Urogynaecological conditions: prolapse, bladder and pelvic floor problems
Causes and contributing factors
This section covers:
- Thoughts on causes and contributing factors
- Seeking information about the causes of urogynaecological conditions
- Uncertainty around causes and contributing factors
- Improving awareness of causes and contributing factors
In this section we use the terms:
Pelvic organ prolapse (prolapse) is a condition in which pelvic organs, like the bladder and uterus (sometimes called the womb), move down or slip out of place and may bulge into the vagina.
Urinary incontinence is the unintentional loss of wee/urine. There are other bladder symptoms that do not involve incontinence, such as needing to urinate a lot, getting up at night a lot for a wee, or difficulties emptying the bladder.
UTIs (Urinary Tract Infections) are when bacteria infect the system that stores urine (such as the bladder). There are other types of conditions that can involve bladder irritation and pain, such as interstitial cystitis (also called bladder pain syndrome).
Thoughts on causes and contributing factors
There are some factors which are thought to contribute to women developing urogynaecological conditions. These factors include pregnancy, childbirth, menopause, and some types of medical or genetic conditions. However, it can be very difficult to know for sure what the causes of urogynaecological problems are for a particular individual.
In this study, a few people also referred to ‘myths’ about the causes of urogynaecological conditions. Some are very common, such as the belief that having sex can cause or contribute to urinary tract infections, even though this may not actually be true or known for certain. There was concern that these myths could lead people to make unnecessary changes to, or worry about, their lifestyle and activities.
Dr. Matthew Izett-Kay, a consultant urogynaecologist, describes some of the factors that can contribute to developing urogynaecological problems.
Dr. Matthew Izett-Kay, a consultant urogynaecologist, describes some of the factors that can contribute to developing urogynaecological problems.
So prevention of pelvic floor problems is probably the big, the big kind of new phase of our speciality, in trying to work out how we prevent, because they are very common. We know that nearly half of women will develop some form of prolapse, incontinence, or pelvic floor problem. And nearly one in ten women will have surgery. So it’s clearly an epidemic or an endemic, and as we have an aging population becoming more common so trying to prevent it is, is, is really key. A lot of those things are simple: healthy living, maintaining an ideal body mass index, avoiding things that we know to trigger bladder, so things like caffeine for example, and certain environmental or dietary things can make the bladder worse. Maintaining pelvic floor, strengthen pelvic floor tone, so we all don’t bat an eyelid going to the gym to workout and make sure that we can run a marathon or, or undertake exercise classes, but we often neglect the pelvic floor. And when we talk about pelvic floor, we can kind of think of it as a group of muscles that act as a hammock for the bladder, the bowel and the vagina and just like any other muscle group whether it’s your cardiovascular fitness, or your abs, you can work out those pelvic floor muscles to try and prevent the development of prolapse and incontinence.
And then there are the kind of two big risk factors for pelvic floor problems; one is childbirth, and obviously that’s difficult because that’s something that a significant proportion of the population go through, and for most women undertaking a vaginal delivery, or a normal birth if you want to call it that, remains the safest option. But we do know that having a vaginal delivery significantly increases your risk of pelvic floor problems. But of course the alternative, a caesarean section, definitely doesn’t prevent you from getting a prolapse incontinence, and has its own set of risks. So often discussions about prevention veer into to how we manage childbirth and labour, but there’s a lot of other competing factors beyond the pelvic floor. And then sadly genetics, or bad luck. We know that you know that there’s a familial inheritance prolapse and incontinence which you can’t do anything about. And the other thing I didn’t mention as a cause is ageing, and of course we haven’t got anything, any treatments or solutions to the bad luck of ageing, which contributes to bladder symptoms and prolapse.
People shared their thoughts on the causes and contributing factors of urogynaecological conditions. Even though there was sometimes uncertainty about causes, for some people it was important to make sense of possible causes.
Sharon thinks her prolapse was caused by childbirth and lack of support for postpartum rehabilitation and recovery after birth.
Sharon thinks her prolapse was caused by childbirth and lack of support for postpartum rehabilitation and recovery after birth.
