Cervical abnormalities: CIN3 and CGIN

The emotional took a lot longer to sort of heal from really, because the physical symptoms were just, well I’ve had four children you know, it wasn’t anything that, there was no extreme pain in any of the procedures, none of them. Slightly embarrassing with your legs wide open, but nothing any more than that.

And yes. And then coming back to sort of family life. And I think then it kicks in, you know. It’s not something I sort of thought too much at the time, and just got on with it, but I must say the word ‘cancer’ just kept playing around in my head. You know, ‘carcinoma in situ’ kept going round in the head. And I didn’t really realise at the time that it was pre-cancerous. So even though it can spread or you know, it can also if I hadn’t had the smears, that’s what I really think, if I hadn’t had the smear test, he said that he has women that two or three years later, it’s too late. You know, so from that point of view it’s like, I then made it my mission to just say, “Everybody have a smear, you know.”

I’m very impressed with the way the treatment was done quickly; you know obviously it was taken seriously, which now obviously I realise why it was taken seriously. What was I going to say? There was something that crossed my mind as well at the time. I started thinking well, when my mum told me about this injection for children or the set of three injections whatever it is.

I started to think about well, if I’ve had it, and she might catch it, does that mean that I might be able to catch, well not catch, but hereditary, get the breast cancer from my Nan.

So now I’m thinking to myself, do I go to my GP and insist on a mammogram? Because I’m not one of these people that regularly checks myself, and I wouldn’t know exactly what to check for. So I’m thinking that I don’t know how cancer works, even now I still don’t know exactly how it works and I don’t, if my daughter can get it because I’ve had it. Then I feel that maybe I should go and get my boobs seen to really.

So you’re thinking more now because of this, you’re thinking much more about cancer?

In general yeah. I think its, because I don’t know, yeah even to this day I don’t know whether the fact that I’ve had cervical cancer, or nearly cervical cancer, means that I am more prone to get it again. Whether I’m more prone to get a cancer somewhere else. I really don’t know. I don’t know what to look for. I haven’t got a clue.

If CIN3 has been completely treated, in other words the abnormality has been removed in it’s entirety with a zone of long tissue around it, then the chances of it recurring are very, very small. 95% of women do not need any additional treatment. Somebody who has had CIN3 is at slightly higher risk of developing [cervical] cancer than somebody who has not had CIN3, and that’s why we advise that these women should have smears every year for 10 years. And if the smears are normal, then they can return to the normal screening interval.

And some women were also worried about their daughters. And whether there was any more increased risk now for their daughters?

Well they can be reassured it’s not familial. It doesn’t run in families at all. So their daughters are not at any higher risk.

It does change your outlook on everything, you know. I look at my kids differently now, and I look at my family differently now and then. I don’t think health professionals and some people realise the emotional effect it has on a woman. And to be honest I think the emotional effect it has on a woman is more than the physical effects it has on a woman….

But it does make you see things differently and I remember, I think it was about a couple of days after I got my results, I just burst into tears in bed one night for about an hour and a half, just everything all of a sudden just hit me. And now this has, you know, I want to move on with my life and there’s so many things that I want to do now that I wouldn’t have even thought of before. And I know I haven’t got cancer, but the thought of even thinking that you might do makes you see things differently.

I want to do more stuff with my kids. I want to move. I want to because I have, I was actually in the middle of doing an honours, a BA honours when I found out, and I just simply couldn’t concentrate on it. So I’ve had to stop doing that, I want to take that back up again. You know just, oh there’s a list of things that I want to do and I am going to do them.

But you know, it’s just, it is very emotional and that is the main part of it. The waiting and the emotional side of it is the worst part, not the CIN, not the treatments. Not anything, you know, it’s all about the emotional side of it.

I’ve started now making awareness bracelets that I sell with 25% of the funds going towards Jo’s Trust, because they gave me so much support. And also my sister came up with the idea that we should have something, some information put on sanitary products about women to go for their screening test, you know. We don’t like admitting that we have to go, it’s not very pleasant, but if there was something to just discreetly remind us, it might spur somebody who wasn’t going to go, to go for one.

The response I’ve had from manufacturer’s has been overwhelming. They’ve taken it to review boards to try and push it, and Sainsbury’s actually rang me saying they’re really trying to push it through, which is good. So yeah, the more we raise awareness the better, but this is helping me deal with it as well, because I’m doing something, I feel I’m being active. By being active I’m being positive, and that has a good effect on me, and that will hopefully help others in the future.

I think people deal with this as a clinical problem, i.e. you’ve got an abnormality and we’ll remove it. And then you go away and that’s sorted out. But many people that I’ve spoken to have had quite severe, I think quite severe problems mentally after this, in terms of the impact it takes upon your life, upon your family’s life, because while you’re waiting for those results you’re really, most people feel like they can’t really move on, or get on, on a day to day basis. And I certainly found that very hard.

I think obviously my experience was particularly difficult because I was told that I probably had cancer, which at an early age you don’t think it’s something that’s ever going to affect you. And obviously you don’t really know anyone else in the same situation. I’d not been for a smear ever before, so I was very lucky that I was picked up at an abnormality stage.

I had my operation last September. I’ve just had my first clear follow up with no abnormalities, my first clear smear. So I’m very happy about that. But I’m still, I think since then I have been a lot better, that was in March. But previously to that I’ve had very, very difficult times coming through it emotionally. And only since my clear follow up have I been able to stop relying on tablets really to stop panic attacks. And although there were very rare occasions, I have found sometimes that the kind of fear got the better of me.

I don’t think I’m the same person today, but that’s not necessarily a bad thing. I think now that the fear’s subsided somewhat, I appreciate things a lot, you know, my family a lot more and other things in my life a lot more. But I won’t ever be the same person. But that’s a positive thing now rather than a negative thing. Which was straight after it happened because I did find that I was probably suffering from depression.