Breast Screening
Mammograms after surgery for breast cancer
After surgery for breast cancer women have regular check-ups with their consultants, more frequently in the first year or two than later. Check-ups often include a physical examination; mammograms are usually done no more often than once a year. Check-ups continue for at least five years (see our Breast Cancer in Women website), after which time women will be invited to rejoin the NHS Breast Screening Programme.
Many women we spoke with discussed the check-ups they'd had after surgery. Some had initially gone for check-ups every three months for a year, and then every six months. These appointments were then reduced to once a year. One woman, who was still having chemotherapy, didn't know how often her post-operation check-ups would be or what they'd involve.
Discusses having check-ups but didn't know what they would involve.
Discusses having check-ups but didn't know what they would involve.
Yes, three-monthly check-ups with the plastic surgeon, with the consultant and with my oncologist. And they gradually reduced then to every six months and I'm now down to every year. And a mammogram, I have a mammogram every year as well.
So you have a mammogram every year. When you go for the check-ups, what do they do during the check-up?
It's really just, they're very, very quick, they really just ask me, "How are you feeling? Is everything ok? Have you any worries, any concerns?" and I get, it's a full examination of both breasts and under my arms as well. And they sometimes do my lymph glands here and my neck and my back.
Many women had mixed feelings about having mammograms after surgery. Several said they felt anxious in case more cancer was found, yet reassured when they were told that there were no problems.
Finds having post-operation mammograms both worrying and reassuring.
Finds having post-operation mammograms both worrying and reassuring.
One woman said she felt anxious and vulnerable before going for annual mammograms. She had these in the United States, where she had family, contacts in the medical field and more trust in the medical system.
Prefers to have her mammograms in the USA and feels anxious and vulnerable before having them.
Prefers to have her mammograms in the USA and feels anxious and vulnerable before having them.
How do you feel when you go back every year for a mammogram? Are you anxious about it or you try not to worry'?
I think everyone is anxious. You know, it always puts you back to a place where you were absolutely vulnerable and you realise all the laws of the world apply to you. Anything could happen to you and actually did. So I think I, you know I feel very vulnerable. It brings back all the memories of gosh, what. I remember when I was sitting here. You're also sitting in doctor's offices and you are looking at women and you see the terror on their [laughs] faces and you still relate to where they are at and what they are going through. And I think that's always a little difficult.
Some women found follow-up appointments reassuring because they would be examined by a doctor. One felt more reassured seeing an experienced consultant who checked her thoroughly compared to someone more junior. Some women found mammograms after breast cancer surgery less painful, but others found them more uncomfortable. One felt that a year was too long to wait between mammograms.
Feels more reassured seeing an experienced consultant, who checks her thoroughly, than someone...
Feels more reassured seeing an experienced consultant, who checks her thoroughly, than someone...
You get an appointment for a check-up after having had cancer and you cling to it as, this week it's another, you know, three months or whatever. And you go, and there are fifty other people there, and you are called, and if you get someone who says, "Just lie down on the couch." and they run their fingers over the scar and they say, "How have you been?", and you say, "Fine.", and they say, "That's fine, see you in three months." That does not give you any, me personally, any confidence. I need, and nothing annoys me more, is the doctor writing their notes while they are speaking to me. If they can't spare me the time to look at me when they're speaking to me, I just feel I'm on some sort of conveyor belt and I don't derive any confidence from them.
If I have someone who is perhaps a registrar, or up further anyway, who takes the time to feel round my lymph or under my arms and round my neck and my tummy. Now, it may be, someone pointed out to me one time, listening to your baby with the thing, doesn't actually tell you anything but it makes the mother feel more confident. And maybe that is the situation with feeling and doing that sort of thing, maybe it's exactly the same. But for me, it gives me more confidence that they have looked and felt and spoken to you and perhaps asked you a couple of questions. And it only takes a few minutes more, just a few minutes more to do that. I feel better after it anyway.
Finds mammograms more uncomfortable since she's had surgery for breast cancer.
Finds mammograms more uncomfortable since she's had surgery for breast cancer.
And how was it, having a mammogram, having had surgery?
