same way as her sister. One woman described how she felt her mum and sister would gang up against her which had made her feel “singled out” and “hypersensitive”.
Holly felt like 'the black sheep in the family'
Holly felt like 'the black sheep in the family'
Age at interview: 18
Sex: Female
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I think it’s [self-esteem] always been quite low, again because I mentioned my sister, and obviously since she’s you know, she’s very articulate and she’s very clever, I always felt, ‘cos our family is, it’s quite an intelligent family, and I didn’t know at the time because of the dyslexia I couldn’t reach the goals and so, whereas they were getting all the good grades, I wasn’t. And that, I think that initially started the self esteem problems ‘cos I felt I wasn’t as good as the rest of the family and I was sort of the black sheep, I was the one that, that wasn’t as able, sort of with GCSE’s I think my cousin got, was in the newspaper for six A stars and five A’s. And I got all D’s and things, so obviously there’s … The same, oh in fact on the same day where I finished, took my sixth form because they said obviously you can’t catch up, so you may as well leave, on the same day as I, I left that school, my sister got, at the college was awarded Learner of the Year for the whole of [county name], so obviously there’s, there’s a bit of a , you know, it’s not that difficult to notice there’s a difference between us.
People also talked about the role of other family members and the extended family. Grandparents had a particularly important role in young people’s lives. Many had experienced bereavement in the wider family and some identified losing close family members as one of the triggers of their depression and low mood. A few people said they felt “uncomfortable” around their extended family, or they didn’t want to talk to grandparents about low mood because they were “more traditional”.
B lost her Nan 10 years ago but it 'feels like yesterday' to her.
B lost her Nan 10 years ago but it 'feels like yesterday' to her.
Age at interview: 19
Sex: Female
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I think if my Nan was here, if my sisters were here and you know,” all that just sort of comes out. And to think maybe if they were here things would have turned out differently. But also just the feeling of loss as well, and thinking oh my Nan would’ve seen me pass my GCSE’s and stuff like that. So it’s just sort of those little things that sort of make you think.
It [getting through bereavement] is very, very difficult, it’s very, very difficult. And everybody sort of, everyone like, it’s not like, there’s no like time limit like, or there’s a certain time where you have to get over bereavement, because I don’t think you actually ever do get through, you ever heal from that like from the loss of a loved one, I don’t think you ever heal. Because there are times when I’ll sit and think, “Oh why my Nan,” and I feel like crying, and sometimes I will cry. And but it’s been nearly 10 years since my Nan died but I still feel like it was just yesterday, so like it’s not easy but it’s just like I said before, it’s just up to you and to make that decision of wanting to make a difference in your life, and to move on. It doesn’t mean when you move on you forget other people in your life, because you’ll always carry them with you, so and you’ll always carry the memories you have with them, so yeah. But it’s not easy, I must say it’s not easy to get to that point.
We also talked to one woman who was a mum herself. She said more than anything she wanted to protect her child from being affected by her low mood and that;
“When you have a child, you have to function. It forces you to function… depression or no depression”
Blondel describes how she balances living with depression and being a mum.
Blondel describes how she balances living with depression and being a mum.
Age at interview: 21
Sex: Female
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Well, ever since I was, you know in quite young, well a teenager, I’ve always had this maternal instinct. I always knew I wanted to be a Mum. I mean I had ambitions, I knew I wanted to do certain things, I love writing and music and things like that but I think more than anything else I just wanted to be a Mum. I’m a home maker and you know I love to nurture and look after people. I fell pregnant quite unexpectedly and I was only 16 at the time. Which was quite scary, but I was adamant you know this is what I wanted, and I never had any doubt in my mind that I’d, you know, I was never really on the party scene or anything like that beforehand, so I didn’t really feel like I was giving anything up.
Because I’ve never been really outgoing, or you know I had friends, but I was never really that social so I wasn’t giving anything up. I knew I wanted to be a Mum. And, pregnancy was quite hard. I was really ill all through my pregnancy and, you know that’s quite draining. And you know being, being that young and going through, you know it was quite traumatic, well labour is anyway, but… I’m not very good with injections and hospitals, I tend to avoid that kind of thing. So it was traumatic but the end result was I had my beautiful little girl.
And, for the first time I think ever I wanted to be alive and I had this euphoria, it was you know, it was like being born again, it was love, you know, it was wonderful, it was such a high. You know it felt like a drug to me, she was, I couldn’t get enough of her. Just laid awake, I don’t think I slept anyway, I mean it wasn’t her, she wasn’t awake crying, she was asleep, I stayed awake to watch her, I didn’t want to be away from her.
And, it was, it was just a positive thing for me, she turned, I mean you know obviously I’ve had a bit of a dip now with the depression, but I mean it just felt like she turned my life around. And I think for a while I think the OCD was there to some extent and, but I didn’t feel, I didn’t feel sad anymore. I felt so happy and so alive and so you know glad to be alive and it was just wonderful. And you know to me as she’s getting older now, and you know, children they need so much of your attention, and having depression I do find that hard sometimes to fully commit myself to her, especially when you know, as I said, when I was a child and finding you know, other child to play quite irritating, and not wanting to join in, so I’ve had to learn how to you know, to role play with her and to you know, to find some youth in me again, to connect with my daughter. So that, that would probably be about the only part of motherhood I’ve found hard, it’s just, you know, learning how to play again you know, and to get involved with her, but, she’s certainly uplifted my spirits.
Last reviewed June 2017.
Last updated December 2013.