I am learning to live well with pelvic organ prolapse now and I have Grade 1 cystocele, rectocele and a uterine prolapse and I believe it was childbirth-related and also just a lack of support for postpartum rehab and recovery. It is funny when I talk to different health professionals, where it seems like a prolapse hot potato when you say it was probably because of these factors for my birth and people are quite quick to say actually it’s the pregnancy and the pressure of pregnancy and you’re an older mum but I think to my mind it’s very directly related to the birth experience I had. So I was, I had a few risk factors that put me more likely for developing prolapse. I was an older mum at 37, I had a larger than average baby but not, not massive. He was eight pounds six ounces so not, not huge and but I did have a very long pushing stage. I had a vaginal delivery. No instruments fortunately but I was on my back in a lithotomy position which wasn’t ideal and I ended up having an episiotomy which was I think necessary given the cascade of interventions I already had but again not ideal so that led to weakness in the pelvic floor.
Eve, Cynthia, Kerry, and others thought that the strain put on their pelvic floor, through pregnancy and childbirth, heavy lifting, coughing, or chronic constipation were making things worse. Elly thought a combination of frequent vomiting during her pregnancies (hyperemesis gravidarum), having a disorder that causes fragile tissue, a big baby, and a difficult birth contributed to developing prolapse in her late twenties. Kezia was shocked by how “physically injured” she felt after a delivery with forceps (a medical instrument used to help turn and/or guide a baby in the birth canal). Pauline thought that having four children and being very physically active may have weakened her pelvic floor. Minnie and Sian have had bladder problems since childhood, which for Sian increased after the birth of her second child.
A nurse told Elisabeth that having big babies had contributed to her developing a prolapse later in life.
A nurse told Elisabeth that having big babies had contributed to her developing a prolapse later in life.
It just yeah I know, it was very interesting when I was waiting to see the consultant when I was before I had my first operation for the rectocele and there was a lovely staff nurse in talking to me and it was before he came in and she was just chattering away and she was saying “So tell me how many babies do you have?” so I said “Oh I’ve had two” she said “And how big where they?” I said “Oh they were both nine pounder” I said “It was wonderful” I said “Because standard vaginal delivery absolutely no problems, a few stitches with my first” I said, “To be honest” I said “Shelling peas compared to a lot of my friends” and she was laughing and she said “Yes but you’ve got your problem now” and I said “Yes I have and that’s probably” she said “Well the new thinking is” and whether she was saying it I don’t know, she just said “ It’s the big babies that cause the problems, so you’ve had the brilliant birth but now the rectocele” the thinking is caused because the bigger the baby it contributes I’m not saying it causes, but it contributes to problems later in life.
Jenni first developed incontinence issues after her womb was surgically removed. This resolved after a while, but got worse again after she developed a bad cough.
Jenni first developed incontinence issues after her womb was surgically removed. This resolved after a while, but got worse again after she developed a bad cough.
I don’t think I suffered any other sort of problems until I had a hysterectomy, which would have been, oh when was that? That was probably about eight, ten years ago, when I did suffer a little bit from incontinence following that. I did get on top of that and it wasn’t too bad at all, in fact I don’t think it, once I got there it was okay. But then when was it, back in two thousand and-, beginning of 2019, so it’s a good two years or so ago, I started with a cough. And it wasn’t just a cough, it was a really, really, really bad cough. Cough, cough, cough, kept me awake at night, all sorts of things. I went to the doctor and I was put on inhalers and various things like that, and at that point in time again, the incontinence came back again. And I sort of mentioned it, but there wasn’t sort of, nobody sort of did anything or said anything and I just grinned and was bearing it. And I felt that probably it had just, all this coughing had just weakened my bladder. And so, I, as I say I put up with it.
Pelvic floor muscles can also become too tight and cause bladder problems. A pelvic floor physiotherapist told Iris that her pelvic floor muscles were hypertonic (overworking), which was contributing to her incontinence.
Urogynaecological problems sometimes began, or became worse, around menopause. For Rose, Sue Y, and others, existing urogynaecological problems became worse, while for Jeannie and Melanie, the problem started at this stage in their life.
Having a hysterectomy could also contribute to developing prolapse as it removes supporting tissue, as was the case for Jenni and Jacqueline. Jenny’s GP told her that low oestrogen and vaginal dryness made her more likely to get urinary infections.