Well it was, as I say, it was more uncomfortable. It's still much more uncomfortable than before I had surgery because of the scar tissue. But its bearable.
Waiting for the post-operation mammogram results worried several women. One noted that some consultants at the hospital she attended gave mammogram results to women on the day they'd had the x-ray, while others didn't. She felt that results should be available on the same day as the mammogram and that women shouldn't have to chase them up.
Results should be available on the same day as the mammogram and women shouldn't have to chase...
Results should be available on the same day as the mammogram and women shouldn't have to chase...
No that's the other worry and anxiety and I find the system wrong and the system bad, and it seems to be from consultant to consultant, it depends what your consultant requires. Some of the ladies I'm in contact with, their consultant would send them for the mammogram first and then he has the results and then when you go in and see him he has the results in front of you. My consultant works differently in that she orders the mammogram and then you get a letter to go and see her and the onus is on you to go and chase up your mammogram to actually go and look for your results. And three weeks, four weeks could elapse before you know your results. And you know if you're an anxious sort of person, that would be a very anxious time to wait, you know. I don't think it should be left up to you. I think, you either phone for your results on the day, or the day afterwards, or at least speak to your consultant a week afterwards, you know, to be reassured.
One woman had mammograms done privately because she found waiting for the results so worrying. She also wanted to see the same consultant every time she went for her check-ups, and found that this often didn't happen in the NHS. The longer she survived after having her treatment, the more anxious she felt before a mammogram.
Has mammograms done privately because she sees the same consultant every time and get the results...
Has mammograms done privately because she sees the same consultant every time and get the results...
So I suppose it's been three and half years. I had my last mammogram January, now that would be three months ago, touch wood I'm still clear. I do get, I am a very grounded person and I'm an intelligent, educated adult, as is everybody else, and I'm a very grounded person and I'm very logical and I still get worried whenever I'm coming up to a mammogram. So it's happening to me, it's happening to everybody. And you always think "This is the one, they're going to find it" and I'm no different and I cannot believe that I'm any different from anybody else. And I still go private for my mammograms because I cannot bear to wait the length of time that it takes the NHS to come back, two to three weeks to tell you you're clear. And I just can't, I can't hack that.
So I pay for a mammogram every year and I go and I get the results within ten minutes of that mammogram being taken. So if it's good I'll know straight away and if it's bad I'll know straight away. And I won't waste any time, and I won't waste time at home worrying about it, because I worried enough that last month going up to it, I don't want to worry about it afterwards as well.
Feels more anxious about having mammograms the further she is from her treatment.
Feels more anxious about having mammograms the further she is from her treatment.
Most women had had no further problems with their breasts. However, one woman said that the first mammogram after her surgery made her anxious because it showed micro-calcifications. These turned out to be harmless and, after that, going for mammograms no longer bothered her. Another woman worried when she had to have a biopsy because of a possible problem on her mastectomy scar. She became very anxious when having to wait a long time for the results, which were inconclusive. She then had an ultrasound scan, which showed that there were no problems. Another was worried by aches and pains and had bone scans to rule out the possibility of secondary bone cancer.
Worried about micro-calcifications found on her first post-operation x-ray, which were harmless,...
Worried about micro-calcifications found on her first post-operation x-ray, which were harmless,...
Some women said that, after several years of annual mammograms following their treatment, these were reduced to every two years. By this stage some of these women no longer felt anxious before going for mammograms. Another, who'd had mammograms on the NHS and privately, was considering in which sector she would have her next mammogram.
Now has mammograms every two years and doesn't feel anxious beforehand.
Now has mammograms every two years and doesn't feel anxious beforehand.
So you go every two years now?
Now, yes, yes.
And before going now, would you still feel a bit anxious?
Not particularly, I don't think. Been there, done that, you know [Laughs]. Lightening doesn't strike twice, I keep telling myself.
When they learnt that their mammogram results were normal, women felt relief. Many were grateful for the NHS resources that went into their treatment and post-operation check-ups.
Feels grateful for the NHS resources that went into her treatment and post-operation check-ups.
Feels grateful for the NHS resources that went into her treatment and post-operation check-ups.
Last reviewed March 2016.
Last updated November 2010.
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