Hester
(Audio or text only clips) Hester had cystic acne which became quite severe during her gap year abroad at age 18. Her acne was very painful and left some scarring. After several years of trying a range of prescribed treatments, her acne cleared with a 4 month course of Roaccutane.
Hester is 21 years old and an undergraduate university student. Her ethnicity is White English.
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Hester had acne between the ages of 15 and 20, in addition to some occasional spots during primary school. It was whilst she was on a year abroad when she was 18 that her acne became particularly difficult to cope with. She had cystic acne which was very painful and mostly affected her jawline, though she has also had some spots on her back and chest. It was sometimes an “uncomfortable experience” showing doctors the acne on her back and chest, so Hester preferred to have her mum there for support and to ask questions about the treatments. Hester’s acne was very tender, making it difficult to use make-up or have clothing/scarves touch her face. She used to sleep on towels over her pillows as often her spots would bleed at night and stain the bedding. She often took painkillers in order to sleep at night because her skin hurt so much.
At age 15, Hester first decided to see her GP about her skin. She was nervous about this appointment initially but her GP reassured her that she had done the right thing by seeking medical treatment. Hester took oral antibiotics for two and a half years but had to stop when these started to upset her stomach. She used prescribed topical creams which dried out her skin. Hester also bought various products from shops, such as face washes and concealers, and tried ‘natural remedies’ like drinking aloe vera juice. Hester’s acne became particularly severe at age 18 whilst in South Africa during her gap year. When she returned to the UK, she saw her GP and took antibiotics, topical creams and the contraceptive pill. At age 20, she asked about a dermatology referral but because of the long waiting list her parents paid for her to see a private dermatology consultant. She was able to transfer to being an NHS patient and took a 4 month course of Roaccutane (isotretinoin) during her first year at university. The treatment made her skin, throat, eyes and hair very dry, which meant that Hester had to make some adjustments such as using eye drops and a moisturiser often. Hester was very anxious about her acne returning after she had finished the treatment, but finds that Sudocrem works well for an occasional spot.
Hester says there have been times when she “felt quite defeated” and very self-conscious about her skin. It was particularly hard during her gap year in South Africa as she would often be approached by people commenting on her skin and trying to sell her products. She didn’t like the attention as it made her feel “vulnerable and just really exposed”. Hester says that her experiences with severe acne have cast “a shadow over the entire memories of all the amazing things” she did on her gap year. Having acne lowered Hester’s self-esteem and she remembers feeling “ashamed” of how she looked. This had a big impact on potential romantic relationships as she found she couldn’t hold eye contact. Since being at university, Hester has met other people with similar experiences to her own whom she has talked with. She also found some websites about experiences of acne which she found reassuring and helped “build a better picture” of the different treatments.
Hester’s advice to other young people is to know that acne is a medical condition for which there are prescribed treatments. She encourages doctors to be aware that young people may feel very embarrassed and unfamiliar with medical environments. For Hester, it was not only that her acne was painful and made her feel self-conscious but also that the trial-and-error of finding a successful treatment for acne was “emotionally draining”. She says her experience with her main dermatologist was really positive because he was “very sympathetic” and gave her lots of opportunities to ask questions.
Hester often had painful and long-lasting spots.
Hester often had painful and long-lasting spots.
Hester tried lots of shop-bought products and home remedies for acne.
Hester tried lots of shop-bought products and home remedies for acne.
Yeah [laugh]. I think there's generally nothing I haven't tried. And even just the sort of stuff people put on online. Like homemade treatments and stuff like that, like we used a lot of those. And I think I've tried some really odd things. Like we tried like aloe vera juice. Like some, someone online was like, “This works really well for skin.” So I remember my Mum buying like from a health, a website online just like this jug of aloe vera juice, and it was really grim. But we used to have this like syrup, and did like the typical kind of washing in salt water. Tried toothpaste, which actually burnt my skin really badly. So that was, I would not recommend that. And I tried like Sudocrem, which actually works quite well. And then just a lot of face washes and all those kind of Clearasil like gels and stuff like that, so I think I probably went through most product ranges.
Hester found some topical acne treatments were too strong to put on spots near sensitive facial features.
Hester found some topical acne treatments were too strong to put on spots near sensitive facial features.
Hester talks about other people’s misconceptions about acne.Hester talks about other people’s misconceptions about acne.
Hester talks about other people’s misconceptions about acne.Hester talks about other people’s misconceptions about acne.
