Angus - Interview 06
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In late 2009 (about three months before he was interviewed) Angus was sitting at home one evening talking to his wife, when suddenly he lost his speech. He had seen the FAST advert (Face, Arms, Speech, Time) on TV, so he knew this was a symptom of stroke. He wrote ‘stroke’ on a note to his wife, and she was about to call an ambulance when within ten minutes his speech came back, and they thought maybe it was something else. So Angus went to see his GP the following day, who said it was a TIA and that he would make him an appointment at the hospital. But 2 days later, before Angus had been to hospital, he had another TIA, again at home in the evening. This time he lost part of his vision in one eye for 15-20 minutes. At first he did not connect this with TIA, as he did not realise sight problems can also be a symptom, but when he called the GP he was told it was probably a second TIA.
Angus checks his blood pressure at home regularly and then sees the research team every three months so that they can monitor how things are going
Angus checks his blood pressure at home regularly and then sees the research team every three months so that they can monitor how things are going
And what have they said to you now because we’re what three months later about what your level of risk is now?
Angus thinks a little bit more about what he eats but generally he feels that he can live life pretty much as normal
Angus thinks a little bit more about what he eats but generally he feels that he can live life pretty much as normal
I’m more conscious of my blood pressure now, because apparently this may be a contributing factor towards TIAs, mini strokes, and I subsequently keep it under control and watch what I eat, so I suppose in a way it has affected me that way, because I now make sure I don’t eat salty foods and things, don’t put salt and vinegar on my fish and chips and things like that, you know, because these things contribute or may contribute to it, you know. [dogs barking in background]
Other things I’m doing is I suppose – no, really, it really is food, making sure it’s more healthy than what I used to eat. Albeit I really didn’t really eat unhealthily before, I don’t smoke, I don’t drink that often. Perhaps when I do it’s probably a bit too much [laughs] but not very often. But the stroke it, the mini stroke, the TIA, it’s, it really hasn’t affected me to worry about it. And like I say I’m carrying on with my life now, hopefully, as normal, you know.
Angus found the GPs explanation of what happens during a TIA helpful because he had never heard the term before
Angus found the GPs explanation of what happens during a TIA helpful because he had never heard the term before
My first reaction was I’d had a stroke. The word TIA I’d never even heard of before, and mini stroke, I just thought strokes - a stroke’s a stroke, you know. Because I’d lost my voice I thought this is the start of the - like the advert, that FAST advert, you know, part of that is the speech. But it come back, that was the thing. It come back very quickly, and it’s been explained to me it’s just like a little blood clot going to that part of the brain, then it passes through. But while it’s there you lose that, whatever part of your speech or your sight, whatever it is, for the time it’s there, you know. For some people it stays there and that’s it, they’re disabled.
Angus has used a number of different websites to find information, and talks to people about their experiences on Facebook
Angus has used a number of different websites to find information, and talks to people about their experiences on Facebook
Did they give you any leaflets about what it was and what it meant, or any other kind of information from the hospital? Or did you …….
Angus had two short episodes which were confirmed as TIAs. During the second one he partially lost his sight for about 20 minutes.
Angus had two short episodes which were confirmed as TIAs. During the second one he partially lost his sight for about 20 minutes.
I had two TIAs at the beginning of December 2009. The first one I was actually sat in the room where we are now, talking to my wife about Christmas dinner, and I just couldn’t talk any more. Just as quick as we are talking now it just, my voice, my speech went. I immediately knew what it was and wrote on a piece of paper, “stroke,” to my wife and she was in the process of going to ring for an ambulance and go through the process of 999 etc, when my speech come back, as quick as that, and come back, well, as it is now. And of course, it come back, I didn’t really do nothing about it straight away because I thought, “Oh, it couldn’t have been that, it’s something else, and I’ll just get in touch with my GP and make an appointment.” Which we did, and I had an appointment for the next day. I went to see my GP and he confirmed that I had a TIA, this was the first one I had. He then told me that I should go for further tests, and basically that was it with the doctor. I come back home, where I had a second TIA the next night, where I went partially blind in one eye, my right eye, it lasted for about 20 minutes, and this time rung the doctor immediately - not the hospital or an ambulance but the doctor - who confirmed that to come down and see him, which we did, confirmed that it was a second TIA.
