Bowel (Colorectal) Cancer

Overview

In this section you can find out about experiences of bowel cancer (colorectal cancer) by seeing and hearing people share their personal stories on film. Our researchers initially travelled all around the UK to talk to  39 people in their own homes.

Analysis of 2 new interviews were added in 2011 and 2016. Find out what people said about issues such as symptoms, surgery and breaking the news.

We hope you find the information here helpful and reassuring. 

You may also be interested in our section on Bowel screening.

Uri Geller introduces the bowel cancer website

Uri Geller introduces the bowel cancer website

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Hi, I'm Uri Geller. Now imagine being told you have a life threatening illness you have never even heard of. Imagine that you're at home preparing supper for your family and suddenly the phone rings, it's your doctor and guess what he says? He says that unfortunately, the symptoms you've been experiencing are indeed caused by a malignant tumour in your bowel.

 

Or imagine being told that from now on, your bodily waste will have to be collected in a bag attached to an opening on your abdomen. Do you know that more than 36,000 people a year in the UK are diagnosed with colorectal cancer, often called bowel cancer? And yet, it's a disease that’s seldom mentioned, and whose symptoms often go unrecognized until it's reached an advanced state.

 

The colorectal cancer website brings you the stories of ordinary people of all ages and backgrounds, who have faced the challenges of living with this disease. Hear them talk. Hear them tell you about their own stories, their symptoms, diagnosis, and treatment, and how the illness has affected them and their families, and the ways in which it has changed their lives.

 

Now perhaps you or someone close to you has this disease. Maybe you treat or care for people with colorectal cancer. Or maybe you just want to understand more about this illness and what it's like to live with day after day. Now look, whatever your situation, we hope you will find the colorectal cancer website to be a unique and valuable resource.

 

Thanks so much for listening to me.

Bowel cancer website preview

Bowel cancer website preview

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Interview 13: I'd actually seen something on TV which really made me concerned. By the time that she'd actually realized there was something really wrong. She was saying that when she was going to the toilet, it was like sort of a tube of toothpaste. And that sounds a bit horrendous. But that's actually what it ended up being like for me. So I did keep going back to the doctors, and they thought there was nothing really seriously wrong. But they did book me in for an appointment, finally, to have a barium anima, which was in the December.

Interview 17: About four days later, when I went to see him, I went in and sat down and he looked at me and he said, “we've got a problem”. And I was actually very impressed with that because, I immediately felt that I wasn't on my own in this. And, I said, “ is it cancer?”  And he said, “yes”. I asked him if it was operable, and he said “yes it is.” He said, “I'll tell you what I propose to do about it”. And he told me, I asked him if there were any alternatives, any other options. And he looked me straight in the eye and he said, no. And I completely trusted him. He was obviously very experienced. And, he made me feel that he was in it with me.

Interview 02: He put me these alternatives, and it seemed to me, and there was-, to begin with he put them in this very even way. And I, I found myself trying to mindread what he really wanted to do. And in these circumstances I said  “well what would you do if it was your brother?” In a desperate attempt to get him actually to commit himself? And alright well what to the-, you know, I was sophisticated enough I suppose to say “well what are the five year survival rates for these things”, and so on. And eventually he committed himself and he was quite clear what he wanted to do, and it was quite clear that was an alternative that would leave me, if it was successful which was, with pretty well no disability and a very good chance of no recurrence.

Interview 26: And what I did was write about what I call ‘a balance sheet of life’. I wrote down all-, I wrote down all the things I regretted that I would be missing, and they just amounted to eight things basically. But I also wrote down all the achievements, all the happy memories, and that came to over 100 things. So I was able to look at this and say, okay, if I've got a die, I've had a damn good life.

Interview 37: He's been very positive, very encouraging. He hasn't given me any sympathy. He feels that that is the most important thing. Sympathy, you can't have sympathy with something like this. It's a war, it's a battle, and you have to fight it.

So how has he supported you?

Literally, by being there for me every step of the way. Encouraging me every step of the way that every operation was going to be successful and everything was going to be fine.

 

This section is from research by the University of Oxford.

Nuffield Department of Primary Care Health Sciences logo

 

Supported by:
Macmillan Cancer Support

Last reviewed: November 2024.

Publication date: March 2002.
Last updated: August 2016.

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