Zoya

Age at interview: 23
Brief Outline:

Zoya is a university student and lives with her parents. Zoya describes her ethnicity as Pakistani. 

Zoya was in her final year at university when she caught Covid at the end of 2020.  She had to take a break in her studies because of her symptoms. She experienced fatigue, aches and pains, loss of taste and smell, changes to her breathing, a cough, and anxiety.  She has retaken her final year at university and feels things are finally starting to get better, but that she still has a way to go. Zoya was interviewed in July 2022.

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Zoya and her family were very cautious about taking any risks of getting Covid throughout most of 2020. She caught Covid towards the end of 2020. She said her initial illness was ‘pretty hard’. She experienced fatigue, throat symptoms, aches and pains, a change in her breathing and a cough and was in bed for a few weeks. After a few months of having extreme fatigue, she started to think she had Long Covid symptoms. She didn’t have the energy to get up and do the things she would normally do. 
 
Zoya now finds that her energy levels fluctuate – sometimes she feels she is getting better, but then her energy can dramatically drop off again and it is difficult to figure out why. Her symptoms seem connected to each other and follow a cycle. She experiences anxiety and low mood, even though she hadn’t had anxiety before and has found this hard to deal with. She also lost her sense of taste and smell, and has had pains in her joints and inflammation in the tendons in her hands which flares up when she uses her hands a lot. Although her fatigue and anxiety have been difficult to deal with, the change to her hands worries her most because it is not something she would expect to experience at her age. 
 
When Zoya caught Covid she was in her final year at university and going to classes and socialising with friends. After having Covid, she had no energy and lost interest in doing anything for a while and hardly ever went out. She was also worried about catching Covid again. 
 
As more people were being vaccinated, Zoya started to feel better about going out, but she still takes precautions like washing her hands frequently. 
 
Because of her symptoms she couldn’t finish university when she was meant to, and she has retaken her final year. The university have been very understanding and made the process of adjusting her studies easy. 
 
Her family have also been supportive and understanding. 
She feels things are getting better and she is slowly recovering, but that she still has some way to go. She would like to be more active again, and it has been devastating not to be able to do the things she would expect to be able to do at her age. Zoya is trying to find a balance where she doesn’t overwork herself but is able to push her symptoms aside. If she does overwork, she then can feel ‘completely knocked out’.
 
Zoya had contact with her GP, who identified Long Covid and suggested that her anxiety was possibly a Long Covid symptom. She said they were generally good but Zoya feels they could have offered more help. She was sent a link to follow for Long Covid support but didn’t feel able to do it. Zoya has looked online for information but hasn’t found anything specific that has been useful. She has stopped drinking coffee because she found that caffeine triggered her anxiety. She hasn’t joined any social media groups related to Long Covid. 
 
Zoya knows a few other people who have Long Covid and talking to them has been really helpful, and she would encourage other people to connect with support groups for Long Covid. She thinks it is really important to get recognition of how the condition really affects you and to get ideas to help recovery. She suggests health professionals could be more proactive in supporting people and help them to understand what’s happening. Zoya would like research to look into Long Covid in much more depth. 

 

Zoya had not realised that many people with Long Covid had anxiety until her GP said her anxiety could be a Long Covid symptom.

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Zoya had not realised that many people with Long Covid had anxiety until her GP said her anxiety could be a Long Covid symptom.

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And would you say the fatigue is the main ongoing symptom or are there any others as well?
 
Oh no, so there are a few others [pause] another symptom that I wasn’t aware that it was a Covid symptom but a few months after I started feeling anxious. It’s not something that I had before, I didn’t have an issue with…anxiety. I’d had the occasional stress, you know like everyone would do. But yeah, I actually started getting anxious and that I had anxiety all of a sudden…which was weird. And I didn’t realize it was…it could be a Long Covid symptom, it’s only when I spoke to my GP about it that they told me that actually not a lot of people are getting this, you know, it could be a Long Covid symptom. Especially because I never really had that kind of problem before. So that’s another thing that’s been quite…hard to deal with.

 

Zoya said that other people with Long Covid “actually understand” what you are going through and can provide reassurance and advice.

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Zoya said that other people with Long Covid “actually understand” what you are going through and can provide reassurance and advice.

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Do you have any advice for people, or anything based on your experience that you think would be helpful for somebody with Long Covid, or maybe somebody earlier on in their experience to hear?
 
I would say it would be very helpful to…you know, if they could reach out to support groups where there are people, others that are experiencing the same thing. I feel like just talking to people and getting to know , you know, that there are other people that are experiencing similar things to yourself is actually very helpful in a lot of ways it just makes you feel like, you know, you’re talking to people that actually understand where you’re coming from because right now I think people that haven’t experienced Long Covid and haven’t had Covid even they just don’t understand, they just think, “Oh, you know, you’re just [pause] blowing it out of proportion or you’re just overreacting or you’re just lazy”.
 
But really, it’s just…it’s something that you… the fact that it’s such a…it’s so physically …it impacts you physically to the point that where you can’t even do things when you want to, it’s only something that you…people understand when they actually experience it themselves. So, it’s helpful to talk to people just that actually understand because I just think it…it just makes you…it makes you feel a lot, you know, more seen and like, you know, it’s okay to be going through what’s happening and I guess it’s also…it would also be helpful to be able to share things on how you can help yourself recover.