Heart failure
Attitudes toward taking medication for heart failure
People commonly said that they didn’t like having to take medicines to treat their heart failure but that they accepted that it was necessary or that it had improved their condition.
Feelings about taking medications for heart failure
Although many disliked having to take lots of pills every day, most said they always took their medication ‘no matter what’ and had never considered not taking it.
However, some people said they didn’t like the idea of taking certain medicines because of the risk of side effects or complications (see 'Common side effects' and 'Other side effects').
Roger says that taking pills is inconvenient at times and a reminder of his condition but he recognises they are keeping him alive.
Roger says that taking pills is inconvenient at times and a reminder of his condition but he recognises they are keeping him alive.
She has asked if she could stop taking some of her medicines because of their unwanted effects but has been told to stay on them forever.
She has asked if she could stop taking some of her medicines because of their unwanted effects but has been told to stay on them forever.
Taking tablets could be upsetting or depressing because it interfered with normal activities.
One man said he had ‘once or twice felt so angry at being dependent on drugs’ that he had thrown his pills across the room, and another person said that he preferred not to take pills at lunchtime because he didn't want his life to become 'a pill-taking exercise'.
One man said he didn’t like taking soluble aspirin because it would get stuck in his false teeth and he had to flush his mouth with lots of water to get rid of it.
Another person objected to being prescribed a statin because his cholesterol level wasn’t particularly high since his diet excluded meat and dairy products, but said he took the tablets ‘sometimes’ to pacify his doctors.
Beth says that taking her medicines upsets her sometimes.
Beth says that taking her medicines upsets her sometimes.
Explains that having to take drugs everyday has affected his quality of life.
Explains that having to take drugs everyday has affected his quality of life.
So you'd be knackered if the only source of food you can have came from the rain-forest because we don't have rain-forests here. So you'd have to go to Brazil or Australia and that's the only snag. I have to go to a chemist and I need a doctor's list, so it reduces my freedom, my quality of life, freedom. And..it is just a split-second thing sometimes, I just see them there, and it's like the enemy instead of my friend, I just smash them - let them know who's the boss, I'm the boss.
Once or twice, this was going back a few years, I didn't take them at all. I actually got away with it for about a day. If I did that now, I'd be struggling after a day, I couldn't do it now, my heart just isn't that strong, it is very, very weak now.
Not taking medications
These feelings meant that some people had been tempted to not take all their medicines, but most recognised that it would be foolish to do that because they would become more ill, and it would be unfair on those people who would have to deal with the consequences.
However, others said they had deliberately missed doses of their medicine to see if it would have any effect on them, which is not recommended.
He left off two doses of his diuretic medicine but it made his gout worse.
He left off two doses of his diuretic medicine but it made his gout worse.
No not really because it’s been explained to me just how bad I will get ill, if I refuse to take my tablets, I’ve missed out doses that, I felt tired, headaches side effects are dizziness because I’ve missed the tablets out, so I never do now, but you do get to the point where you say ‘I don’t want to take this’ - because, the water tablets especially since this gout’s came I’ve been saying ‘I’m not taking them I don’t want them’. I actually missed out two doses because I says, ‘No it might bring the gout back’, and I missed out the doses and I went to see the consultant and he gave me a right rollicking and put me on the Bendrofluazide, and three days after, the gout was back you know, so I know that especially with Bendrofluazide, that if I take that, three days later or 4 days later I’m going to have the gout back and I can’t walk.
The wife had to buy me a walking stick to help me round the house. The last time we were using the chair in the bathroom and the shower room she was wheeling me from the bed to the shower to go to the loo since then, the cardiac nurse that comes out, has brought me a bottle which is, it’s not a thing you want in your house for your kids to see but it’s helped the wife, she doesn’t have to push me from one room to the bathroom now.
So medication-wise I’d love to say, ‘No, I’m no taking anything more of that, that’s it’ but I know if I don’t take it I’ll be in hospital if not even worse than that, so I can’t afford to no take them.
Another person didn’t take all his doses of statin or aspirin because he didn’t think he needed them, whereas he adhered religiously to his beta blocker dosage because he considered this medicine more important to his health than the others he was prescribed.
A woman who had been prescribed digitalis when she was young stopped taking this medicine when she moved because she hadn’t been regularly monitored and didn’t see the need for it.
A man had not taken all doses of his digoxin because it was inconvenient when working underground as a miner; his doctor noticed from the repeat prescriptions that the tablets were not being consumed at the proper rate, got angry, and stopped prescribing the medicine altogether.
The man said he noticed little difference with his symptoms when he stopped taking it.
The need for supportive treatments such as an anti-depressant was sometimes queried; one man had weaned himself off them and Richard said he had refused to take them.
Richard was prescribed an anti-depressant but he chose not to take it.
Richard was prescribed an anti-depressant but he chose not to take it.
Most people said they always adhered to their medication regimen and had never considered not taking them, either because they were happy with their medication or because they trusted their doctor’s advice.
He says that individuals are free to decide for themselves but he always takes his medication because he trusts his doctors.
He says that individuals are free to decide for themselves but he always takes his medication because he trusts his doctors.
No but I asking, I really want to know what you feel about it. I mean when you had the side effect of loss of libido did it ever occur to you, ‘Right I’m going to stop taking that medicine’?
When, with regarding the libido problem, no I never gave a thought to not taking the medication. Yes I’d been offered alternatives but by the same token I was told they wouldn’t have been as effective as the ones that I’m already on. And no you, there’s no point in going to a solicitor and asking them to draw up a will if you don’t take any notice of it when you’re given it.
No, you go to the medical profession, you take their advice to heart, you do what they suggest – you don’t have to - but yes in my opinion you should. By all means query it as to why, the wherefores.
Copyright © 2024 University of Oxford. All rights reserved.