Mirella
When Mirella’s was about 12 months old he started to develop croup and suffered from a series of colds. He was eventually diagnosed with asthma and has experienced several episodes of flu-like illness since.
Mirella lives with her 2 sons, aged 6 and 3 years, and her husband. She works part-time as a HR professional. Ethnic background: White European.
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When Mirella’s son was about 12 months old he started to develop croup and suffered from a series of colds. This escalated to chest infections and wheeziness which resulted in several hospitalisations. He was eventually diagnosed with asthma.
Mirella explains that she often finds it quite difficult to tell whether her son is suffering from flu or flu-like illness or just a cold, as his breathing is often laboured by colds. She said that a key indicator for her is his temperature and that her son’s condition deteriorates quite rapidly when he has a flu-like illness. As soon as Mirella notices signs of flu or flu-like illness in her son, she will up his inhalers and monitor him closely. She describes how over the years she has developed a ‘gut instinct’ and tries to manage symptoms at home before taking him to hospital. She explains that she has very good relationships with her GP and the hospital, which has been extremely helpful. Her long standing relationship with her GP means that he knows the children’s ill states well.
Mirella initially found the flu episodes quite upsetting and stressful but has developed a relaxed and methodical approach when Ben becomes unwell, in that she knows “it gets worse before it gets better”. She says that although you get used to managing flu episodes, every episode is different. She describes how the last episode had been more severe than previous ones. After a visit to the GP, she had been managing his symptoms with antibiotics and inhalers at home. She had monitored him throughout the night but had been unsure whether she should take him to hospital. In the morning, she contacted the out of hours GP who recommended she take him to hospital. He was suffering from laboured breathing, a temperature and his ribs were ‘going in’. He was also very quiet, which was unusual for him as he is usually fairly active even when unwell. Mirella explains that they have had many stressful episodes but they have always managed. As the last episode was unusually bad Mirella is a bit more concerned about future episodes.
Mirella tries to keep life as normal as possible for her son but will keep him at home if she knows that there are illnesses going around at school or amongst friends. She has a good relationship with her son’s school, which provides her with confidence that his condition is being monitored and managed appropriately. She and her partner have found it challenging to manage their work around their son’s illness. She has had to use up her annual leave to take care of him, which has meant she has had to take unpaid leave for holidays. As Mirella’s family lived abroad, she has found the support from her friends invaluable.
Mirella gives her son the maximum dose of asthma medicines she can give him at home and if he is still struggling to breathe, she goes to the hospital.
Mirella gives her son the maximum dose of asthma medicines she can give him at home and if he is still struggling to breathe, she goes to the hospital.
Mirella rang 111 when her son was not getting any better and they sent an ambulance to take him to hospital.
Mirella rang 111 when her son was not getting any better and they sent an ambulance to take him to hospital.
Nia found it stressful watching her son’s reaction to having the nebuliser mask on his face. Now he is more used to it and it is much easier to manage.
Nia found it stressful watching her son’s reaction to having the nebuliser mask on his face. Now he is more used to it and it is much easier to manage.
But yeah, yeah, it is stressful and it’s scary and frightening but again it comes with experience that then when you have to do it all the time you sort of, you know what to do, how to help them and they learn “Okay, I’ll have this treatment and then I’ll feel better.” So then you just learn, learn the way of being in a hospital if you like.
Mirella talks about the facilities that were available for parents when she stayed in hospital with her son.
Mirella talks about the facilities that were available for parents when she stayed in hospital with her son.
Mirella says that her son needed to have antibiotics to treat his infection and he would not have got better without it.
Mirella says that her son needed to have antibiotics to treat his infection and he would not have got better without it.
And I guess you know, why my older son, different medical issues than to wheeziness, but he for his first two years pretty much had a course of antibiotics every day, not every day, every month. So yeah so he got prescribed pretty much once a month antibiotics. But then I did appreciate that he needed it. So yes he might have built up a bit of a tolerance but then again you know his condition would have not got better without it, so although I was concerned a little bit I still gave the antibiotics to him because obviously they needed it so.
Mirella avoids her three year old son coming into contact with other children if she knows they have colds. During the winter months she doesn’t take him to indoor play centres.
Mirella avoids her three year old son coming into contact with other children if she knows they have colds. During the winter months she doesn’t take him to indoor play centres.
Mirella’s husband sometimes works at night. If her son becomes ill during the middle of the night she has to find someone to look after her other child.
Mirella’s husband sometimes works at night. If her son becomes ill during the middle of the night she has to find someone to look after her other child.
Mirella tries to involve her eldest son by asking him to help with looking after his brother.
Mirella tries to involve her eldest son by asking him to help with looking after his brother.
Yeah.
…do you take him with you or do you…?
Yeah I mean I’ve, I think you know most of the time has been lucky that either my husband has been on his way home or has been home or been sleeping and I’ve woken him up to go to hospital with the other one. I think the older one sometimes feels a bit left out because obviously the younger one is getting a lot of attention, whether it’s from me or the doctors, or everybody’s fussing over, and when your child is very ill and the other one isn’t although I do try to think of him and sort of get him involved and say well would you help your brother to you know get him a drink or give him a drink or give a cuddle or something. It, yeah they do feel a bit left out.
Mirella’s husband works shifts and can look after the children Monday-Wednesday if they are ill. She took unpaid leave to visit her family in Finland because she had used all of her annual leave to look after her children
Mirella’s husband works shifts and can look after the children Monday-Wednesday if they are ill. She took unpaid leave to visit her family in Finland because she had used all of her annual leave to look after her children
Right.
To look after, obviously I don’t, we don’t get any paid leave to look after the children. Obviously if we’re half the way through a day there’s an emergency and you have to attend, you can go home and, and that’s fine, but the following day you either take unpaid leave or annual leave. What we’ve done that yeah I use my annual leave to be home with, with them which means then that I haven’t got annual leave actually, to go on holiday. So there’s been a few years now we haven’t had enough days left for holiday. So this year, for yeah there was financial impact as well that I have wanted to go to see my family in [Country] where I’m from and I had to take unpaid leave to be able to go there because I didn’t have any holiday left. So then I guess that makes your life even harder that although I’m not off from work anymore than my colleagues but then it seems like when you quite regularly have to take time off that you are not there, but they are using the same amount of days than they do, they just take it as a holiday. I take them to look after ill children. Yeah. It’s a bit of a juggle. Sometimes it’s, I’m lucky that my husband works in shifts so he might be home on, you know, Monday/Tuesday/Wednesday anyway, so he can look after the children when they are ill, which he does a lot. So he’s, we share and then he’s taken annual leave from work to look after the children and his employer gives him a few days a year to look after children when they’re poorly. Whereas mine doesn’t so but overall then we’ll just have to juggle.
Mirella says parents also need a pat on the shoulder sometimes.
Mirella says parents also need a pat on the shoulder sometimes.
A bit of human?
Mm. The human touch yeah definitely yeah. Yeah.