A lot of people, I think they think that it's caused by a lot of things which it's only exacerbated by. And I didn't really realise that until I started doing my research. And I think a lot of things that are really unhelpful are often adverts for like cleansing products and stuff like that, which are just not that scientific. And a lot of them are like ‘oh, you just cleanse the dirt out your face’. And I think I found that the most frustrating one, that people would assume that you just didn't wash enough or your skin wasn't clean. Or that it was just because you're really oily. Whereas I've found that I actually have very, very dry skin, which was made worse by a lot of the topical creams. Because obviously they dry your skin out a lot. So I was having to use like really heavy moisturisers, and my skin would still be quite dry. It was only really when I was a teenager for a brief bit that I had oily skin. But other than that, my skin is very, very dry. I would have actually to be using like Bio Oil and things like that. And that doesn't, yeah it wouldn't make my skin oily, so. I think a lot of people think that you just need to wash regularly and it would be okay. A lot of people think it's because you eat a lot of bad food. But I know that can exacerbate it, but none of those things cause acne, it is a medical condition. And I think a lot of people-, everyone wants to give you a suggestion and advice but a lot of it's really unscientific. And I know I've. Yeah [laughs]. This one woman in South Africa sort of suggested that I should try honey and cinnamon. And I think that was the only time I turned round to her and said, “Oh, I'll have to, I'll have to go and tell my dermatologist cos he'll be so pleased that you've found a cure for acne.” But, yeah. I think there's a lot of bad science out there. And people think that spots and having acne are kind of just the same thing, and they are actually quite different.
Hester didn’t know at first that she could go to the GP about acne.
Hester didn’t know at first that she could go to the GP about acne.
Hester started on antibiotics as an alternative acne treatment to hormonal contraceptives.
Hester started on antibiotics as an alternative acne treatment to hormonal contraceptives.
Hester doesn’t take the combined contraceptive pill because she’s had migraines before.
Hester doesn’t take the combined contraceptive pill because she’s had migraines before.
Yeah. I think it's, I think it's the combined that you can't take. And I don't think my GP had realised, to be honest, that that- he'd never asked me. But I think when I came to uni, because they're so much more on it with, they just, obviously the doctors prescribe a lot of contraceptives , she did-. She just checked the list with me. And I said, “That's something that no one's ever asked me before.” And she was like, “I'm quite surprised, because yeah, you're not, you're not supposed to give it to people with that.” So then I went on the progesterone-only, when I was on my Roaccutane (isotretinoin). And yeah. That was, it kind of surprised me that if it was a big deal, that I hadn't been asked. But I don't know if it's that my GP didn't prescribe many contraceptives, or I've, he just assumed it wasn't a problem. Because I think at that point I'd definitely, I'd had- and it was only one migraine. So probably it never would have occurred to me to have checked. But, yeah. I think, yeah. But it was a bit surprising for me, but. I guess it's just kind of taught me that I probably do need to check, when I get prescribed things, or like to have a look at the list of it and just check for yourself. Cos I guess GPs are human and they probably do, they might just forget or, but. Obviously it's your health, so it's quite, it might have quite significant repercussions for you.
Hester sometimes found it easier to tell people she couldn’t drink any alcohol at all, rather than explain in more detail.
Hester sometimes found it easier to tell people she couldn’t drink any alcohol at all, rather than explain in more detail.
Hester felt uncomfortable being offered herbal medicines for acne whilst she was living in South Africa.
Hester felt uncomfortable being offered herbal medicines for acne whilst she was living in South Africa.
It must have been really difficult to cope with, to sort of respond to emotionally, or-?
Yeah. I think- cos there's part of me that's really, really angry. But I think at the time like you're just really, really embarrassed. You're just like 'just go way, just go away, like I don't want everyone to stare at me'. Because they're already looking at , already having a look anyway, because it's quite an obvious like rash over the face. And people are like sort of glancing over and think-, you can tell they're looking at your skin anyway. So I don't need the attention. But I also just felt like, it just made me feel like really vulnerable, I think, as well. Because I couldn't really tell them to go away. And I could tell they were picking on me because of something that was, you know, wrong with me. And I just, yeah, just feeling like really vulnerable and just really exposed. But yeah, I think-. And then I'd be angry afterwards. But I did sort of thing like I was within my rights to tell them [laughs] just to I don't know, be a bit rude to them [laugh]. But [sigh], but then I just, I think you never are because you'd rather not cause a scene, but I think technically if someone thinks they can say that about your appearance, then you're kind of within your rights to just tell them to go away.