Parents’ experiences of neonatal surgery

Credits

Dr Lisa Hinton

Lisa Hinton is a medical sociologist and did her DPhil on experiences of infertility. She joined the Medical Sociology and Health Experiences Research Group in 2006 and leads work on applied research for the group. Her research interests include women’s health - in particular infertility, complex pregnancy and childbirth – intensive care medicine and the use of the Internet as a resource for health information and support. She conducted the interviews and did the data analysis for this study.

This module was produced by Dr Lisa Hinton, an experienced qualitative researcher with expert input and guidance from Marian Knight (Professor of Maternal and Child Population Health) and Ms Anna-May Long (Clinical Research Fellow in Paediatric Surgery) from the National Perinatal Epidemiology Unit at Oxford University, and Louise Locock (Associate Professor and Director of Applied Research, HERG, Oxford University)

Acknowledgements

We would like to thank all the parents who so kindly and generously shared their story with us. We are grateful to all those people who gave us advice, help and guidance through the project.

Thanks also to the following health professionals and organisations:

Professor Mark Davenport - Consultant paediatric surgeon, King’s College Hospital, London

Tim Bradnock - Consultant paediatric surgeon, Royal Hospital for Children, Glasgow

Simon Kenny - Clinical Director of Surgery, Critical Care, Anaesthesia and Cardiac, Alder Hey Children’s NHS Foundation Trust

Janet McNally - Paediatric surgeon, University Hospitals Bristol NHS Foundation Trust

Liam McCarthy - Consultant paediatric urologist and transplant surgeon, Birmingham Children’s Hospital

Kokila Lakoo - Consultant paediatric, Children’s Hospital, Oxford University Hospitals NHS Foundation Trust

Gregor Walker - Consultant paediatric surgeon, Royal Hospital for Children, Glasgow

Joanne Minford - Consultant paediatric surgeon, Alder Hey Children’s Hospital, Liverpool

Antonino Morabito - Consultant neonatal and paediatric surgeon, Central Manchester University Hospitals NHS Foundation Trust

Karen Dick - Paediatric surgical nurse specialist, Southampton Children’s Hospital

BAPS-CASS Parent Advisory Group members

Bliss charity

Gastroschisis and Exomphalos Facebook group

ExomphalosOmphaloceleAwareness Facebook group

Gastroschisis.co.uk

GEEPs

TOFS.org.uk

CDH UK

Hirschsprung's & Motility Disorders Support Network

Advisory Panel

Joanne Minford - Consultant paediatric surgeon, Alder Hey Children’s Hospital, Liverpool

Tim Bradnock - Consultant paediatric surgeon, Royal Hospital for Children, Glasgow

Joanne Marshall - Parent advisory group member

Clare Lambert - Parent advisory group member

Janie French - Parent advisory group member

Joanne Shepperd - Parent advisory group member

Mike Christophers - Parent advisory group member

This project was funded by a National Institute for Health and Care Research (NIHR) Professorship award to Marian Knight (Reference NIHR-RP-011-032). The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health.