Motor Neurone Disease (MND)
Credits
Main Researchers - Dr Louise Locock
Louise Locock is a qualitative researcher and professor in health services research at the University of Aberdeen. Before joining the University of Aberdeen in 2017, she was Director of Applied Research at the Health Experiences Research Group, University of Oxford, and has led numerous studies disseminated on this site.
Main Researchers - Carol Dumelow
Carol joined the Health Experiences Research Group, Department of Primary Health Care, University of Oxford. in 2001 as a senior researcher. She has worked in health services research for over 13 years. She gained her Ph.D. in Sociology from the University of Surrey in 1998.
Other Researchers - Alison Chapple
Alison conducted three of the interviews on the site. She is a medical sociologist and has worked at the University of Oxford since 2000 as a Senior Research Fellow and Research Lecturer until her retirement in 2017.
Other Researchers - Audrey Chamberlain
Audrey conducted one of the interviews on the site and has a PhD in Sociology from the University of Leeds. Before this project she worked in adult education community development & research.
Advisory Panel
Ann McPherson
Medical Director - Health Experiences Research Group, Department of Primary Health Care, University of Oxford.
Anthony Harnden
GP and University Lecturer in Primary Care, University of Oxford
Crispin Jenkinson
Director, Health Services Research Unit, University of Oxford
Janice Brown
Senior Lecturer, School of Nursing and Midwifery, University of Southampton
Kevin Talbot
Consultant Neurologist, Oxford Radcliffe Hospitals Trust, and Senior Clinical Research Fellow, University of Oxford
Liz Garrood
Regional Care Development Adviser (NW Thames) MND Association
Phil and Janet Baker
Patient and carer representatives
Rachael Marsden
Specialist MND Association Nurse, Oxford Centre for Enablement
Sharon Schillerstrom
Care Information Resources Manager, MND Association
Tricia Holmes
Director of Care Development, MND Association
Acknowledgements and thanks
To all those who took part in interviews, and the MND Association Regional Care Development Advisers, GPs, consultants and specialist nurses who helped us recruit participants. We would especially like to thank the MND Association for their ongoing help with updating the site and keeping the information accurate.
Supported by:
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NHS Service Delivery and Organisation Research and Development Programme