The GP wanted to see Angus immediately but he put off going until the next day as he was busy with work.
The GP wanted to see Angus immediately but he put off going until the next day as he was busy with work.
Angus' wife was going to call for an ambulance but the symptoms soon disappeared so he decided to wait and see the doctor the following day.
Angus' wife was going to call for an ambulance but the symptoms soon disappeared so he decided to wait and see the doctor the following day.
Angus was called to the hospital soon after he had experienced two TIAs, and tests were undertaken to see what had happened
Angus was called to the hospital soon after he had experienced two TIAs, and tests were undertaken to see what had happened
I went to see my GP and he confirmed that I had a TIA, this was the first one I had. He then told me that I should go for further tests, and basically that was it with the doctor. I come back home, where I had a second TIA the next night, where I went partially blind in one eye, my right eye, it lasted for about 20 minutes, and this time rung the doctor immediately - not the hospital or an ambulance but the doctor - who confirmed that to come down and see him, which we did, confirmed that it was a second TIA.
We then had a phone call from, the next day had a phone call from the hospital to immediately go up there, where we had various tests. I had MRI scans, ECG echocardiographs, you name it, all the tests that doctors do for your whole system, I had them all done. And basically that was how it stood even to now, because they found really nothing wrong with me to suggest that I’d have another one, or why I had one.
Angus takes a number of different tablets some of which he can remember and some he can't. He had side effects from the blood pressure medication but his doctor has given him an alternative
Angus takes a number of different tablets some of which he can remember and some he can't. He had side effects from the blood pressure medication but his doctor has given him an alternative
Well tell me what you’re taking. What are they giving you?
Angus got plenty of information about the research he took part in, and he and his family could ask as many questions as they wanted. He took part for his own benefit but is happy if it helps others
Angus got plenty of information about the research he took part in, and he and his family could ask as many questions as they wanted. He took part for his own benefit but is happy if it helps others
They give me all their pamphlets on it, but explained it to me and then just give me the pamphlets afterwards, but it was all explained to me in the hospital' what they were doing, and what they were trying to do, and how many people were on it, on the study. And the time period, you know, what they were aiming for, you know. Yeah, and any question that I asked. And time wasn’t, it wasn’t like a quick, “You’ve got ten minutes to get out.” I could have stayed there all day talking to them if I’d have needed to. Time wasn’t an issue. You know, so I was made to feel, you know, that I could discuss anything with them. And like I say, my wife was with me that day and my daughter-in-law, and they asked questions as well, and that was fine with the doctor I was talking to at the hospital, you know.
Angus had mobile phone blood pressure monitoring at first, and was impressed that his medication changed as a result. Now he records his own blood pressure at home and takes the results to the research clinic
Angus had mobile phone blood pressure monitoring at first, and was impressed that his medication changed as a result. Now he records his own blood pressure at home and takes the results to the research clinic
They explained to me that - I mean, I went up the hospital in the next, in that first month I was up there twice a week, I should think, and in that time I had 24-hour monitors attached to myself, blood pressure monitors, ECG monitors and various monitors. And then went back up and had them removed from me. So they were keeping me sort of monitored 24 hours a day. I was doing my blood pressure three times a day, it was three times a day and three times each time, if you see what I mean, so it was like nine times. And that was being transmitted, I had a mobile phone from the hospital that they gave me and as soon as I took the blood pressure it sent the figures off to the hospital. So I was being monitored by the hospital all the time, you know, in this month, that was, that first month and I was doing this blood pressure three times. So there was, I was being monitored by the hospital sort of three times a day.
Angus' wife worried about him and wanted him to take things easy but he didn't want to be 'mollycoddled'
Angus' wife worried about him and wanted him to take things easy but he didn't want to be 'mollycoddled'
Yeah, my wife’s reaction is I shouldn’t do this and I shouldn’t do that, take things easy, whereas I just want to get back to being normal and carry on as before. I don’t want something to sort of hold me, I don’t want to sort of mollycoddle myself, if that’s the right word. I just want to get back to normal, basically, and carry on as before, whereas other people want me to - my wife in particular, wants me to take things steady, don’t do this, don’t do that, you know.
