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Inherited motor neurone disease (MND)

Overview
Finding out about inherited MND in the family
Knowledge and information around inherited MND
- Seeking information on inherited MND
- Understanding genetics in inherited MND
Living with an inherited form of MND
Living with an increased genetic risk of MND
Pre-symptomatic genetic testing for inherited MND
Making decisions around having children in families affected by inherited MND
- Having children in families affected by inherited MND: past experiences and future plans
- Options when having children in families affected by inherited MND: Genetic testing and pregnancy
Caring for a relative with inherited MND
- Providing care and support to a relative with inherited MND
- Impact of caregiving on family carers
Family communication, relationships and support in inherited MND
Research and drug trials in (inherited) MND
- Research in MND: views and experiences
- Volunteering, raising awareness and fundraising
Messages to others
Glossary
- Glossary and explanation of key terms
People's Profiles
Resources and Information
Credits

Inherited motor neurone disease (MND)

Profiles - Family members with a negative pre-symptomatic genetic test result

Georgia Z

Kelly

Kirsty

Maggie

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