Long term health conditions (young people)

Overview

In this section you can find out about the experience of long-term health conditions in young people by seeing and hearing young people share their personal stories on film. Researchers travelled all around the UK to talk to 30 young people in their own homes. Find out what people said about issues such as diagnosis, finding the right medication, exercise and school and social life. We hope you find the information helpful and reassuring.

Long term health conditions - site preview

Long term health conditions - site preview

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Sara: You’re supposed to be having fun and growing up and I wasn't, I didn't feel that I was really doing that. I felt like I had already grown up because I had to grow up quite quickly and deal with doctors and injections and the possibility of operations and the whole hospital thing.

David: I've worn socks for five years and I know this is crazy but because I can't put socks on, I don't want to keep asking people . I mean in the morning I have to get up myself, dress myself, so you know, there's nobody here to help me put my socks on so simple solution is don't wear any socks.

Katie: I think when you, with long term health conditions, you – I don't know, you get the feeling that you know a bit more than they do. And then you kind of feel like they're not really listening.

Clint: But it is extremely difficult and lonely, you know, and trying to be honest and find someone that's going to be honest with you because if I'm going to sleep with somebody, then they need to know I have HIV, and that leaves you automatically open and vulnerable and all of that stuff. But, you know, it's worth just being yourself. I can't be anything more.

Hassan: And I don't have any access. Once we went to the National History Museum in London and there was no entrance, I couldn't find an entrance for me and so you couldn't go there.

Jodie: The worst words in the world, “You’re so brave”, you just say, “Oh shut up”. [Laughs]  I am not brave I just want to live a normal life.


 
You may also be interested in our young people's sections on epilepsy, diabetes type 1 and arthritis.

This section is from research by the University of Oxford.

Supported by:
Department of Health
Expert Patient Programme

Publication date: October 2007
Last updated: July 2017.

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