Interview 24- Screening for beta thalassaemia
Both parents are beta thalassaemia carriers. Had CVS in first pregnancy. Baby diagnosed with beta thalassaemia major and they continued the pregnancy. In three pregnancies since they chose not to have antenatal diagnosis and none of the children are affected. Some audio clips in Mirpuri. Sister-in-law also interviewed in English.
Married housewife with four children aged 6, 5, 3 and 9 months. Ethnic background/nationality: Pakistani.
For more clips from this interview click here.
More about me...
She did not have diagnostic antenatal screening because she knew she would not end the pregnancy, and described how 'left it to Allah' instead. (Audio clip in Mirpuri).
She did not have diagnostic antenatal screening because she knew she would not end the pregnancy, and described how 'left it to Allah' instead. (Audio clip in Mirpuri).
(English translation, audio clip in Mirpuri).
Her brother and sister-in-law felt pressured into having an antenatal diagnostic test while...
Her brother and sister-in-law felt pressured into having an antenatal diagnostic test while...
Sister-in-law' I was there when she actually went to get the screening [CVS] done in [city]. But before that that's all they were pressured into, “Have the screening done. It's for your benefit.” And after that it was like, you know, “It's, at least you'll find out, and you can abort the child.” Which they didn't believe in. As I say, I mean there wasn't much information given to the parents for them to actually make their own mind as to, “Is it an option? Have we got an option? Or do we have to have the screening done?” At that time they thought they had to have the screening done. That's why they went and did it. But it was I think when time went by that they found out that it was just something if they didn't want to do it they had an option not to do it.