Angus needs to be able to drive for his job, so having to stop driving for a while had an effect on his income
Angus needs to be able to drive for his job, so having to stop driving for a while had an effect on his income
The kick-on from all this is that I had all these few, quite a few, six weeks or so off work because of not being able to drive etc. - not necessarily because I didn’t feel right, because I did, you know. But I was told not to drive, so I had to, and that subsequently cost me more work because I wasn’t there to follow on, and so really I’ve not had a great deal. In the last four months I’ve probably only had about a month’s work, you know.
The GP wanted to see Angus immediately but he put off going until the next day as he was busy with work. Angus needs to be able to drive for his job, so being told to stop driving for a while had an effect on his income
The GP wanted to see Angus immediately but he put off going until the next day as he was busy with work. Angus needs to be able to drive for his job, so being told to stop driving for a while had an effect on his income
I mean, it was really silly, but the doctor actually from the hospital rung me on my mobile and said, “Come in, we need you in here now” and I said, “I can’t, because I’m just finishing off some work” and he wasn’t too pleased, sort of thing, and I went to see him the next day. And that’s when he said to me, “How did you get up here?” I said, “Well, I drove” and he said, “Well, you won’t be driving back” you know. Yes, and he stopped me from driving then.
Angus was surprised to have to stop driving for six weeks because he felt back to normal very soon afterwards
Angus was surprised to have to stop driving for six weeks because he felt back to normal very soon afterwards
I didn’t know what to think, because it was the stopping me driving which really hit home that there was a problem, when they said that a lot of people, quite a high percentage of people who had TIAs go on to have a stroke, a debilitating stroke, within the next month, you know, and it was that I was more concerned with and not - getting over that month was great, after Christmas had come and gone it was like a month had gone and it was, “Yeah, I’m sort of, I’m okay”, sort of thing, you know.
That was the only time I really worried about it, because that was the time - and once I’d got my, once I was allowed to drive again, you know, I felt then, yes, I’m back to normal. Even though I’d felt normal all the time, in myself it was, “Yes, this is great”, yeah.
Angus had not heard the term TIA before he experienced one and the doctor explained that it was like a mini stroke.
Angus had not heard the term TIA before he experienced one and the doctor explained that it was like a mini stroke.
My first reaction was I’d had a stroke. The word TIA I’d never even heard of before, and mini stroke, I just thought strokes - a stroke’s a stroke, you know. Because I’d lost my voice I thought this is the start of the - like the advert, that FAST advert, you know, part of that is the speech. But it come back, that was the thing. It come back very quickly, and it’s been explained to me it’s just like a little blood clot going to that part of the brain, then it passes through. But while it’s there you lose that, whatever part of your speech or your sight, whatever it is, for the time it’s there, you know. For some people it stays there and that’s it, they’re disabled.
Angus thinks the research team have been dedicated and very thorough. He can ring the research nurses any time he wants
Angus thinks the research team have been dedicated and very thorough. He can ring the research nurses any time he wants
How have you found the staff who are running the research project?
Angus says that if you are experiencing symptoms and don't quite know what's wrong go to the GP because if you ignore things, it could turn into something worse
Angus says that if you are experiencing symptoms and don't quite know what's wrong go to the GP because if you ignore things, it could turn into something worse
Well, if someone’s experiencing one, the first thing is to identify it, and not to ignore it and think it’s something else If it, if something goes wrong with your body and you’re not sure what it is, it could be a TIA. It may be nothing, but it’s worth getting to see someone sooner rather than later to talk about it, to discuss it, because the doctors, they see it all the time and they can probably recognise it for what it is. And the tests are non-intrusive, what you have, apart from blood pressure - blood tests, taking blood. It’s nothing sort of untoward, what you have to do, and they’re all painless, is what I’m trying to say, and they’re readily available. So it’s really identifying that it is and not ignoring it, because to ignore it could make it turn into something worse, you know, yes.