Living with a urinary catheter

Frances: For anybody, if they’ve no, to have no control over your bladder and bowels is really probably the worst thing that can happen to you.

Alok: Later on and they told me that it's an indwelling catheter and you need to change it because in your case, it's going to be a long time process. It's better to change it to the suprapubic catheter. And I was still not sure because when they expressed to me that we need to make it another new hole in your tummy and this and that, I was not…, I was scared. Yeah, like I don't know, it's a big process what's going to happen and how it's going to be, how it would look?

Kenneth: Sometimes I think the bulb that held in would burst, so it would come out, it could come out when you're in the bed, it could come out when you're out walking. And of course having it replaced, if you had somebody who was good at it it’s is fine. But if you had somebody who wasn't good at it, that, again was another horrible time,  didn't like it at all.

Melanie: So I no longer have any shame or embarrassment about having a bulge in my trousers where, my leg bag is. It's, it's like in the scale of things ‘so what?’ It might have bothered me at one time but the harsh reality of my condition is such that, hey, if anybody else is bothered by it, that's their problem. I'm not.

Iain: It takes away the urgent need to get to the toilets in time. Because when I got it fitted I had frequent times where I maybe wet my pants, and that was rather embarrassing. The catheter removed that altogether.