Seeking information about the causes of urogynaecological conditions
Healthcare practitioners and online forums or websites were common sources of knowledge about the causes and contributing factors associated with urogynaecological conditions. For Elisabeth and others the link with difficult childbirths was quickly identified by medical professionals. Vicky, Leah and Melanie, amongst others, found answers through doing research online. Vicky had a ‘massive lightbulb moment’ after seeing a social media post about low oestrogen, menopause, and urinary infections.
Laura, Jasmine, and Leah found it frustrating that doctors seemed unconcerned with finding the root cause of the symptoms. For Laura, this provided motivation to seek private care. Felicity felt frustrated that her doctors didn’t explain “anything at all” regarding her vaginal atrophy and repeated UTIs, and felt she had to do her own research to find out about medications she could try.
A GP told Anita that her cystitis was “one of those problems with women’s plumbing”, which she felt was not very helpful.
A GP told Anita that her cystitis was “one of those problems with women’s plumbing”, which she felt was not very helpful.
Okay I started experiencing cystitis very regularly when I was about oh twenty, twenty or so and I went to see my GP, I was at university at the time and. I I can’t remember exactly but I I think they gave me some antibiotics or something. I I also, as the years went by, it, I got it more, you know, very regularly and then at some point somebody said to me, a GP said to me that it was often associated with intercourse. Then I sort of had a think about it and realised that that’s when I started being sexually active and that what’s when around about 20 and they definitely coincided and I found that very off-putting once I realised and also I knew that there was always the risk that I would have a period of cystitis which is very debilitating in the sense that your, you become unable to leave home or go far from a loo and it’s very uncomfortable and worrying and at some point I was asked to do mid-stream sterile urine samples and there was never really any indication of any bacterial infection.
So it was all a bit of a, bit of a problem really and nobody really suggested any, any solution that I would have just have to put up with it and in fact one GP I remember it clearly said to me, “Oh, you know, it’s one of those problems with women’s plumbing, it’s, it’s not a very good system” and I thought, ‘Oh that’s a [laughs] that’s a rather, a really helpful thing to say.’ And so from about the age of 20 until my mid-thirties or perhaps early thirties actually, I just had this recurrent problem and it didn’t, didn’t do anything very good for my married life because I got married when I was 25 and it made at times, made my life un unpleasant.
The way that some doctors and nurses talked about the causes of the conditions was sometimes seen as unhelpful, even implying blame or appearing dismissive. Rowan, who has had recurrent UTIs since she was a teenager, would like there to be more research into the causes and for it not to be dismissed as “women’s problems”.
Friends or family members with similar experiences or medical training sometimes offered advice, if the woman chose to talk to them. A family member flagged to Freia that her weight might have contributed to her prolapse, which was a bit of a “raw nerve” for her.
Uncertainty around causes and contributing factors
While some people became aware of a wide range of things that could cause or contribute to urogynaecological issues, finding a straightforward or satisfactory answer could be difficult. For some, it remained uncertain. Sue Y’s doctors had mentioned a few possible contributing factors but added that it wasn’t possible to say the causes for certain. Rowan has considered contributing factors like undergoing chemotherapy, ageing, and having sex, but hasn’t been able to narrow down a specific cause.
Those who had problems with urinary tract infections (UTIs) had often tried to identify factors which caused a flare up. Anna and Jasmine noticed their symptoms began when they first started having sex. Leah thinks she had a UTI within the wall of her bladder which was being dislodged during sex, causing flare ups of symptoms.
People also wondered whether being catheterised, undergoing chemotherapy treatment for cancer, or even sitting on a bicycle seat for a long time could have contributed. It could be difficult to pin down an exact cause, making it necessary to test out different lifestyle changes.
Phyllis suspects a genetic factor is contributing to her repeated urinary tract infections. She hopes there will be greater support around women’s health for future generations.
Phyllis suspects a genetic factor is contributing to her repeated urinary tract infections. She hopes there will be greater support around women’s health for future generations.
