Tina
Age at interview: 33
Brief Outline: Tina has been living with epilepsy. She had mixed experiences with healthcare support during her pregnancy. She feels healthcare staff should have more awareness of mothers with learning disabilities, and wishes she had been provided with more information on antenatal care.
Background: Tina is a mother of one. She lives with her child and her partner, with whom she’s been together for a year and a half.
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Tina found out she was pregnant at 6 weeks. During her pregnancy, she didn’t receive any information on available antenatal care, social and financial support from the healthcare staff. With the help of her partner, she learnt about the various stages, experiences, and forms of childbirth from YouTube and NHS Direct. Tina found NHS Direct quite accessible, although she thinks the directions of links were confusing at times.
When Tina’s water broke, her mother-in-law drove her to the hospital. Tina thinks the hospital staff were very emotionally supportive during her labour. She was also provided with additional medical support because of her epilepsy.
However, after giving birth, Tina feels she didn’t receive much support from the hospital apart from “the official labour talk”. She wasn’t allowed to breastfeed because of her epilepsy medication, but no one helped her with instructions on bottle feeding. On one occasion, Tina felt that a health visitor questioned her parenting capabilities because her baby lost weight. Tina felt that the health visitor treated her with disrespect and she asked for a different visitor. Tina also had to undergo monthly assessments, which she thought were intimidating. She felt that she was tested on her mothering capabilities, and that anything she said could be used against her.
Tina is not visited by health staff and social services anymore. She participates in two parent groups, in one of which she can meet other mothers with learning disabilities.
Generally, Tina thinks healthcare staff should provide more information on what to expect during and after pregnancy. Also, Tina says hospital staff should receive more training on how to communicate with mothers with learning disabilities. She thinks that some health workers are prone to make negative assumptions on her parenting skills, but she says that their discouraging attitude only makes her want to try harder to “prove everybody wrong”.
Tina feels that her epilepsy didn’t interfere with her pregnancy, partly because of the social and emotional support she received from her partner. She had two seizures during her pregnancy, the first one a week before giving birth, and the second one a week after. She hasn’t had a seizure since.
When Tina’s water broke, her mother-in-law drove her to the hospital. Tina thinks the hospital staff were very emotionally supportive during her labour. She was also provided with additional medical support because of her epilepsy.
However, after giving birth, Tina feels she didn’t receive much support from the hospital apart from “the official labour talk”. She wasn’t allowed to breastfeed because of her epilepsy medication, but no one helped her with instructions on bottle feeding. On one occasion, Tina felt that a health visitor questioned her parenting capabilities because her baby lost weight. Tina felt that the health visitor treated her with disrespect and she asked for a different visitor. Tina also had to undergo monthly assessments, which she thought were intimidating. She felt that she was tested on her mothering capabilities, and that anything she said could be used against her.
Tina is not visited by health staff and social services anymore. She participates in two parent groups, in one of which she can meet other mothers with learning disabilities.
Generally, Tina thinks healthcare staff should provide more information on what to expect during and after pregnancy. Also, Tina says hospital staff should receive more training on how to communicate with mothers with learning disabilities. She thinks that some health workers are prone to make negative assumptions on her parenting skills, but she says that their discouraging attitude only makes her want to try harder to “prove everybody wrong”.
Tina feels that her epilepsy didn’t interfere with her pregnancy, partly because of the social and emotional support she received from her partner. She had two seizures during her pregnancy, the first one a week before giving birth, and the second one a week after. She hasn’t had a seizure since.