Jenny - Interview 17
More about me...
Over several years Jenny's medication regime changed from Fosamax to Actonel to Boniva but she...
Over several years Jenny's medication regime changed from Fosamax to Actonel to Boniva but she...
They put me onto Fosamax which I think is something that you get put on initially. And I really did have a very bad reaction to that. But I did try to keep going on it. I tried for about, not quite a year. And I think my doctor was a bit surprised that I tried that long but I did realise how important it was to actually get my bones up.
But she did actually say, 'Come off it,' which I did for a few months. And then I went back to the osteoporosis clinic for another scan and they put me on Actonel for another two years. Went for my test, after two years, I went for my bone scan and I did find that it hadn’t actually changed which I was really surprised and terribly disappointed at because I’d seemed to cope reasonably well with Actonel. I still had the indigestion and the stomach problems but it wasn’t as bad as on the Fosamax.
But one of the side effects of Aclasta is an increased heart rate and as I am on the beta blockers to keep it down at the moment. It might be all right when I go back to the doctor, I’m just hoping that it will right itself. But if that’s one of the side effects, it's going to be a bit awkward for a year. If you have to go on beta blockers to sort of calm it down because you are on Aclasta that brings it up [laughs].
(Text altered in accordance to Jenny's wishes.)
Jenny paid for private physiotherapy, which she says has been very helpful.
Jenny paid for private physiotherapy, which she says has been very helpful.
Other questions I asked were really to do with my neck because I had just discovered that my neck was tilting over. And I thought, “Well I’m going to be looking at the pavement”. And I’ve got a horror of not being able to look up. So I asked him about that and he said, “Yes, you’ve got the start of the Dowagers hump,” which, you know, really pleased me. And I thought, the name of it alone was dreadful. So I thought, well I knew I'd got it but, and again I went and took myself to a physiotherapist privately. We have a good one in my area. And she’s given me exercises, she’s been brilliant. But the doctor hadn’t given me anything. Again I had to pay. So at the moment it looks to me as if anybody is having some sort of problems they might have to pay. But the physio’s been excellent. She’s measured height and she’s given me exercises for my neck, which has made a huge difference at night. You know, I can get comfortable and go to sleep, whereas before... And she sold me a pillow that would be right for me, to get my neck comfortable. So she’s been very good.
(Text altered in accordance to Jenny's wishes.)
Jenny had private physiotherapy sessions that enabled her to devise an exercise programme that is...
Jenny had private physiotherapy sessions that enabled her to devise an exercise programme that is...
Well, we started out as line dancers, American line dancers. We do the couples now and that they say, the pounding of the floor is excellent for it. And we probably do it three times a week. My husband does it so we do couples dancing. But line dancing if you are on your own is excellent. And I think they do advocate that, they mention it in their book how good dancing is.
(Text altered in accordance to Jenny's wishes.)
Jenny used the NOS website and helpline which was excellent. She also used the Internet to learn...
Jenny used the NOS website and helpline which was excellent. She also used the Internet to learn...
Jenny's regular neck and back exercises help to keep her back straight and her neck flexible.
Jenny's regular neck and back exercises help to keep her back straight and her neck flexible.
Jenny had ME for over twenty years and found that in the past it was very difficult to find...
Jenny had ME for over twenty years and found that in the past it was very difficult to find...
Well I’ve been having tablets but I don’t think they’ve really agreed with me. The calcium supplements. It’s really difficult. I’ve tried a bit of cheese but I had terrible indigestion after that yesterday. All the time I’m trying different things which I think might help. But I have been relying on the supplements and extra tablets to give me my quota of what I should have per day.
(Text altered in accordance to Jenny's wishes.)