It’s so uplifting to think that, you know, something is happening, that, you know, that you’re, some, you know, people are on our side and, and trying to get things done. So, I’m really happy to do anything like this which is why I was determined to do it. I thought ‘I just do not want my own children, grandchildren, to deal with this when they get older’. Especially as we seem to be a bit susceptible in our family. So, you know, it’s I don’t, I mean, it must be something to do with hormones on the bladder lining or the, there’s a, they have, you have a layer apparently in your bladder, which is thick [coughs] whether or not there’s, you know, something to do with that or genetic thing, I don't know. But I thought, you know, if I’ve got my daughter and my granddaughter who have the same problem, despite all the precautions you brought up to follow, you know, hygiene wise, there’s still- and besides which the man in America said, “That’s nothing to do with it.” He said, you know, “Whether you wipe from front to back or not.” He said, “Otherwise everybody would have it, if that was a problem.” So, we’ve always been brought up to do the things properly, but they’ve still got it. So and I thought ‘well, it could be that the next one would be my lovely granddaughters, these lovely girls, you know, that might be faced with this and there might still be no help’. So, I’m very happy to do this.
Other medical conditions were also thought to be a contributing factor. Alice has overactive bladder syndrome (which causes a frequent and sudden urge to wee that is difficult to control) which she thinks is caused by anxiety and the complex medical conditions she has had since childhood. Pauline thought that her thyroid issues might be linked to her urinary infections. Freia wonders if her reduced mobility from hip problems might contribute to urinary incontinence, as she can’t always get to the loo in time.
Kerry thinks chronic constipation from coeliac disease (a condition where the body’s immune system attacks its own tissue when gluten is eaten) may have contributed to her prolapse, along with having an episiotomy (a cut made between the vagina and anus during childbirth). Fiona thinks a vitamin D deficiency contributed to her recurrent urinary tract infections. Jordan has a history of sexual trauma and wondered if this was contributing to their bladder pain.
Improving awareness of what can cause urogynaecological conditions
People said that they would have benefited from knowing more about the causes and contributing factors of urogynaecological conditions before having these problems. Jan, who has prolapse and urinary leakage, is frustrated that she didn’t know more in her fifties about how the menopause can impact women’s urogynaecological health. Looking back, she feels she could have got ahead of things by keeping her pelvic floor strong, keeping her oestrogen levels higher, managing her weight, and avoiding constipation.
Melanie wishes she had known that menopause can contribute to urogynaecology conditions so that she could have sought help earlier.
Melanie wishes she had known that menopause can contribute to urogynaecology conditions so that she could have sought help earlier.
I’ve been perimenopausal for five years and vaginal issues have been I don’t know, I’m quite sure how to quantify it, probably three years in maybe longer, longer I think, yeah I just wish I’d known more. I wish l because I think what my body was saying slowly was, you know, I need help particularly for the vagina vulva, it was slowly not functioning more and more, you know, it’s almost like more and more clues have been given to me and I haven’t, I haven’t responded to them, I haven’t taken heed and therefore I’m in quite a sorry state now, you know, it’s like an engine that’s just coming to an end, coming to a stop, to a halt more and more and you’re just not giving it what it needs.
Right.
You know, be it water or oil or whatever, what you’re not listening to it and you’re just, you’re just really taking it for granted and expecting it to work but also, you’re suffering in silence, you know, you’re suffering in silence.
Vicky hopes that women will be able to learn more about the relationship between bladder issues and menopause in the future.
Vicky hopes that women will be able to learn more about the relationship between bladder issues and menopause in the future.
Just become more aware of the symptoms of genitourinary syndrome of menopause how they might affect the bladder and the pelvic floor which can be another thing that’s related. There’s so much work being done in this area that, that we’re often when, when mentioning vaginal atrophy the bladder gets left out, so that’s a genitourinary syndrome of menopause is such a mouthful, so who wants to be saying that every time. So always ask, I would always say to any menopausal women who’s got bladder issues and they’re being linked in or referred into healthcare, ask whether there might be a relationship between low oestrogen and their bladder issues and that is so, so important. You know, whether it might be frequency, getting up in the night-time to wee irritation, painful bladder and just generally any sort of irritation and inflammation UTI’s if they’re getting recurrent UTI’s, ask if they might be, if they’re being treated and they’re not going away ask, what the reason, ask if it’s related to low oestrogen, ask whether it might be an embedded UTI for which different tests would be done, you know, not all healthcare practitioners are knowledgeable about that. Just, oh I don’t know, just always ask why, become informed.
People we spoke to felt that more could be done to raise awareness of the causes of urogynaecological conditions. Kerry, who has a prolapse, wonders if knowing more about the causes could have helped her to prevent developing one. Elly wanted there to be more awareness that prolapse can happen either directly after, or in the years following, childbirth as well as more information about what symptoms to be aware of.
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